What is the recovery like following septal myectomy?

Posted by quinn @quinn, Mar 17, 2016

What is the recovery like following septal myectomy?

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Profile picture for vialox @vialox

<p>Considering different scenarios and wondering if somebody did it alone without family members or friends?<br /> What would be the hardest in such situation? Thanks!</p>

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Yes, @vialox - not sure how far you would be travelling, but you would not be able to drive for a month or so after surgery so you will need someone to help you get from one place to the next. I have heard of some people traveling by themselves to get to Mayo, but it is not easy. I also chose to stay in Rochester for a few days after my surgery and needed my husband to help me get to the hotel after surgery, go to the store for me, and help me through the airport (though I did get a wheelchair from the airline). Once you get home, you would be ok living alone, but would probably need someone to drive to run errands for you - drugstore, grocery, etc. at least until you are less sore. These days they do have Uber and such, which could help drive you places, but you should probably work all that out in advance. Maybe you have a friend who is willing to help just for a day or two. I actually flew to Rochester alone and underwent tests by myself, and my husband came just in time for surgery. You would only really need someone when you were being discharged.

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Profile picture for vialox @vialox

<p>Considering different scenarios and wondering if somebody did it alone without family members or friends?<br /> What would be the hardest in such situation? Thanks!</p>

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@wintergirl8, - how sever were your symptoms before SM? How long did it take after Dx to SM? I was diagnosed more than year ago, and felt deterioration of my conditions since then.

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Profile picture for vialox @vialox

<p>Considering different scenarios and wondering if somebody did it alone without family members or friends?<br /> What would be the hardest in such situation? Thanks!</p>

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Yes, because they will make sure you can use the bathroom and walk before you leave the hospital. Granted you will walk slowly at first and have to take breaks but it will get better each day.

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Profile picture for vialox @vialox

<p>Considering different scenarios and wondering if somebody did it alone without family members or friends?<br /> What would be the hardest in such situation? Thanks!</p>

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Thank you all. So a bottom line is transportation....

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Hi. I am one month and a few days out from having a "unique" myectomy done in Minnesota with Dr. Schaff. Although I do not take the place of your doctors directives ect...I think if you have to do it yourself you can, just make sure to take it easy. Also, I would not drive until you get clearance from your doctor. The reason for this is because you still will have residual anesthesia in your system, possible medications, and a lack of complete mobility to some degree. I hope you find the answers you are seeking. It is not an easy surgery but well worth it.

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Profile picture for vialox @vialox

<p>Considering different scenarios and wondering if somebody did it alone without family members or friends?<br /> What would be the hardest in such situation? Thanks!</p>

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I think that as long as you had someone to help you travel it is doable by yourself. I didn't require much help after surgery. You can read my experiences and see how it was for me here:

http://Www.Cynthiassummeradventure.blogspot.com

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Profile picture for vialox @vialox

<p>Considering different scenarios and wondering if somebody did it alone without family members or friends?<br /> What would be the hardest in such situation? Thanks!</p>

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Hi! I had my myectomy this past December and today is my 4 month anniversary! The recovery isn't as bad as I thought it would be. But, don't get me wrong and think it's easy either. I became anemic from blood loss in surgery so I was probably weaker than most (I was warned that I would). I had pain, but it was well managed by taking Tylenol throughout the day. My biggest problem was not doing anything around the house and resting. My best advice is to be as healthy as you can going into surgery. Best of luck to you.

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Profile picture for vialox @vialox

<p>Considering different scenarios and wondering if somebody did it alone without family members or friends?<br /> What would be the hardest in such situation? Thanks!</p>

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Hello @vialox, you will see that I moved your conversation to the thread "What is the recovery like for septal myectomy". I believe this will be a good place to post your question.

Asking members @cynaburst @lynnkay1956 @ronaldpetrovich @1949 @mbcube @vivian88 @FrancineFafard @woodywood @lepadelford @lisa7 @lucindag to help answer your question.

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<p>Considering different scenarios and wondering if somebody did it alone without family members or friends?<br /> What would be the hardest in such situation? Thanks!</p>

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Profile picture for eelnaloblob18 @eelnaloblob18

Thank you the info I have received. I would like to know how long after a septal or apical myectomy I would be able to return home. I've read that I would be in the hospital almost a week, but since I live in Florida, I need to know when I can travel and whether to drive 3 hours or fly home to Florida. I have a son in Michigan about 3 hours away with whom I can stay, but I'd prefer flying back to Florida if possible.

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Thank you for the info. I'm glad that I probably won't have to stay there more than a week and can fly home.

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