Where do I go next?

Posted by monicaheling @monicaheling, Nov 4, 2025

I recently sent in application for Minnesota Mayo Clinic. Today I received a letter saying I was denied. I’m so completely exhausted and sad. I thought maybe Mayo Clinic could help me but now where do I go next?

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

What has helped me is low-dose naltrexone, which has to be gotten from a compounding pharmacy. Also, when in flare, I take 5mg cyclobenzaprine which helps with sleep and pain.

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Profile picture for slatesslates1 @slatesslates1

I have recently been diagnosed with Chronic Fatigue syndrome. But I suspect it was just a way to dump a diagnosis on me since no one can figure it out. I've seen specialists that have not found a reason for my issues and this new doctor ran my "usual" labs, did include Lyme disease. Found nothing and didn't go farther than to say it must be CF. Offered me a medication that "might" give me more energy! MIGHT!!! I am desperate to find someone that will really! Look into things. I've read on several sites about CF and don't fit all the criteria for CF and this has been going on for years. ANYONE HAVE CF and what specialists would you see? I've been to cardiology, rheumatology, pulmonary and a PCP or two? Why doesn't Mayo have a specific CF group? Why is is lumped in with Fibromyalgia?

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@slatesslates1

There is now a Bld test for CF.

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Wow! Thank you, I will ask about that!👍

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Profile picture for irr4et @irr4et

@slatesslates1

There is now a Bld test for CF.

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@irr4et. Found it! Breakthrough blood test finally confirms Chronic Fatigue Syndrome
Date:
November 3, 2025
Source:
University of East Anglia
Summary:
A team of scientists has developed a highly accurate blood test for Chronic Fatigue Syndrome. The test reads tiny DNA patterns that reveal the biological signature of the illness. For millions who’ve faced doubt and misdiagnosis, it’s a breakthrough that finally validates their experience — and may help diagnose long Covid too.

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Profile picture for irr4et @irr4et

@slatesslates1

There is now a Bld test for CF.

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@irr4et I looked into it but can’t find where I can have it drawn and run. Seems it is new and not widely available. Can’t find a specific name for it either. My doctor has no idea. https://www.sciencedaily.com/releases/2025/11/251102205021.htm

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