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What happens after TYMLOS ?
My doctor is telling me that after 24 moths of Tymlos, one year of Fosamax, but I have read several discussions here and some people have done second courses or switched to Evenity etc. Is this normal to have to stay on these drugs for such a long period of time?
Anyone have any success with a natural approach improving gut health with food and supplements, collagen, and exercise to support bone formation or is this just wishful thinking?
I am just off a year of prednisone for PMR which I feel was statin induced ( which I didn't need)..now Rheumatologist says she thinks there is 65% chance I never had PMR, but of course my bone density dropped to -2.6 in femoral neck and 2 bad vertebrae L-3 -2.7, L-4 -3.1
I also have had weak teeth for years, and want to get them crowned and need 2 implants....I was thinking of moving ahead now to avoid any problems after Tymlos if I decide to take it,
Thank for any for any thoughts or advice from all you wonderful savvy
members! I'm 75 and otherwise in good health with NO MEDS at all.
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@sophies
sophie, both Tymlos and alendronate leave you better off even after you stop taking them than if you'd be if you'd never taken them.
For me, osteoporosis medications will be life long.
Knowing your bone markers and your T scores will give a better idea about whether we are on the same train
It isn't as burdensome as it this never ending task of eating, though If you've already lost a lot
Some with osteoporosis are manage with lifestyle changes and supplements and some with HRT.
I'll never take the risk of fracture. The pain medication station is the worst.
You're smart to take the break between prednisone and Tymlos. I hope the headaches are gone.
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1 Reaction@gently
Hi, and thanks for responding. Yes
the headaches are finally gone but the "Light flashes" still happen once in a while. I wish everyone here would disclose their ages and HRT therapy if they're on something because of course it makes a bid difference. MY CTX was 238 and my P1nP was 37 after 8 months of prednisone ( first 5 months average 15MG/day) then I tapered at 1/2 mg every 2 weeks.
I think my numbers are bad, but I have no real assessment from DR. All I want is some time to see if proper diet, exercise and good supplements can move those numbers in a positive way....and of course some time for my body to normalize off the prednisone. Any clue about heel drops, or stomps that can be done safely by us older gals? Thanks! Hope you are well.
hi Sophie, just stopping the prednisone will change those bone markers within weeks to months. You weren't on extended dosage and not for an extended period of time and while the markers change quickly the bone and muscle loss is slower. You may have noticed some muscle loss, but if you haven't noticed be aware that the steroid has caused some, so that you can be careful not to depend on those muscles to save you from a fall
When you begin Tymlos your bone building cells will surge and you'll be ready to increase your exercise routine.
Your doctor made an excellent choice with Tymlos.
I'm 74 and have been taking a drug similar to yours, Forteo, for almost 3 years. Tymlos is thought to be a bit stronger than Forteo for bone building,
Chair squats are good https://www.youtube.com/watch but don't twist to look at the camera like she does. And have a counter top or something stable in front of you. There are lots of chair exercises like stomping in place while seated. https://www.youtube.com/watch void the one where you twist for now. Side marching along a counter top.
I'm glad those headaches are gone.
Sophie, those flashing lights might be your vitreous detaching.
If you haven't had an eye exam in a while you might consider having one. It isn't always a problem, or is almost never a problem except the for the rather pleasant "shooting stars," but it can pull on the retina in a damaging way.
https://www.gettyimages.com/detail/photo/macerated-bone-with-osteoporosis-royalty-free-image/146592222
This is a photo of the spicula that support the vertebral endplates. The blood and nerve supply has been removed. Enabling a vision of those vermicelli-like structures which are some times thick sheaves. I like the photo because it shows how we can fracture myriad spicules before experiencing a compression.
@gently
Awful photo of spicula! Looks so weak,,,I imagine that's me:(
Have had my eyes checked several times....thanks for thinking of me; so kind and thoughtful of you.......Have a good day....I'm trying line dancing this morning.
sophie, I should have said that it isn't the vertebral body of a live person. Yours don't look like that at all.
Some insurance companies won't cover teriparatide unless there is a fracture, but bone loss in the vertebral body is usually fracture after fracture.
Country Western? Line dancing seems like the perfect exercise for bones and brain.