Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

My name is Carla, I am 66 years old. I have osteoarthritis of a 90-year-old woman, I also have spondylarthritis mid-back. In 2010, I was tboned at a stop sign! This was a miracle I wasn’t killed but resulted in giving me whiplash and a herniated disc in my neck. This is setting on my spinal nerve, causing stenosis. I was told I have fibromyalgia a few years back, but I feel like old injuries from an abusive ex are contributing to chronic pain and fatigue. So I have never been a complainer and it’s difficult to describe my pain experiences . My quality of life is very poor since the drs are not prescribing pain meds nowadays! Sometimes I am unable to function and just lay down most of the day. I was an environmental scientist prior to the wreck and specialized in ecosystem management. Perhaps in the support group, I’ll be able to help others navigate the many options available to help us live with our chronic pain. I have never joined the Support group before and look forward to the discussions. I have found that deep tissue massage helped me immensely, but of course the insurance does not pay for that, and now I am disabled and cannot afford them… Lol. I have tried acupuncture, chiropracty , and massages. In the past, I was able to get enough pain relief with massages , and opiates. My blood pressure remained normal but when I am in pain, I have running blood pressure and it spikes extremely high. I do not understand why doctors feel that extremely high blood pressure and limited activity is acceptable as opposed to taking pain pills and being able To function each day with normal blood pressure levels. Prior to the accident, I was never a pill taker – after the accident I had to resign myself to the fact that I would probably need pain medication for the rest of my life. I would rather take a few pain pills and be able to cook meals enjoy fishing,playing with the grandkids , doing yard work, etc.

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Profile picture for Frank @frank1

Hi, my name is Warren. I have dry eye disease, whose cause has yet to be determined (after 6 years). I don't have pain in the sense of "hurt", but I do have it in the sense of irritation that is constant any time I have my eyes open. For that reason it seems I am more similar and sympathetic to people who have chronic pain than other types of disorders. People do not understand how it feels to constantly have sand in your eyes, or large foreign objects, and burning, and when one looks--there's nothing there! When I leave home or go outdoors, I find that wearing a snug-fitting pair of high-school chemistry lab goggles help keep my eyes from drying out so fast helps, but it is humiliating, and you should hear the comments some people make! I've said enough for now, but I am so glad to be part of this group. I hope I can help some of you. Thanks. Warren

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There are glasses that are specifically made for dry eye relief. They keep the moisture in. There is a dry eye group on line that sells them. I don't remember the name. Or you can google. Good luck!

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Profile picture for csvhough @csvhough

My name is Carla, I am 66 years old. I have osteoarthritis of a 90-year-old woman, I also have spondylarthritis mid-back. In 2010, I was tboned at a stop sign! This was a miracle I wasn’t killed but resulted in giving me whiplash and a herniated disc in my neck. This is setting on my spinal nerve, causing stenosis. I was told I have fibromyalgia a few years back, but I feel like old injuries from an abusive ex are contributing to chronic pain and fatigue. So I have never been a complainer and it’s difficult to describe my pain experiences . My quality of life is very poor since the drs are not prescribing pain meds nowadays! Sometimes I am unable to function and just lay down most of the day. I was an environmental scientist prior to the wreck and specialized in ecosystem management. Perhaps in the support group, I’ll be able to help others navigate the many options available to help us live with our chronic pain. I have never joined the Support group before and look forward to the discussions. I have found that deep tissue massage helped me immensely, but of course the insurance does not pay for that, and now I am disabled and cannot afford them… Lol. I have tried acupuncture, chiropracty , and massages. In the past, I was able to get enough pain relief with massages , and opiates. My blood pressure remained normal but when I am in pain, I have running blood pressure and it spikes extremely high. I do not understand why doctors feel that extremely high blood pressure and limited activity is acceptable as opposed to taking pain pills and being able To function each day with normal blood pressure levels. Prior to the accident, I was never a pill taker – after the accident I had to resign myself to the fact that I would probably need pain medication for the rest of my life. I would rather take a few pain pills and be able to cook meals enjoy fishing,playing with the grandkids , doing yard work, etc.

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Hi there and welcome. Have yo gone to a Pain Management Group who can tell you whether or not you are eligible for a Spinal Cord Stimulator. I have one in my Lumbar and it has given me 100% relief. I encourage you to do so, if you have not already done that. God bless you, Charles aka brotherchuckles80

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Profile picture for nanamarcia @nanamarcia

There are glasses that are specifically made for dry eye relief. They keep the moisture in. There is a dry eye group on line that sells them. I don't remember the name. Or you can google. Good luck!

