What were your symptoms of Bladder cancer? Scared I have it.

Posted by nihssa12 @nihssa12, Sep 30, 2022

Two years ago I started to have pelvic pain. Many ultrasounds later I dragged on by my gyneo who eventually changed her mind and sent me to urology. I’ve been peeing blood clots and have micro hematuria. Also been peeing mucus, white and black sedement. I still have pelvic pain.

Going to finally get a urinary and kidney ultrasound and a cystoscope come November.

I honestly am terrified and feel like I already have cancer and that it’s too late for me. That I’m destined to die.

Any stories or reassuring testimonies?

Interested in more discussions like this? Go to the Bladder Cancer Support Group.

pegpal | @pegpal | 4 days ago

In reply to @tgsmith "Transurethral resection of bladder tumor (TURBT" + (show)

Thank you so much! I can see why we all needed it shortened!

tgsmith | @tgsmith | 4 days ago

In reply to @pegpal "What do the letters stand for, please?" + (show)

Transurethral resection of bladder tumor (TURBT

pegpal | @pegpal | 4 days ago

In reply to @tgsmith "The surgery when they remove the tumor from inside the bladder" + (show)

What do the letters stand for, please?

tgsmith | @tgsmith | Jul 14 6:00am

In reply to @pegpal "What is TURBT?" + (show)

The surgery when they remove the tumor from inside the bladder

pegpal | @pegpal | Jul 13 11:51am

What is TURBT?

tgsmith | @tgsmith | Jul 11 9:54am

In reply to @tgsmith "I went a year and 1/2 I had bleed twice and was having pelvic pain, went..." + (show)

I went back for my cystoscope today 11th praise God no cancer go back in three months

lisamae | @lisamae | Jul 7 10:11am

In reply to @lisamae "Thanks doe drawing this to my attention I will ask for this to be done" + (show)

for

lisamae | @lisamae | Jul 7 10:10am

Thanks doe drawing this to my attention I will ask for this to
be done

wildyard | @wildyard | Jul 6 7:23pm

In reply to @lisamae "I have a moderate of blood in my urine they r going to do a culture..." + (show)

I would ask them to also do cytology on that urine specimen, that was the first test I had that was positive for cancer cells. I lost almost 3 weeks being treated twice for urine infections and having cultures, before they finally checked my urine for cancer cells.

wildyard | @wildyard | Jul 6 7:20pm

My only symptom was gross blood in my urine; I mean bright to dark red blood. I was treated for bladder infections twice with antibiotics and forcing fluids. After the second failure of that treatment, I had a cystoscopy which was clear. Then I had a urine work up and that came back positive for cancer cells in my urine.. I think that was cytology.. not sure.
Since the bladder was clear, they did a scan of my abdomen which was positive for a tumor in my left kidney pelvis. Biopsy came back as Urothelioma in the pelvis lining.
On June 18th, 2025, I had my kidney and ureter removed. We thought that was going to be it, but the biopsy on my kidney after it's removal caused them to change my tumor from T0 to T3, from low grade to high grade and from noninvasive to invasive. Only 7% of kidney cancers are urothelioma, and that's what mine is.
I was stunned, all the doctors were so positive it would be a cure after removing the kidney. Suddenly, I am talking to an oncologist about treatment options. They are recommending chemo, but I also can opt to watch and wait. immunotherapy is not recommended for me due to some other health issues I have.