Saddle paresthesia: Where did my normal feeling body go?
Last December 2020 I suddenly came down with saddle parathesia along with my usual bout of myofascial pain syndrome. This progressed to numbness ,stinging ,tingling in legs and feet. My upper body started with tingling and pain. Now I have fasciculations and many cramps in feet and legs. Also a fizzing in my head and body which sometimes makes me feel cold. I don’t recognize my own body.It is like everything is miss firing or all the wires are frayed. I keep my strength and reflexes are good. I have had 3 MRI with and without contrast. Many blood tests and a 24 hour urin study. Finally a skin punch biopsy. All normal Only my IGM is 35 very low but this has been my entire life.My neurologist ( muscular) has no idea what this is only what it isn’t. My primary care doctor says chronic pain syndrome but my symptoms are all neurological?? I even get fasciculations in my stomach. I am currently on 900 mg of gabapentin and 30 mg of Nortripline. This helps with some pain but none of the neuro symptoms. I am scared because this is always progressing and I get no answers. Thank you