What is pain management?

Posted by martoof @martoof, Oct 18, 2021

Is pain management (PM) merely *not complaining*? Making pain subside or go away? Distracting oneself from the pain? I ask because I recently went to a pain management clinic, where after a lengthy intake/question process, I was prescribed Vicodin! Any qualified, serious input would be deeply appreciated! Thank you!

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@user_ch98d0b5c

I also had enhanced pain after cryoablation of the pudendal nerve. It made my pudendal neuralgia worse. So no more pudendal injection. Like you can find no to help with dealing with the pain. Am looking at SCS but cannot find any body that has had this treatment for pudendal neuralgia.

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If you were on instant messenger I can refer you to the group. Go to Margaret Fish on FB, and message me there…I am from Temecula, CA.. I will get you into the great group. They have been through it all, and mention
Stimulators a lot. I will do the best I can for you. Yes!!!! No more nerve injections for me!!!!! Made me sooooooo bad. As my urogyno nurse …the good one …said kenelog can last 6 months…this junk is traveling thru the whole nerve!!! It's so bad…that urogynecologist will not call, zip!!! So I am bypassing him and going to his older wiser colleague at Loma Linda. This is not fun stuff!!!!!

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@olivedog

I was just put into pain management. I have a diagnosed issue that is very unheard of, Pudendal Nerve Entrapment. This got worse when the nerve was injected 3 months ago with a steroid. Since then it has gotten progressively worse, now all over where the pudendal nerve is. This is completely debilitating & the only people who even get it are seasoned urogynecologists. Since being so unknown the pain management folk do not get this at all. I have never ever needed pain pills in my life until those nerve injections, and definitely need a pain management that understands this issue. So far it has taken me 3. Right now, I'm in horrendous pain, rectal, perinium, labia, buttocks, thighs, bladder, ect. This nerve pain flares, and is debilitating. I finally am seeing a very good urogynecologist at LomaLinda tomorrow!!! We will most likely do botox to the pelvic floor muscles involved. Until I get the issue resolved I need understanding kind compassionate
Pain management for this, as soon as pain from the nerve is lighter, decompressed, ablated, & exact location found ..I will still be in pain during urinating and defacating. This started from being over dilated in a simple hemorrhoid banding
5vyrs. Ago…the damage to my rectum took 10 colorectal surgeons to find. Not only nerve damage but 3rd degree rectal descent. My pain never needed pills, until after major surgery this year, robotic assisted ventral biological mesh rectopexy, cystocele and rectocele repair. I wasxtold my rectum could be fixed, but the pain after defamation would not.
I when healed was doing great, seeing a pelvic floor therapist who got too aggressive hitting the pudendal nerve. This then was treated with pudendal nerve block…now hopefully the urogynecologist will start to help the nerve. This is the urogynecologist who first found the issues from scar tissue in the internal spinchter complex. So during this disorder which many men & women have…there will be pain, and pain management for this is difficult…as they are there to remove the medication to help. Been very difficult…I needcall to communicate and they don't. I belong to a forum on Pudendal Nueralgia…so misunderstood ER doctors are just starting to get it, but can do nothing for it. Some how I need understanding pain management, I will discuss this with my doctor tomorrow as all who have this are in debilitating pain, and grasping for help. He knows, people come from very far. This is also called Cyclist Syndrome. Pain management needs to understand and communicate with the doctor..as soon as this gets under control…I want off all pain meds..as I have never been any kind of pain pill person, but they sure help right now. My plan is to get fixed, and taper off asap. Wishing all who have this luck…not any cake walk….sorry if too long…but maybe I helped or educated a few!!!
.

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Well, Olivedog, I had this condition for 14-1/2 years. I sat on a donut everywhere I had to sit. The only this that finally worked was an an anti-seizure medicine (Topamax) for an unrelated issue. And it worked fast – within 2 weeks. Ask your doctor. Good luck!

