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dn22
@dn22

Posts: 2
Joined: Dec 06, 2018

What happens after C.Diff?

Posted by @dn22, Dec 6, 2018

I got C.diff back in October (early to mid). I had taken clindamycin for BV and it didn't react well for me. I went into the ER for intense pain, bloating, and diarrhea. They found out I had a severe case of colitis, my entire bowel system was extremely inflamed. But they didn't know what type of colitis it was until my 3rd day there. Then they did the colonoscopy, endoscopy, and biopsy. So they treated me with antibiotics. Sent me home with more antibiotics. And after finishing them, and giving it a few days I felt better.

I was still more aware of my bowels, which is saying something since I have IBS already. But other than awareness, and maybe some tenderness in a way, it was normal. Then Thanksgiving came, and I ate what my family made. I had immediate diarrhea and pain. I thought it was the dairy, bc I forgot to start taking my IBS meds again. They had me stop taking them for awhile after being diagnosed with c.diff. Then I tried the food the next day, after taking my IBS meds. Same issues.

So I decided no more thanksgiving food. But the pain, bloating, twisting feeling, and pooping didn't stop. And I would get the urge, but when I went to go, it'd be a lot of gas, that was hard put to come up. When I would poop, the stool itself was very hard, and not a lot would come out.
My mother bought me stool softener. It made the stool less dry and sandpaper-like. But I still wasn't getting any relief.
So last Friday she gave me some of her Super Colon Cleanse (about 3/4-5/8 of a scoop/serving) mixed with Metamucil in a water bottle. And I drunk half the mixture. I still haven't stopped pooping. I'm pooping for hours again, just like with c.diff. No blood this time though. And the stool is pellet like.
I keep waking up to poop, or try to poop. I can't eat anything. Especially not carbs or dairy. I feel like I'm dying, but in a very different way than when I had c.diff.
I don't know what's happening. If I should go to the hospital or not. Or if c.diff has different symptoms the 2nd time around. Or if, because it was such a severe case, that my bowels were damaged somehow. I'm really just not all right, and idk what to do.

REPLY

@sandyabbey

Could someone please tell me what I need to eat after finishing my 3 rd round of antibiotics. 2 toimds of Flagyl & after relapses I got vancomycin. I’ve been off for 2 days & M getting anxious as each day comes. Each relapse was about 4 days off antibiotics. I was told by my gastro to eat soft foods that I could tolerate. I had a severe case of ischemic colitis about 10 months ago. I’m also lactose intolerant. I’m am. Ow taking a probiotic that my gastro told me to get. It’s phillips colon health. I have heard that kefir & some yogurts would be ok for lactose intolerance. I don’t know what to eat. I also need to know if I need the probiotic along with the Kifer or yogurt. I’m desperately not wanting to get sick again I’m 71 & down to 85 pounds. Someone please give me a direction as to diet & whether to do kifer & or probiotic

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I'd also get tested for fructose malabsorption. Intestinal infections can damage the lining of the intestine. In the meantime, try not to eat any sugar or fruit.

@sandyabbey

Could someone please tell me what I need to eat after finishing my 3 rd round of antibiotics. 2 toimds of Flagyl & after relapses I got vancomycin. I’ve been off for 2 days & M getting anxious as each day comes. Each relapse was about 4 days off antibiotics. I was told by my gastro to eat soft foods that I could tolerate. I had a severe case of ischemic colitis about 10 months ago. I’m also lactose intolerant. I’m am. Ow taking a probiotic that my gastro told me to get. It’s phillips colon health. I have heard that kefir & some yogurts would be ok for lactose intolerance. I don’t know what to eat. I also need to know if I need the probiotic along with the Kifer or yogurt. I’m desperately not wanting to get sick again I’m 71 & down to 85 pounds. Someone please give me a direction as to diet & whether to do kifer & or probiotic

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Gluten free, dairy free, no grains or complex carbs at first. No apple sauce or rice or toast or jello or any of those bland foods they tell you to eat for diarrhea. I drank a lot of bone broth and bananas and could also eat scrambled eggs. I am slowly adding new things to my diet. You can only introduce a new item every third day and keeping a food diary. If your intestines are inflamed or dysbiotic (out of balance), then you may not be able to tolerate all the foods you ate before for a while. If you are losing weight, try an elemental drink such as EleCare Jr., which is what I am doing now to put some of the weight back. You may or may not be able to tolerate Kefir at first. I take Florastor and Align as probiotics and recently started taking Vitamin D after a study from England was published which seems to support the use of vitamin D to treat inflammation in the body, including the gut.

