Whats my future?

In reply to @memyselfi and @ray666 ~ I have no idea, either, what causes fluctuations in PN symptoms, but this I know without a doubt: attitude is everything. Ray, I so appreciate your tenacity and unwillingness to let this diagnosis (with all its intrusions) dictate your overall outlook. And, @memyselfi, in your willingness to be open to receiving helpful considerations, you exemplify hope, which a wonderful attitude. Blessings to all who share in our search,
Barb

Good morning, Barb! (@bjk3) At least it's still morning here in Colorado. 🙂 I agree with what you say: attitude is everything – although (and I'm grinning as I tell you this) only moments ago, I was confessing to my partner my moments of quiet despair when I find myself on the edge of wanting to say aloud, "Why me?" With the exception of my partner, I keep awareness of these moments to myself. I don't regard this as "stuffing" of true, though fleeting, feelings as a practice that's detrimental to mental health but as a necessary technique for keeping my more general positive-spirited nature popping on all cylinders. // I hope all is well in your world, Barb. Cheers! – Ray (@ray666)

Good afternoon, Ray! If I had someone here to pop off to occasionally, let me assure you - I would. And in actuality, I do (God) and yes, we work though these times together, He and I.
I am so grateful to be living in my own home, managing it and my affairs (with His help), sometimes it makes me feel positively giddy. Several unhappy weeks in a rehab facility (2021) have given way to incalculable gratitude for the freedoms I still have.
All IS well in these parts, Ray ~~ thank you for your good wishes!
Cheers to you as well!
Barb

Hi. Can't pinpoint an exact time. I had five acres of property some years ago and did so much work, cutting trees, making firewood, huge organic garden, etc.., I just put a ton of pressure on my back that I didn't much consider at the time. I think that was probably it, an accumulation of stuff. I'd get working like a monster and just didn't think about anything longer term.

I really don't know.

You remind me of one of my previous pain doc's father. He was a hard worker like you and developed severe back pain. It took three rounds of epidurals before he got back to normal and was out working again. Wish I could say that epidurals worked for me. How about you? Gotten any? Hope you find something to help. Pain is a real bummer.

That’s very pragmatic, but on the other side, I turned 65 had a very successful career I was looking forward to a very successful and relaxing retirement will not sound resentful. This is not what the fuck I expected. Yes, I am learning to live with it, but I still can’t put 100% positive twist on it. I did only fooling myself because I am aware of my future, and not the peace and harmony I expected I guess today’s one of those bad days for me

Good morning, @andyjustin. On reflection, I can see how I may have had a bit of a leg up when it came to retirement, transitioning from one time of life to the next. Mine was never a career that offered a formal retirement; instead, in my line of work, practitioners most often continued working for as long as they felt up to it (until, as we'd sometimes would tease one another, we fell over on the commissary line 🙂 ). I'm fortunate in that–even with the considerable adjustments I've had to make for my PN–I'm able to continue working, even at 79 and in several unavoidably modified ways. (For what it's worth, I, too, have my bad days, They occurred more frequently in the months following my diagnosis; luckily, they're fewer now–fewer, but I still have them.) –Ray (@ray666)

you have to keep your stress at a minimum. alternative medicine offers suggestions for PTSD people. I handle the heat with an ice vest. Amazon sells them. All of this is manageable. Just remember there's not much relief offered by doctors. It's all what works for you. Try different things, use what works for you, but take one day at a time. I use topical pain creams , but I add to them. (i.e. bioPerrine (black pepper) enhances you body" reaction to the cream., Try to stop inflamation as much as possible, it only increases the pain level. look into alternative medicine. I use an herbilist to see what works in topical creams. I found that vicks vapor rub works for some problems, simple old wives methods. Try them, if they work, wonderful, use them. Good luck.

PN? Chronic burning skin, rash arms/legs/upper back, sores < — Purpigo Nodularis (rare) —OR—- pain, trauma, fall down in the weakness from you side or back, skin problems < pathophyiology

That’s all I’m asking the use of “PN”? Cause my reading is broken to less understanding from my TBI accident, 12 years ago.

So, during I feel down, 2 years ago, and hit my rear-ends and moved pain - deep pain, little walking, bo more cutting my grass, no bending - that’s painful, loosing with little or no feeling on my right legs, and falling down - 12+ per day - usually my rear-ends…

So, for me, the PN means my back/legs has a problem UNTIL my doctor seen the photos before my low back leg on my right side. A mth ago, I had a surgery that took me for after 5 days from a hospital then went home.

My surgery killed away from my paid. No use of pain meds, starting to stretch a little bit than before, BUT the unbalanced is still here. Falling down is still here, but thankfully, I walk with the 4-wheeler or the two one. I practice and exercise and work physically, I do.

Hi friends, I’m usually an upbeat problem-solver, but coming today for a safe place to complain about this darn PN.
This week has been a hard one. I’m at a weeklong family reunion in the mountains of North Carolina and I can’t do much of anything. My balance isn’t good enough for the hikes, visits to the outlooks and the waterfalls. My PN leg cramps up terribly trying to swim, so can’t go in the pool I don’t dare trying tubing, and rafting would be unsafe. I can’t drive- the PN is in my right leg, now over in my left foot, can’t do the extended braking needed for driving in the hills, valleys, and hollows. It’s such a difference from what I used to be able to do and wish I could do now. But, as the saying goes, “If wishes were horses….”
Thanks for listening.