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@olivedog

I was just put into pain management. I have a diagnosed issue that is very unheard of, Pudendal Nerve Entrapment. This got worse when the nerve was injected 3 months ago with a steroid. Since then it has gotten progressively worse, now all over where the pudendal nerve is. This is completely debilitating & the only people who even get it are seasoned urogynecologists. Since being so unknown the pain management folk do not get this at all. I have never ever needed pain pills in my life until those nerve injections, and definitely need a pain management that understands this issue. So far it has taken me 3. Right now, I'm in horrendous pain, rectal, perinium, labia, buttocks, thighs, bladder, ect. This nerve pain flares, and is debilitating. I finally am seeing a very good urogynecologist at LomaLinda tomorrow!!! We will most likely do botox to the pelvic floor muscles involved. Until I get the issue resolved I need understanding kind compassionate
Pain management for this, as soon as pain from the nerve is lighter, decompressed, ablated, & exact location found ..I will still be in pain during urinating and defacating. This started from being over dilated in a simple hemorrhoid banding
5vyrs. Ago…the damage to my rectum took 10 colorectal surgeons to find. Not only nerve damage but 3rd degree rectal descent. My pain never needed pills, until after major surgery this year, robotic assisted ventral biological mesh rectopexy, cystocele and rectocele repair. I wasxtold my rectum could be fixed, but the pain after defamation would not.
I when healed was doing great, seeing a pelvic floor therapist who got too aggressive hitting the pudendal nerve. This then was treated with pudendal nerve block…now hopefully the urogynecologist will start to help the nerve. This is the urogynecologist who first found the issues from scar tissue in the internal spinchter complex. So during this disorder which many men & women have…there will be pain, and pain management for this is difficult…as they are there to remove the medication to help. Been very difficult…I needcall to communicate and they don't. I belong to a forum on Pudendal Nueralgia…so misunderstood ER doctors are just starting to get it, but can do nothing for it. Some how I need understanding pain management, I will discuss this with my doctor tomorrow as all who have this are in debilitating pain, and grasping for help. He knows, people come from very far. This is also called Cyclist Syndrome. Pain management needs to understand and communicate with the doctor..as soon as this gets under control…I want off all pain meds..as I have never been any kind of pain pill person, but they sure help right now. My plan is to get fixed, and taper off asap. Wishing all who have this luck…not any cake walk….sorry if too long…but maybe I helped or educated a few!!!
.

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PND is not that rare, just hard to diagnose.

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Normally it is as, best I can describe it, set of usually wholistic form of treatment with the intent of not using narcotics to treat pain. Except for physiatrist prescribing various dosage of Cymbalta and OTC substitute for Gabapentin, I have had very little success with what may be called mind therapy and physical therapy aspects of pain management. However, some people have had some success by participating in the entire process.

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@kenc

Normally it is as, best I can describe it, set of usually wholistic form of treatment with the intent of not using narcotics to treat pain. Except for physiatrist prescribing various dosage of Cymbalta and OTC substitute for Gabapentin, I have had very little success with what may be called mind therapy and physical therapy aspects of pain management. However, some people have had some success by participating in the entire process.

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I can not use any Gabapentin or ssri drugs, they affect my brain very strange. Until anyone has had this, they would never understand the pain. I have never needed pain pills in my life. They do not give me any sensation of being high. I would never abuse them. They work for what they are intended to be. As soon as we get this figured out…I want off of them asap. Will most likely have to taper them. I again don't know, as this is my first time ever taking them, for a chronic pain condition.

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@kenc

PND is not that rare, just hard to diagnose.

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Thank God im going to a Doc at Loma Linda 2 day…41 years of practice…they are prepared to see me. He knows how bad I am now. This started 5 years ago from being rectally over dilated in a hemorrhoid banding. This Doc discovered the scar tissue to prove it. 5 years….ugh!!!!

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@olivedog

I can not use any Gabapentin or ssri drugs, they affect my brain very strange. Until anyone has had this, they would never understand the pain. I have never needed pain pills in my life. They do not give me any sensation of being high. I would never abuse them. They work for what they are intended to be. As soon as we get this figured out…I want off of them asap. Will most likely have to taper them. I again don't know, as this is my first time ever taking them, for a chronic pain condition.