@guthealth

Gluten free, dairy free, no grains or complex carbs at first. No apple sauce or rice or toast or jello or any of those bland foods they tell you to eat for diarrhea. I drank a lot of bone broth and bananas and could also eat scrambled eggs. I am slowly adding new things to my diet. You can only introduce a new item every third day and keeping a food diary. If your intestines are inflamed or dysbiotic (out of balance), then you may not be able to tolerate all the foods you ate before for a while. If you are losing weight, try an elemental drink such as EleCare Jr., which is what I am doing now to put some of the weight back. You may or may not be able to tolerate Kefir at first. I take Florastor and Align as probiotics and recently started taking Vitamin D after a study from England was published which seems to support the use of vitamin D to treat inflammation in the body, including the gut.

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What threw me off at first (besides eating the wrong foods like a ton of Jello) was the expectation that the antibiotic was going to cure me. It sort of did but it also created other problems. Just like CDiff wipes good bacteria so do antibiotics, so my theory is that the antibiotics both help and contribute to the problems we are having. Our intestines are still inflamed and out of balance following antibiotic treatment so we relapse if we eat “normal” because the bad bacteria is feasting and feeding on the sugars and carbs we are eating because we are hungry and desperate to gain weight. It is a vicious cycle.

@sandyabbey

Could someone please tell me what I need to eat after finishing my 3 rd round of antibiotics. 2 toimds of Flagyl & after relapses I got vancomycin. I’ve been off for 2 days & M getting anxious as each day comes. Each relapse was about 4 days off antibiotics. I was told by my gastro to eat soft foods that I could tolerate. I had a severe case of ischemic colitis about 10 months ago. I’m also lactose intolerant. I’m am. Ow taking a probiotic that my gastro told me to get. It’s phillips colon health. I have heard that kefir & some yogurts would be ok for lactose intolerance. I don’t know what to eat. I also need to know if I need the probiotic along with the Kifer or yogurt. I’m desperately not wanting to get sick again I’m 71 & down to 85 pounds. Someone please give me a direction as to diet & whether to do kifer & or probiotic

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@sandyabbey My gastroenterologist is the one who told me about what probiotic to take. He suggested the Florastor. It's important to take one with "Saccharomyces Boulardii." The Cdiff spores will line your intestines. Most probiotics will help your stomach and gut flora. You need one that survives the acid in your stomach and will colonize in your intestinal tract where the spores survive. I've had 4 bouts of Cdiff. I took one round of Flagyl, two with Vancomycin and after the last relapse, I took Difficid (fidaxamycin). I've finished that med on Oct. 26th. I'm keeping my fingers crossed that this med killed the spores. It was expensive and I understand why they don't give it out until you've tried everything else. Many doctors now don't even bother with Flagyl and they start you on Vancomycin with the first episode of Cdiff. My insurance asked me I'd taken Vancomycin before they would approve the Dificid.

@guthealth

You are not supposed to eat carbs or dairy after CDiff.

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@guthealth. I’m confused. I was to,d to eat carbs like potatoes, oatmeal, toast soups & those types of foods to let my gut heal.

@sandyabbey

@guthealth. I’m confused. I was to,d to eat carbs like potatoes, oatmeal, toast soups & those types of foods to let my gut heal.

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Nope! Quite the opposite. Soups and broths are great but the grains, cereals, toast, jello and carbs not so good. There are quite a few posts on diets on this site, but all the traditional advice you hear, including from many well meaning doctors is wrong. I have been through all that, and for months kept relapsing after the antibiotics due to all the wrong advice I was receiving about eating “normal,” or eating applesauce, rice and toast or Jello, which is loaded with sugar. What seems to help is a Low FODMAP diet that limits fructose, complex carbs, gluten and dairy, and very slowly introduces these foods back into the diet. Well worth for you to do a little reading and even get a referral to a nutritionist if you can. That’s what turned things around for me after repeated rounds of diarrhea and dropping 20 pounds in three months. You may be able to eat little at first. For a while, my only safe foods were chicken or bone broth, bananas and scrambled eggs. I am now eating lactose free cheese, almond milk, most meats, rice crackers, grapes, cantaloupe, pineapple, lentils, garbanzo beans, etc. I am working with a nutritionist and slowly trying new items and recording my reaction to them. I am far from normal but this is my new “normal”, and I have now been diarrhea free for a month and gained seven of the 20 lbs I lost. I am happy to eat a restricted diet for a while to regain my health. Proper eating after these intestinal disasters is key. Our guts can heal but this is a process that is going to take many months. Took me a while and a lot of reading to figure this out. Hope this information helps you.

