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What causes persistent swelling in the left supraclavicular?

Posted by Tully @tully, Jul 6, 2023

I have had off and on swelling of my left supraclavicular for years. In the past few months it is swollen pretty much all the time. I am awaiting results for an ultrasound but I’m very scared because everything I read about this is bad news and I have already lost a 38-year old sister to breast cancer and a 52-year old brother to colon cancer. Any words of wisdom?

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daisy2005 | @daisy2005 | Aug 9 6:33pm
In reply to @tully "Hi Daisy, I had my CT scan but no results yet…my doctor is on summer vacation..." + (show)
Profile picture for Tully @tully

Hi Daisy,
I had my CT scan but no results yet…my doctor is on summer vacation but I will let you know as soon as I find out. Take care and although it’s easy to say…try not to worry, it solves nothing and only harms your well being.

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Thank you @tully for taking the time to leave such a kind reply. I am older and really struggle with health anxiety. Googling this symptom has me absolutely terrified. 🙁 Wishing wonderful results for your scan and I look forward to your post. Thank you again!

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hlmcneely | @hlmcneely | Aug 10 4:11pm
In reply to @tully "Hi, I too share the same mystery swelling of left supraclavicular area. I just had a..." + (show)
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Hi,
I too share the same mystery swelling of left supraclavicular area. I just had a CT scan yesterday from the base of my neck to the bottom of my lungs.
I will post again as soon as I receive the results and doctors’ opinion.

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Hi, I saw this on the supraclavicular and finally looked it up. I have had a sharp pain maybe 6 months maybe longer ( time moving too fast ) however it has increased. It starts in the right dip area ( where a bra strap would sit) and works down shoulder to the bicep and sometimes to wrist but mainly just shoulder and bicep. If I move arm wrong or shoulder wrong a real sharp pain makes me cringe. I thought maybe I strained the muscle but has persisted for a while. I was I bet diagnosed 20 years ago with ITP then MDS July 2022 and now myelofibrosis. I see dr again in September. I don’t seem to have the symptoms for this diagnosis. But I digress. What was your shoulder pain and how do they diagnosis. I think y’all said CT or MRI.

Thanks
Hollie

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Tully | @tully | Aug 10 6:10pm
In reply to @hlmcneely "Hi, I saw this on the supraclavicular and finally looked it up. I have had a..." + (show)
Profile picture for hlmcneely @hlmcneely

Hi, I saw this on the supraclavicular and finally looked it up. I have had a sharp pain maybe 6 months maybe longer ( time moving too fast ) however it has increased. It starts in the right dip area ( where a bra strap would sit) and works down shoulder to the bicep and sometimes to wrist but mainly just shoulder and bicep. If I move arm wrong or shoulder wrong a real sharp pain makes me cringe. I thought maybe I strained the muscle but has persisted for a while. I was I bet diagnosed 20 years ago with ITP then MDS July 2022 and now myelofibrosis. I see dr again in September. I don’t seem to have the symptoms for this diagnosis. But I digress. What was your shoulder pain and how do they diagnosis. I think y’all said CT or MRI.

Thanks
Hollie

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Hi Hollie,
I have never had any shoulder pain or discomfort due to the swelling in my left supraclavicular. CT scans were administered in an effort to determine what the cause is. Still waiting on results.

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hlmcneely | @hlmcneely | Aug 10 7:20pm

Thank you. I mentioned it to the new Oncologist. I will mention to my pcp also. Have an appointment next month. Anxious to hear your findings

Hollie

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joeystia | @joeystia | Aug 11 1:47pm

Found out today my insurance company is reviewing need for chest ct

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