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Please make sure you follow your doctor's advice and make a conscious effort to not increase the medication on your own. I am taking hydrocodone, which provides some relief, but I work closely w/ the Doctor on taking the medication and regardless of the pain, etc. I only take the amount and frequency he prescribes.

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@olivedog

I can not use any Gabapentin or ssri drugs, they affect my brain very strange. Until anyone has had this, they would never understand the pain. I have never needed pain pills in my life. They do not give me any sensation of being high. I would never abuse them. They work for what they are intended to be. As soon as we get this figured out…I want off of them asap. Will most likely have to taper them. I again don't know, as this is my first time ever taking them, for a chronic pain condition.

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@olivedog
Are you able to describe how the Gabapentin makes you fee
Jake

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@jakedduck1

@olivedog
Are you able to describe how the Gabapentin makes you fee
Jake

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Very strange, disoriented, affects my brain and made me feel confused….just very almost paranoid.
This was 100 mg, one day, tried 1 more day, and worse. No thanks!!!! Too many side affects for me.
I'm bad enough…do not need this too!!!

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@olivedog
Hello again,
If you try another medication you might have fewer or less severe side effects if you take a controlled release formulation if one is available. It also is helpful for compliance. I have Epilepsy and is very helpful for me since my memory is compromised from seizures and and I will lose my drivers license if I’m non compliant. Constant or extended release medication keeps your blood plasma level within a more steady therapeutic range. Some people are very sensitive to this. I know a number of people who are affected by this problem and when they switched their seizures substantially decreased including mine. My Neurologist only dispenses immediate release medication if there’s not an extended release formulation or the patient insists, usually because of they are more expensive.
Take care,
Jake

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@olivedog

If you were on instant messenger I can refer you to the group. Go to Margaret Fish on FB, and message me there…I am from Temecula, CA.. I will get you into the great group. They have been through it all, and mention
Stimulators a lot. I will do the best I can for you. Yes!!!! No more nerve injections for me!!!!! Made me sooooooo bad. As my urogyno nurse …the good one …said kenelog can last 6 months…this junk is traveling thru the whole nerve!!! It's so bad…that urogynecologist will not call, zip!!! So I am bypassing him and going to his older wiser colleague at Loma Linda. This is not fun stuff!!!!!

Jump to this post

Yes, this is a horrible condition and not many doctors treat it. Besides the anti-seizure medicine I mentioned that worked, I used a physical therapist who massaged the scar tissue. Don't give up searching for a doctor who deals in this field. It will go away but it took 14-1/2 years for me.

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I am sitting here right now…awaiting the time I can have a pill. I neverchave gone under the 4 hour mark. I have never been on these things in my life, until I got injectedcinto the pudendal nerve! Was confined to my rectum…now underc4 months has progressed everywhere the nerve is. No one would believe this pain. I have no life. I belong to a good forum
called Pudendal Nueralgia Support, poor everyone on there. Doctors wanna run, cause they have really no way to fix this.
I can not take ssri drugs, and I am so mad I have to take norco….never in my life b4 this. Then u get sent to pain management and made to feel as you are a ciminal. It's not just the pain, it's all the horrid stuff you must go thru to have no pain. I would not wish this on anyone. Going to look into locating the probably tiny creepy culprit, and getting it released. These doctors are all out of state. The urogynecologist i did just see, dumped me to another doc, who takes no insurance, & wants $1000.00 just for a consult…so greedy hands take us too!!! This is only 4 months of this pain. I'm at a loss of what to do. I tried myofacial release on the glutes…but am in too much pain to get there. Just disgusting no one knows or even cares about trying to fix this…they say it's rare…that's a lie…most are from Previous surgeries and botched jobs like mine….was overdilated in a hemorrhoid banding procedure….just plain old sad. Men & women get it,
Young & old. SAD!!!!

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