@guthealth

Nope! Quite the opposite. Soups and broths are great but the grains, cereals, toast, jello and carbs not so good. There are quite a few posts on diets on this site, but all the traditional advice you hear, including from many well meaning doctors is wrong. I have been through all that, and for months kept relapsing after the antibiotics due to all the wrong advice I was receiving about eating “normal,” or eating applesauce, rice and toast or Jello, which is loaded with sugar. What seems to help is a Low FODMAP diet that limits fructose, complex carbs, gluten and dairy, and very slowly introduces these foods back into the diet. Well worth for you to do a little reading and even get a referral to a nutritionist if you can. That’s what turned things around for me after repeated rounds of diarrhea and dropping 20 pounds in three months. You may be able to eat little at first. For a while, my only safe foods were chicken or bone broth, bananas and scrambled eggs. I am now eating lactose free cheese, almond milk, most meats, rice crackers, grapes, cantaloupe, pineapple, lentils, garbanzo beans, etc. I am working with a nutritionist and slowly trying new items and recording my reaction to them. I am far from normal but this is my new “normal”, and I have now been diarrhea free for a month and gained seven of the 20 lbs I lost. I am happy to eat a restricted diet for a while to regain my health. Proper eating after these intestinal disasters is key. Our guts can heal but this is a process that is going to take many months. Took me a while and a lot of reading to figure this out. Hope this information helps you.

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I also take Florastor and Align daily (probiotics) and several supplements to help my gut heal. Vitamin D, vitamin A, Zinc, L-glutamine, omega 3, b complex, vitamin c, and quercetin. I put a scoop of collagen peptides in my peppermint tea.

@guthealth

I also take Florastor and Align daily (probiotics) and several supplements to help my gut heal. Vitamin D, vitamin A, Zinc, L-glutamine, omega 3, b complex, vitamin c, and quercetin. I put a scoop of collagen peptides in my peppermint tea.

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@guthealth Were you actually diagnosed with Cdiff or another type of colitis? And have you tried Inulin? My cardiologist suggested Inulin after I told him about the Cdiff relapses. Inulin feeds the good bacteria. I also take Vitamin D and have for years after having a melanoma removed almost 20 years ago. And I just started taking collagen a few months ago. My gastroenterologist is the one who told me to take Florastor which I believe is key to using the correct probiotic for Cdiff. Cdiff patients need a probiotic that will not dissolve with the acid in our stomach. The Cdiff spores live in the intestinal tracts and most probiotics do little to fight those.

@sandyabbey Please remember that those of us giving you our thoughts on this site are NOT medical doctors. We're just telling you what did or ddi not work for us. Your doctor knows you best. But the more informed you are, the better you will be to fight Cdiff. Read different opinions from various medical professionals on the internet. There are numerous studies out there and even videos where medical staff discuss these. I had never even heard about Cdiff until I got it this past April after taking Clindamycin. It's been a battle for me.

@pines

@guthealth Were you actually diagnosed with Cdiff or another type of colitis? And have you tried Inulin? My cardiologist suggested Inulin after I told him about the Cdiff relapses. Inulin feeds the good bacteria. I also take Vitamin D and have for years after having a melanoma removed almost 20 years ago. And I just started taking collagen a few months ago. My gastroenterologist is the one who told me to take Florastor which I believe is key to using the correct probiotic for Cdiff. Cdiff patients need a probiotic that will not dissolve with the acid in our stomach. The Cdiff spores live in the intestinal tracts and most probiotics do little to fight those.

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I was initially diagnosed with CDiff but two tests were negative. I ended up with a SIBO diagnosis. I was told by my nutritionist that inulin is a no no for SIBO. I take guar gum fiber per her recommendation. It is a supplement called NutriSource. I take Florastor and Align and a bunch of other supplements as well.

@guthealth

I was initially diagnosed with CDiff but two tests were negative. I ended up with a SIBO diagnosis. I was told by my nutritionist that inulin is a no no for SIBO. I take guar gum fiber per her recommendation. It is a supplement called NutriSource. I take Florastor and Align and a bunch of other supplements as well.

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Clindymycin is the antibiotic from hell as far as I am concerned.

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