What they never told me about dexascans
I had my first scan 4 years ago at the same facility where I was starting treatment for prostate cancer. My numbers were -2.4 and -2.5. Two years later a rheumatologist I was seeing for another issue ordered another scan. Not knowing any different I had it done at the facility closest to me. Although my T-scores were down slightly my BMD numbers were improved. When I asked the doctor about the seeming contradiction he shrugged and said you really can't compare tests done on different machines. Nice time to tell me.
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@donnabutcher I think our lifestyle over the last 60 odd years is going to result in a lot more men having osteoporosis. It's my understanding that soda is bad for the bones. Also PPI's like Prilosec. That being said it's doubtful men will ever be screened on a regular basis unless they're already being treated for something else.
@maine Precisely this. What if you move? Change docs? It’s maddening.
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2 Reactions@jozer
I am on Medicare and my plan pays for a yearly DEXA scan; I wonder why yours does not?
Pam
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1 Reaction@pam52 I don't know; will be asking about that at my appointment in July (where I am sure we will discuss scheduling my second Reclast infusion). I do need to contact Medicare; I know they only do every 2 years unless (I believe) you are being actively treated for osteo (which I am). Personally, for my mental health, I need to know what my BMD numbers are. Spent the entire year worrying and wondering about how the Reclast infusion is helping/not; (CTX numbers indicate it is working, according to the doc, but what are my T-scores?). If DEXA gold standard and we are being treated with powerful medication perhaps for years/forever I really need to know.
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3 Reactions@jozer Bones change slowly and DEXA results are not precise. A difference in DEXA from just one year to the next is likely to be less than the "least significant change" error margin of the machine.
3% to 6% of BMD change you see between DEXA scan can just be the precision variation. You can see this in slide #43. Note that this is % of the density measurement, not of a T-score.
https://cme.nof.org/sites/default/files/DXA%20Basics-%20Morgan_Jankowski.pdf
I would still rather have yearly DEXA measurements because even just averaged together then I would get a better idea what my situation really is. But seeing a 2% decrease, or 2% increase in your BMD between 12 months is apparently not something that we can take action on because it may be just DEXA error.
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1 Reaction@jozer I'm on Fosamax, which I assume is considered active treatment, and none of my doctors have indicated that Medicare covers a Dexa more frequently than every two years.
Not sure how you can get one every year - other than private pay - had one in 4/2024, results sent me to an endo, did Fosamax for about a year; had another Dexa in 4/2025, Reclast infusion 7/2025 (took a couple months to work up the courage to get the infusion!), 4/2026 appointment and found out Dexa is every 2 years; so I will not know T scores until 2027. I may have been borderline between private employee health insurance (through hubby) and Medicare start. I would be very willing to pay for something (DEXA, REMS, whatever for my peace of mind) and my doc did give me a referral (necessary in my area) but my Dexa center can't give me a straight answer...$400 to $1200, depending on discounts, etc. I would like to go somewhere else but again, I would need a referral for medical DEXA. Very disheartening (especially after doing Reclast, which I was told was a great, powerful, improve your bone health dramatically drug) after anxiously waiting a year for what I thought would be my yearly DEXA. Oh well; doc says it isn't really necessary because the treatment protocol would not change, and very doubtful my T scores would improve so much that I would not need another infusion. Unfortunately, I was told that it was possible I would only need one infusion (possible, not probable) and I naively thought a DEXA would be required to show that. So another year of waiting and worrying. You'd think there would be a better way!
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2 ReactionsThere probably is a better way just like there probably is a cure for cancer.
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2 ReactionsI have also heard this!
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1 Reaction@jozer the difference could be original Medicare and Medicare Advantage plans.
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4 Reactions