What can I eat?

Posted by ldrlaw @ldrlaw, Sep 10, 2023

I am enjoying Minute Maid’s zero sugar, mango passion drink. It has no sugar, 20 mg of sodium, a bit of potassium, but no phosphates. It also contains aspartame, but you have to choose your battles.

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@ldrlaw That sounds pretty good! How often do you drink that? Personally I am a fan of crushed ice and water. Sometimes I add a packet of True Lemon or True Orange for flavor.
Ginger

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My choices are a little different since I also am diabetic and have gastroparesis and am diabetic. Also am a strict vegetarian. Problem is, with gastroparesis my fruit and veggie choices are limited so I have researched nutritional values for the foods I'm allowed to eat and usually have less phosphorus than recommended and sometimes even less potassium and supplement with small amt potassium chloride (salt substitute.) My sodium intake ranges from 1000mg to 1500 mg and that's without adding salt to a meal. I'd like to reduce it but cannot as I'm forced to consume some processed foods in order to get other needed nutrients (can't have anything raw but iceberg lettuce, for instance.) I'm anemic, of course, but not to the point of needing injections yet. I take in around 32 grams of protein daily, less than recommended for CKD by my neph but since I cannot tolerate meat or dairy and rely on eggs, peanut butter, and some processed vegan meat analogs, it's the best I can do. I drink 1/4 C low-sodium V8 juice daily and 1/4 C mango-peach juice in addition to water and popsicles. So far I'm still here but I know that it's just a matter of time before things get a little more challenging. Meanwhile, my limited diet is working to the point that I can still somewhat function and still live at home.

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@kamama94

My choices are a little different since I also am diabetic and have gastroparesis and am diabetic. Also am a strict vegetarian. Problem is, with gastroparesis my fruit and veggie choices are limited so I have researched nutritional values for the foods I'm allowed to eat and usually have less phosphorus than recommended and sometimes even less potassium and supplement with small amt potassium chloride (salt substitute.) My sodium intake ranges from 1000mg to 1500 mg and that's without adding salt to a meal. I'd like to reduce it but cannot as I'm forced to consume some processed foods in order to get other needed nutrients (can't have anything raw but iceberg lettuce, for instance.) I'm anemic, of course, but not to the point of needing injections yet. I take in around 32 grams of protein daily, less than recommended for CKD by my neph but since I cannot tolerate meat or dairy and rely on eggs, peanut butter, and some processed vegan meat analogs, it's the best I can do. I drink 1/4 C low-sodium V8 juice daily and 1/4 C mango-peach juice in addition to water and popsicles. So far I'm still here but I know that it's just a matter of time before things get a little more challenging. Meanwhile, my limited diet is working to the point that I can still somewhat function and still live at home.

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So nice to see your update kamama 😀. Once again you outshine us with your knowledge.

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@gingerw

@ldrlaw That sounds pretty good! How often do you drink that? Personally I am a fan of crushed ice and water. Sometimes I add a packet of True Lemon or True Orange for flavor.
Ginger

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I just started drinking it but think I’ll try and limit it to once a day as I need to increase my intake of plane water.

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I keep my drinking to water and 1 cup of coffee in the morning.

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@ldrlaw

So nice to see your update kamama 😀. Once again you outshine us with your knowledge.

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@ldrlaw Aw, shucks. . . < blushing>

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Hello to all! Not sure I'm in the right place but here goes. Last summer I had aspiration pneumonia. Released from hospital too early with no meds to take home. Pneumonia returned and I went septic. Eventually intubated and put on life support. Before this my kidneys were always fine. I'm 58 now. During this nightmare my gfr fell to 18. As I got better and healed, my gfr slowly came up to the 70s and stayed there for months. I'm not diabetic, and had high blood pressure before this pneumonia but now it's normal.
2 weeks ago I had to have blood work and my gfr was the usual 77.
I had to have more blood work a few days ago due to something unrelated and it was noted my gfr is now 56!!
It dropped 20 points in 2 weeks! I've not been I'll and my doctor doesnt seem worried. There are bubbles in my urine but not a lot.
What makes a gfr fall so far so fast? My gp said I was probably dehydrated but I'm always careful to drink my water. No re test for a month he said. I'm really worried but he has done nothing to ease my fears or talk with me about it because I personally think he just doesn't know.
If anyone has any info I'd love to hear some about now! Thank you!

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@yvonne55

Hello to all! Not sure I'm in the right place but here goes. Last summer I had aspiration pneumonia. Released from hospital too early with no meds to take home. Pneumonia returned and I went septic. Eventually intubated and put on life support. Before this my kidneys were always fine. I'm 58 now. During this nightmare my gfr fell to 18. As I got better and healed, my gfr slowly came up to the 70s and stayed there for months. I'm not diabetic, and had high blood pressure before this pneumonia but now it's normal.
2 weeks ago I had to have blood work and my gfr was the usual 77.
I had to have more blood work a few days ago due to something unrelated and it was noted my gfr is now 56!!
It dropped 20 points in 2 weeks! I've not been I'll and my doctor doesnt seem worried. There are bubbles in my urine but not a lot.
What makes a gfr fall so far so fast? My gp said I was probably dehydrated but I'm always careful to drink my water. No re test for a month he said. I'm really worried but he has done nothing to ease my fears or talk with me about it because I personally think he just doesn't know.
If anyone has any info I'd love to hear some about now! Thank you!

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@yvonne55 I can see why you are concerned! It is best to look at trends, not a one-time test result. Indeed, dehydration could have played a part in the eGFR change. Likewise, lingering effects of your illness, medications you might be on/recently stopped, even a change in the laboratory processing the blood samples can all be a factor.

It's not unusual for our gp to not be well-versed in kidney issues. Following a healthy diet, moderate exercise, reducing your stress as much as you can will go a long way to easing your mind. I would suggest you follow your gp's thoughts, and retest in a month.
Ginger

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@gingerw

@yvonne55 I can see why you are concerned! It is best to look at trends, not a one-time test result. Indeed, dehydration could have played a part in the eGFR change. Likewise, lingering effects of your illness, medications you might be on/recently stopped, even a change in the laboratory processing the blood samples can all be a factor.

It's not unusual for our gp to not be well-versed in kidney issues. Following a healthy diet, moderate exercise, reducing your stress as much as you can will go a long way to easing your mind. I would suggest you follow your gp's thoughts, and retest in a month.
Ginger

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Thank you so much Ginger, I feel better reading that. I did get concerned because I noticed a bit of foam in my urine. But after I really hydrated myself well, the foam was gone. Thank you!

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@yvonne55

Thank you so much Ginger, I feel better reading that. I did get concerned because I noticed a bit of foam in my urine. But after I really hydrated myself well, the foam was gone. Thank you!

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@yvonne55 You're welcome! As you are finding out, it sure doesn't take much to send our bodies "off the rails".

Be watchful, listen to your body, take care of yourself!
Ginger

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