1. < Polymyalgia Rheumatica (PMR)
Profile picture for mcds80

What age were you diagnosed?

Posted by mcds80 @mcds80, Jan 5 7:42pm

I am 45 1/2 and was just diagnosed after feeling freakishly stiff and sore/in pain with no known cause for several weeks. I got the diagnosis after doing my own research and asking my doctor about PMR, after which, I was sent for bloodwork and told my bloodwork is consistent with PMR. I’m currently on 10 mg prednisone (have a significant reduction but not elimination of symptoms) and waiting to get into a rheumatologist as I don’t have a lot of confidence in my PCP on this issue. Would love to hear the experience of anyone who was in the younger age range when diagnosed.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

Profile picture for franklinlala
franklinlala | @franklinlala | Jan 21 7:13pm
In reply to @ndep "@franklinlala I want to let you know that my knees were swollen and painful too. Even..." + (show)
Profile picture for ndep @ndep

@franklinlala I want to let you know that my knees were swollen and painful too. Even turning to the other side of my bed was difficult and very painful. The balls of my feet, wrists, fingers, shoulders, hips, arms, actually too much to mention.
The severity of the pain changed for every part of my body when new symptoms of pain occurred and were even worse than the ones I already had. Take care!

Jump to this post

@ndep Sorry to hear your pain was so all encompassing, that’s got to be difficult. Thank you for sharing your experience. I hope there are easier days ahead for you.

REPLY
Profile picture for ndep
ndep | @ndep | Feb 1 7:50am
In reply to @marianne2025 "Does anyone have any pain in their hands? My Dr. said the pain wasn’t related to..." + (show)
Profile picture for marianne2025 @marianne2025

Does anyone have any pain in their hands? My Dr. said the pain wasn’t related to PMR. I disagree with him. Never have I had had pain before being diagnosed with PMR. Started at 20 mg prednisone 8 months ago and now on 7mg. Hands are feeling a little better but still have some pain.

Jump to this post

@marianne2025 after all the ‘classic’ pain symptoms I started getting a tingling middle and ring finger. It has gotten worse to a point I couldn’t do anything with my hands. Putting toothpaste on my toothbrush was impossible, etc…painful hands.
Symptoms of carpal tunnel syndrome too, after taking prednisone it slowly got better. Taking 12 mg now. I do not have arthritis. First my rheumatologist said I might have a pinched nerve in the neck but after an MRI it was negative.
Definitely a symptom of PMR doctors don’t know about as I can read that many of us have pain in fingers and wrists.

REPLY
Profile picture for etelbela
etelbela | @etelbela | Feb 2 10:55am

I was just shy of 81 when I was diagnosed. I'm now 83 and am trying to taper my Prednisone. I'm down to 2mg for the past two weeks and hope to go to 1.5 in about 4 weeks. The journey has been longer than I originally expected.

REPLY
View MoreView Less
Please sign in or register to post a reply.