What is Grover's disease of the skin?

Posted by jbmakos @jbmakos, Mar 23, 2016

what is grovers skin disease?

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I understand as I had a bad case for over a year and I was sure my apartment was infested until dr did biopsy and confirmed grovers disease. The only thing that helped is the betamethasone cream and using sensitive skin body washes and creams. Also take Benadryl every night to help with itching and allow me a few hrs of sleep. Time does seem to improve the condition but still get eruptions. Very distressing. Many in this group have had success with cilantro smoothies. Can’t hurt to try.

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@chickensoup1

Hello,

I was recently diagnosed with Grover's Disease back in February of this year. The rash is on my trunk and my lower back. I have tried everything from corticosteroids to light therapy, and nothing seems to work. If anything the light therapy exacerbated GD. I don't have any itching, just was wondering if the rash itself goes away overtime? I have reached my wits end with this disease

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@chickensoup1, the rash acts differently in different people, going away permanently on it's own in some people, coming and going at intervals in others, and remaining a constant presence in others like myself. I realize you are very frustrated, but if your Grover's is producing no itching, consider that a perverse stroke of good luck because the Grover's itching can drive you absolutely CRAZY!
You will find great info on this forum if you follow this link and start reading the pages from this particular page in 2019 to the present day. It is very time-consuming, but worth the trouble. Best of luck!
https://connect.mayoclinic.org/discussion/grovers-disease-247ffc/?pg=11#comment-114878

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@locutus

@chickensoup1, the rash acts differently in different people, going away permanently on it's own in some people, coming and going at intervals in others, and remaining a constant presence in others like myself. I realize you are very frustrated, but if your Grover's is producing no itching, consider that a perverse stroke of good luck because the Grover's itching can drive you absolutely CRAZY!
You will find great info on this forum if you follow this link and start reading the pages from this particular page in 2019 to the present day. It is very time-consuming, but worth the trouble. Best of luck!
https://connect.mayoclinic.org/discussion/grovers-disease-247ffc/?pg=11#comment-114878

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Thank you! It appears to be spreading to my lower back and sides of my body. Does the disease usually “run it’s course”? I’m an active
Male in my 30s. I don’t know how this could’ve happened to me. What therapies have people generally done to subside the rash? Like I’ve said, I’ve tried every cortisone cream and even light therapy

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@chickensoup1

Thank you! It appears to be spreading to my lower back and sides of my body. Does the disease usually “run it’s course”? I’m an active
Male in my 30s. I don’t know how this could’ve happened to me. What therapies have people generally done to subside the rash? Like I’ve said, I’ve tried every cortisone cream and even light therapy

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Research, my friend, you have to be willing to read and research for yourself. As I and others have mentioned before, go back to late Feb. of 2019 of the posts here on this forum and start going forward in time from there. I think this link will take you directly there. Good luck!
https://connect.mayoclinic.org/discussion/grovers-disease-247ffc/?pg=11#comment-114878

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@colleenyoung

Hi @jbmakos, welcome to Connect.
Here is some information about Grover’s disease http://rarediseases.org/rare-diseases/grovers-disease/ “Grover’s disease is a rare, transient skin disorder that consists of small, firm, raised red lesions, most often on the skin of the chest and back.”

I’m tagging @shirlwpb @cindylou on this message as they have asked questions about Grover’s in the past too.

@jbmakos, have you been diagnosed with Grover’s disease?

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Yes, I was diagnosed with grover’s disease by my dermatologist (biopsy), I also have a history of various types of skin cancers. I treat the grover’s with anti fungal cream prescribed (you can buy it over- the-counter) and keeps the itching down.. I feel grover’s more in the summer from the heat than other times of the year.

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October 2020 I bought 6 tee shirts. When the came, I put 5 in the washer and made the fatal mistake of wearing a dark green shirt to bed with electric blanket. Dark dyes are toxic. Clothes should come with a warning. I started itching the next day. Thought it was dry skin because of hot air heat. Within 2 weeks I was broke out front and back with painful blisters. My friend, a dermatologist of 30 years, saw it and showed me in his medical book exactly what I had.
17 days of Triamcinolone Acetonide cream 0.1% front and back twice a day, and all was right.
From December to Mid May It was ok. Occasionally if I felt a pain like a horse fly on my back, I would put a dab of the cream on me.
Don't have to tell you this. Spring came with a hot day off and on. I stayed inside. Asked my for a Non-Steriod treatrment because Steriods thin the skin. I am using Tacrolimus Ointment 0.1%, which was developed in Japan and approved in US 10 years ago.
My drill now (august) is 63 degrees in bedroom for sleep. Wake up with no symptoms. As the day progresses with exposure to heat I only go into places which are under 71 degrees. (have accurate laser thermometer. My house is at 70 degrees. My garage is at 65 degrees when working on cars. I just bought a cooling vest from Heatreliefdepot so I can ride my bike when its 70 outside. Touch up my back with some of Tacrolimus.
“https://pubmed.ncbi.nlm.nih.gov/11770393/“
Hope This Helps. Grover Cleveland

