White Matter Disease

Posted by laylasmom @laylasmom, Feb 26, 2023

I am a 65 year old woman. I passed out during covid and ended up on the floor in my bathroom unable to move my legs. I laid there for almost 15 hours and finally I was able to slowly crawl to reach my phone. I went to the hospital and they did many tests to try and determine why I fainted and why I was paralyzed. On the MRI they noticed I had white matter in my brain. My neurologist did many labs and ordered a spinal tap. After 3 attempts, they could not get out enough fluid making the spinal tap unsuccessful. The impression on the MRI said "nonspecific T2 FLAIR hyper intense white matter disease". Differential considerations to include chronic ischemic microvascular disease vs vasculopathic/inflammatory process or demyelination. I did some research and I think I would benefit to see a neuroradiologist. My neurologist is not able to determine the cause of these lesions so I think my next step is to go to Mayo in Rochester, MN (I live in Minnesota) and try and find a neuroradiologist there. Has anyone been diagnosed with white matter disease and what was your next step? Some of what I read on line was pretty darn scary.

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Profile picture for narus @narus

I was diagnosed with White Matter Disease when I had a MRI because of abnormal gait after prostate cancer treatment. Only thing I have read about that might help is a supplement called Piracetam which is supposed to increase blood flow to the brain.

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Piracetam is not FDA approved as a drug or supplement. Most people with white matter disease are already on some type of blood thinner (even aspirin) and there are contraindications to not combine piracetam with blood thinners due to possible bleeding problems. I would recommend that anyone considering taking any kind of supplement to discuss it with their physician.

I have a neurologist appointment next Tuesday and will pass on any words of wisdom from him.

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Profile picture for keithl56 @keithl56

Piracetam is not FDA approved as a drug or supplement. Most people with white matter disease are already on some type of blood thinner (even aspirin) and there are contraindications to not combine piracetam with blood thinners due to possible bleeding problems. I would recommend that anyone considering taking any kind of supplement to discuss it with their physician.

I have a neurologist appointment next Tuesday and will pass on any words of wisdom from him.

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I have taken Piractam for over two years and have found it helps me and thought I would share my experience. Piracetam has been a prescription drug used to treat Dementia in Europe ,Russia and Japan. Piacetam is not a blood thinner but you should use caution if taking anticoagulants but is fine to take with a daily dose of aspirin.
I would recommend before criticizing someone else comments that you take the time to research what you are talking about.

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Profile picture for narus @narus

I have taken Piractam for over two years and have found it helps me and thought I would share my experience. Piracetam has been a prescription drug used to treat Dementia in Europe ,Russia and Japan. Piacetam is not a blood thinner but you should use caution if taking anticoagulants but is fine to take with a daily dose of aspirin.
I would recommend before criticizing someone else comments that you take the time to research what you are talking about.

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Wow, talk about thin skinned! If you consider that to be criticizing!

Research this!

Major Interaction
Do not take this combination

Medications that slow blood clotting (Anticoagulant / Antiplatelet drugs) interacts with PIRACETAM
Piracetam might slow blood clotting. Taking piracetam along with medications that also slow clotting might increase the chances of bruising and bleeding.
Some medications that slow blood clotting include aspirin, clopidogrel (Plavix), diclofenac (Voltaren, Cataflam, others), ibuprofen (Advil, Motrin, others), naproxen (Anaprox, Naprosyn, others), dalteparin (Fragmin), enoxaparin (Lovenox), heparin, warfarin (Coumadin), and others.

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Piracetam, a nootropic drug, has various uses, including improving cognitive function. However, it’s essential to be aware of potential interactions. One significant interaction involves medications that slow blood clotting. Here’s what you need to know:

Interaction: Piracetam might slow blood clotting. When taken alongside medications that also slow clotting, there’s an increased risk of bruising and bleeding.
Examples of Medications That Slow Blood Clotting:
Aspirin
Clopidogrel (Plavix)
Diclofenac (Voltaren, Cataflam, others)
Ibuprofen (Advil, Motrin, others)
Naproxen (Anaprox, Naprosyn, others)
Dalteparin (Fragmin)
Enoxaparin (Lovenox)
Heparin
Warfarin (Coumadin) 1
If you’re taking any of these medications, consult your healthcare provider before using piracetam. They can guide you on the best course of action to avoid potential complications. 🩸💊

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is white matter similar to small vessel disease of the brain?I hope your recovering well.

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Profile picture for red79 @red79

is white matter similar to small vessel disease of the brain?I hope your recovering well.

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white matter disease is the same as chronic small vessel disease.

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Profile picture for keithl56 @keithl56

white matter disease is the same as chronic small vessel disease.

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Thanks for your reply.

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Profile picture for red79 @red79

is white matter similar to small vessel disease of the brain?I hope your recovering well.

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It basically is brain damage. Mine was from a bad concussion, but from what I hear it will progress and grow over time and people will tell you it is dementia, there is nothing you can do about it. Donating your brain afterwards to the Concussion Foundation may help them some day figure it out. Many of the football players are doing this,

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Profile picture for willow11 @willow11

It basically is brain damage. Mine was from a bad concussion, but from what I hear it will progress and grow over time and people will tell you it is dementia, there is nothing you can do about it. Donating your brain afterwards to the Concussion Foundation may help them some day figure it out. Many of the football players are doing this,

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do you know what the life expectancy of having small vessel disease is please.x

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Profile picture for red79 @red79

do you know what the life expectancy of having small vessel disease is please.x

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I thought small vessel disease was related to the heart

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