What is brain fog like? How can I better understand as a caregiver?

@sandy8043 Thank you for sharing. It helps to know that others have experienced this.

@billy650 I glad to hear that your side effects are gone now.

How to taper off of 25 mg of Seroquel after 4 weeks.

@rollingf I get the brain fog myself! It is great that you are writing a column for your local paper.

@rozy288 We have been together since we were 16 and 17 (currently 65 and 66). I don't know what you are going through, but I can only imagine and I am so sorry. You mentioning dizzy, lightheaded, off balance helps as those are some of the things that my partner has mentioned. It has helped me to know there are others feeling the same things.

@julymt

not really, the fog is gone but I am now on amlodipine
and it affects my hair growth. always something.

I have fibromyalgia and experience brain fog when I am having a flare up. I definitely feel like I am mentally moving slower. Think about how you felt when you were really sick and how you felt as you began to come out of it - not quite 100%, just "off". Like having a fever, when your brain is muddled. Hope that helps. And don't give someone a hard time - for the most part, we are very aware that we aren't firing on all cylinders. We are not trying to be "fuzzy" - we just are.

Brain fog is common in people, especially older people who have had major surgery. It is usually the result of anesthesia. I had it after a brain injury that left me semi-comatose for a few days, but, even after I recovered, I was “foggy” for months. Gradually it went away, mostly. Two years later, I still have moments, minutes, of brain fog. You should speak with his primary care physician as each case is different.

It has become very common for me to think of three things I need to remember to do later. As I go to the notepad, no matter how closeby it is, I have already forgotten 2/3 and can only hope the forgotten items will pop into my memory again, and in time to make another note or do them.

I didn't know I was in a brain fog. I just thought the world around me was falling apart and I wasn't able to understand it. The lack of nutrients from EPI over decades just made it really hard to not only keep working but also understanding what little I could make out.

I quit the job that I loved while in the final throws of brain fog. But it turned out to be for the better as 2025 ended up being my EPI diagnosis year and it was a constant, adult diaper mess.

After being on Creon for 6 months I'm finally waking up out of the fog and it really is horrible for the person. The exhaustion of just getting through the day much less dealing with co-workers was a lot. But not knowing why I was so tired. Why I was struggling so much to make sense of people who didn't make sense anymore. It is really hard when you are down there.

And worst thing is I had no idea. So the patient is just as confused as anyone why nothing make sense. Which was maddening to me. At least, should it happen again, I will hopefully recognize what happened and understand that something else isn't working and I need to figure it out. And take more Creon in the process.