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@grovercleveland

October 2020 I bought 6 tee shirts. When the came, I put 5 in the washer and made the fatal mistake of wearing a dark green shirt to bed with electric blanket. Dark dyes are toxic. Clothes should come with a warning. I started itching the next day. Thought it was dry skin because of hot air heat. Within 2 weeks I was broke out front and back with painful blisters. My friend, a dermatologist of 30 years, saw it and showed me in his medical book exactly what I had.
17 days of Triamcinolone Acetonide cream 0.1% front and back twice a day, and all was right.
From December to Mid May It was ok. Occasionally if I felt a pain like a horse fly on my back, I would put a dab of the cream on me.
Don't have to tell you this. Spring came with a hot day off and on. I stayed inside. Asked my for a Non-Steriod treatrment because Steriods thin the skin. I am using Tacrolimus Ointment 0.1%, which was developed in Japan and approved in US 10 years ago.
My drill now (august) is 63 degrees in bedroom for sleep. Wake up with no symptoms. As the day progresses with exposure to heat I only go into places which are under 71 degrees. (have accurate laser thermometer. My house is at 70 degrees. My garage is at 65 degrees when working on cars. I just bought a cooling vest from Heatreliefdepot so I can ride my bike when its 70 outside. Touch up my back with some of Tacrolimus.
“https://pubmed.ncbi.nlm.nih.gov/11770393/“
Hope This Helps. Grover Cleveland

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Thanks for all the info on how you are combating this disease. I read the abstract at Pub Med and this sounds quite promising with no long-term-usage problems like the triamcinolone acetonide (steroid) cream. On the downside, this cream is quite expensive, so if one's insurance plan won't cover it's cost, that could be problematic for some people.
What is the condition of your sores after using the Tacrolimus on them ? Do they actually go away, or do they just stop itching? Thanks and best of luck!

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@locutus

Thanks for all the info on how you are combating this disease. I read the abstract at Pub Med and this sounds quite promising with no long-term-usage problems like the triamcinolone acetonide (steroid) cream. On the downside, this cream is quite expensive, so if one's insurance plan won't cover it's cost, that could be problematic for some people.
What is the condition of your sores after using the Tacrolimus on them ? Do they actually go away, or do they just stop itching? Thanks and best of luck!

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What type of long term issues does the steroids have?

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@mburg2

What type of long term issues does the steroids have?

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For one thing, the steroid cream can cause your skin to thin in the area it is applied.
Here's an article: https://www.verywellhealth.com/steroids-topical-steroid-side-effects-1068831

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@locutus

For one thing, the steroid cream can cause your skin to thin in the area it is applied.
Here's an article: https://www.verywellhealth.com/steroids-topical-steroid-side-effects-1068831

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Thinning of skin. Eventually skin will be permanently damaged. Also you may get "Red Skin" everywhere. Face, hands. Real freaky>
"https://www.healthline.com/health/red-skin-syndrome"

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@locutus

Thanks for all the info on how you are combating this disease. I read the abstract at Pub Med and this sounds quite promising with no long-term-usage problems like the triamcinolone acetonide (steroid) cream. On the downside, this cream is quite expensive, so if one's insurance plan won't cover it's cost, that could be problematic for some people.
What is the condition of your sores after using the Tacrolimus on them ? Do they actually go away, or do they just stop itching? Thanks and best of luck!

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A 60 gram tube of Tacrolimus cost me $113 using GOODRX at ACME Savon pharmacy. Savon has the best price of any pharmacy.
I use 1 or 2 grams a day to cover 20 sores. Real tiny dabs makes the sores smaller the next day. And if you do not expose your self to any heat or friction, the sores get smaller day by day.
I have been in and out "warm" places and by using Tacrolimus the sores never get bigger. Stay same size.
Example: I eat at a Diner where the AC is usually 70 degrees. Some times it is 73. Well, at 73 degrees and 2 hours exposure, my GD acts up a little. But at 70 degrees GD is happy.
Bottom line, you are looking at $1200 a year. Not bad for the price.

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