I was just put into pain management. I have a diagnosed issue that is very unheard of, Pudendal Nerve Entrapment. This got worse when the nerve was injected 3 months ago with a steroid. Since then it has gotten progressively worse, now all over where the pudendal nerve is. This is completely debilitating & the only people who even get it are seasoned urogynecologists. Since being so unknown the pain management folk do not get this at all. I have never ever needed pain pills in my life until those nerve injections, and definitely need a pain management that understands this issue. So far it has taken me 3. Right now, I'm in horrendous pain, rectal, perinium, labia, buttocks, thighs, bladder, ect. This nerve pain flares, and is debilitating. I finally am seeing a very good urogynecologist at LomaLinda tomorrow!!! We will most likely do botox to the pelvic floor muscles involved. Until I get the issue resolved I need understanding kind compassionate
Pain management for this, as soon as pain from the nerve is lighter, decompressed, ablated, & exact location found ..I will still be in pain during urinating and defacating. This started from being over dilated in a simple hemorrhoid banding
5vyrs. Ago...the damage to my rectum took 10 colorectal surgeons to find. Not only nerve damage but 3rd degree rectal descent. My pain never needed pills, until after major surgery this year, robotic assisted ventral biological mesh rectopexy, cystocele and rectocele repair. I wasxtold my rectum could be fixed, but the pain after defamation would not.
I when healed was doing great, seeing a pelvic floor therapist who got too aggressive hitting the pudendal nerve. This then was treated with pudendal nerve block...now hopefully the urogynecologist will start to help the nerve. This is the urogynecologist who first found the issues from scar tissue in the internal spinchter complex. So during this disorder which many men & women have...there will be pain, and pain management for this is difficult...as they are there to remove the medication to help. Been very difficult...I needcall to communicate and they don't. I belong to a forum on Pudendal Nueralgia...so misunderstood ER doctors are just starting to get it, but can do nothing for it. Some how I need understanding pain management, I will discuss this with my doctor tomorrow as all who have this are in debilitating pain, and grasping for help. He knows, people come from very far. This is also called Cyclist Syndrome. Pain management needs to understand and communicate with the doctor..as soon as this gets under control...I want off all pain meds..as I have never been any kind of pain pill person, but they sure help right now. My plan is to get fixed, and taper off asap. Wishing all who have this luck...not any cake walk....sorry if too long...but maybe I helped or educated a few!!!
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