What are your 3 worst symptoms?

Posted by gregorb @gregorb, 1 day ago

Trying to determine the 3 worst symptoms we are dealing with as a group.

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@roncovid

1. An awful feeling in my head that I call "distortion." I think it's connected with fatigue. It's not brainfog because I don't have any cognitive issues.

2. Fatigue / post-exertional malaise.

3. Dizziness.

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Distortion is a new one to me. Hope you can get some clarity on that symptom. Good luck and best wishes.

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@gregorb

Distortion is a new one to me. Hope you can get some clarity on that symptom. Good luck and best wishes.

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Re head "distortion": Here are some ways I've tried to describe it to doctors:

Headache (for lack of a better word) / head "fullness" /
head "distortion" / "sick with fatigue" feeling -- associated with
fatigue or P.E.M. / not clear-headed / "fuzzy" feeling / feeling
as head does with influenza

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@roncovid

Re head "distortion": Here are some ways I've tried to describe it to doctors:

Headache (for lack of a better word) / head "fullness" /
head "distortion" / "sick with fatigue" feeling -- associated with
fatigue or P.E.M. / not clear-headed / "fuzzy" feeling / feeling
as head does with influenza

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Looks like you have a handle on the description. Guess we can add it to the quickly growing 200 + other symptoms. Know it won't be the last. Long Covid doesn't discriminate. Lots to choose from. Plenty for everyone. Expecting all illnesses to be diagnosed as long covid related before long.

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@roncovid

Re head "distortion": Here are some ways I've tried to describe it to doctors:

Headache (for lack of a better word) / head "fullness" /
head "distortion" / "sick with fatigue" feeling -- associated with
fatigue or P.E.M. / not clear-headed / "fuzzy" feeling / feeling
as head does with influenza

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I think I have felt this “distortion” in the head before when I have been “sick” with other things, and I couldn’t put a name to it, either. The best I could explain it was that I felt like I had restless leg syndrome in my head, but if you’ve never had restless leg, it’s hard to understand THAT. It’s almost like someone is holding a feather right above your scalp and has every intention of tickling you with that feather … in about 4?months! Very weird sensation!

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