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My wife has that condition in addition to calcium deposits. After some research, I found Theraspecs. They have quite an extensive glasses for different eye conditions.

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80 years old male
10 years ago pain pump granulized. Almost lost left leg. Now it’s just very weak. Incontinet bowls. Cath the other way. Multiple backs surguries. Spine is stenosis. Plagued with a series of wounds. New pain pump Figured intrathecal is better than straight opioids less constipation except Dr keeps dosage below what I.need. Pre dementia. Can’t spell

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Profile picture for orygun66 @orygun66

Hello,

I'm new to the group here. I don't know if I will find the help I need. I moved here from Colorado last December so I could hopefully have one or two knee surgeries. What I didn't count on is Mayo and their anti opioid attitude. My pain treatment plan was working just fine for me. Now I'm being forced off one of my meds and it's greatly reduced my quality of life. I can't engage in exercise because I can't bend my right leg. I guess I would like to know if anyone has found anywhere else in the Twin Cities to go to or has anyone had any luck with edibles, either THC or CBD. I've not tried it. Also, has anyone had luck with Suboxone. Thanks in advance. Maybe I'll be helpful to someone else. I'm also a nurse so that comes in handy.

Glad to meet everyone!

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Good evening, "@orygun66," and welcome to Connect. Thank you, @johnbishop, for the introduction. And welcome to Minnesota. I notice that you are from Colorado. I am from California. I moved to MN in part because of the medical world, especially the quality of medical care.

It surely seems like you have had quite a few TKRs. What has the diagnosis been? How many years have you been coping with knee surgeries and post-surgery recovery?

My colleague @johnbishop thought perhaps you might be interested in medical cannabis. Right off the bat, I will tell you that I have been using it for about 11 years for shoulder, elbow, ankle, knee, and spinal surgeries. With the diagnosis of SFN (small fiber neuropathy), other types of cannabis have been found that create a more enticing world for me.

Does being a nurse from Colorado mean you are familiar with medical cannabis? If you can share your experiences and inquiries with me, I will try to help you.

May you be safe and free from inner and outer harm.
Chris

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I am Tilou and was in a group for broken vertebra or compression fracture of the spine.. From that problem came, among others, the blue and swollen ankles and also what has been diagnosed as the incurable "Meniere disease". I am looking for maybe other recomendations other than the heavy stockings prescribed by doc.

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After much experimentation with Cannabis I’m using tincture THC 25mg 4x day plus tincture CBD 100mg 4x day. I used to vape but tired of the throat issues and now use low dose gummies when needed. My main pain control for my spinal OA and chronic pain syndrome is buprenorphine 20mcg patch Q7 days. Compared to Suboxone the patch provides 24/7 relief without the need to remember to take pills. I was having dental work performed when I started on this drug and buccal film wasn’t ideal at the time. Good luck on your search for relief.

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My name is Sandy and I have been diagnosed with Adhesive Arachnoiditis after 8 years of wrong diagnosis. I love Jesus and we walk the road of recovery of the spirit within. I feel crazy and have other health issues at 65. Grateful to be alive. Praying for answers that Drs say they don’t have. Happy Father’s Day Sandy🙏😉

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Profile picture for Sandy @sisterpatriot

My name is Sandy and I have been diagnosed with Adhesive Arachnoiditis after 8 years of wrong diagnosis. I love Jesus and we walk the road of recovery of the spirit within. I feel crazy and have other health issues at 65. Grateful to be alive. Praying for answers that Drs say they don’t have. Happy Father’s Day Sandy🙏😉

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@sisterpatriot. Hi Sandy, Jesus brought you to this Mayo group and that is a blessing in itself. Jesus brought me here, too. I've found so many wonderful people here who have helped me. I have spinal problems from 10 years ago that were brought on by treatment for cancer. Before I found this group, I could barely walk through stores without getting horrible cramping in my hips and feet. I actually felt like my hip joints were locking up on me. I've been taking 600mg of R-Alpha Lipoic Acid (stabilized) for 28 days and I walk so much better. I also apply a 5% Lidocaine transdermal patch on my spine (where I hurt the most). Sometimes I place a patch on my right foot, knee, and calf. My right side harbors the most pain. These two products help me live more comfortably. Plus I go to PT every week, sometimes twice a week. I'm not completely out of the woods with mobility issues. Some days are better than others. But my ultimate goal is to walk 1-mile without stopping. I hope you find some relief for your pain soon. The best to you. Hugs, CB

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