Which Seizure Trigger Is Your Hardest Battle?

Mine. Telling people till I am blue in the face aka husband parents brother extreme unnecessary emotional distress. So I am blamed told I am weak etc for having this boundary. Seizure free over 12 years. Relationship ending or altering in all thesd relationships.

For me, now it’s music and those advertisement on radio which can give me those aura.

Cheers,
Louis

@royanthony
Hi, I know decaf coffee has alittle caffeine in it but it doesn’t bother me. I’ve been fine but I drink 1/2 to a whole bottle of water to drink afterwards as well. Name brands are so expensive. I like the fact of having generic brands of meds. A lady who had seizures since the age of 2 weeks old eventually stopped over time then started back up as a teenager. This medicine helps her as well as myself. I still get feeling of seizure but don’t go into one. My doctor said I have a long road into recovery due to surgery. At least now I can sing. YAY! Medicare is awful for the cost that people have to deal with. I’m trying to get a job at the Air Force since they have better insurance instead of relying on Medicare but in the meantime I’m looking into the hospital as well. I don’t know how that’ll work since I’m still needing to rest. Private insurance is what I have right now. Paying $1000 a month and on top of it medical expenses due to surgery/ hospital stay a couple times. Thankfully I’m in a payment plan but $600 a month with that. Ugh…,😒

@tkmoyer3 Update: I've tried to work with 3 coffee companies. They've all given the same answer and that is they'll take it up with their marketing group and thanked me. Never heard from them again. I typically am a person that doesn't quit, but at 72 years old I don't need the anxiety (and potential seizures). Now, at 72 years old and facing the loss of private insurance, I've learned that getting Brand name meds (Lamictal & Keppra) from this date to the end of this year via Medicare would cost me $22,000. That's no exaggeration. So, that's my immediate goal.... get the Brand names for less. I know for a fact that out of country, I can get 90 days of Keppra for less than $500. But, it's against the law for a citizen of the US to buy meds overseas. This has got to change. I hope your seizures are under control or at least feeling better, TK.

Hi guys I thought I should share what triggers my seizures but first off I have generalized epilepsy and I mostly have myoclonic jerks but every now and then tonics clonic. My main big one is sleep and it doesn’t help that I have insomnia and I know that Chris had directed me to this chat and also asked me if I had found anything that helped me fall back asleep and no not really i listen to what’s considered brown noise because white noise hurts my head and gives me pounding headaches, my second trigger is stress and my anxiety if I wasn’t on my medication currently I’m pretty sure I would have to be hospitalized currently with how severely stressed out I am with my work and personal life but I have been seeking help. I read from someone’s post on here I can’t remember her name but it wasn’t Chris but, she said she can still feel the seizure even then ones not happening or at least that’s how I took it do any of you guys feel the same way because with my jerks and when my meds are working sometimes I can still feel when some would happen if I wasn’t on meds even though they aren’t happening if that makes sense and I can’t explain the feeling/ sensation behind them it’s something that I would have to explain in the moment. I did just get an mri done and nothing came back for epilepsy the doctor said” No definite epileptogenic abnormality.”besides me having a arachnoid cyst it’s benign in the back of my brain they said it’s small but I normally have a decent amount of pressure in that part of my head and they where I hit my head when I head my first tonic clonic so yeah I would love to hear what you guys think I’m sorry if I rambled a lot but I’ve have a lot thrown at me about my health and I don’t know how to feel about it or what to do about it

Greetings from Singapore!. It's just being in a job which one cannot get out of, and overthinking things putting me in stress when I should just chill a bit more. Being in a family with members who keep asking "are you ok?" when I, say, dropped something like my iPad pen. It's just that frustration. I hadn't been ok for the past 10 years. So, what do you mean whether I am OK? Obviously I am not ok; no need to ask at all. If I am about to die, I will let you know. By the way, does anyone know whether one with epilepsy lives shorter?

@tkmoyer3
So glad to hear you were feeling better this morning. I hope that carried through the rest of your day!
Since the nurse's recommendation doesn't seem to align with what your doctor advised, it would be worth reaching out to him directly to clarify.
Chris

@royanthony
Hi Roy,
Thank you, I had a blessed Easter, and I hope you and your family did as well!
To answer your questions: the information I shared comes from research I gathered online, with the NCA (National Coffee Association) as the primary source for U.S. market data.
From my time in the industry — mainly in Europe and Brazil, though that was quite a while ago — Starbucks was already a significant player in the American market. From my own experience, they offer very good quality products and have some decaf options. As for Community Coffee, I'm afraid I'm not familiar with them.
Have you already tried Starbucks decaf option?
Chris

@santosha What fabulous info. Wherefrom do the estimated usages originate? Is it the American Decaf Market?

@royanthony
Thank you! I agree!☺️