Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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@amberpep, thanks for the info. You sure had a bunch of things happening to you, thank goodness your knee is good now. Interesting about forecasting weather, could you do that with the first knee too? I will have to pay more attention to when my bothers me.
We are due for snow tonight too, where are you? I am in NH. Not looking forward to more, the reports say up to 20″. I’m ready for winter to end. I never could understand people moving to FL, but now I can, although I still would not.
JK

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@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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@granny998, I think I responded to the wrong poster, so thank you for the info and pictures. As I said in that post, I have a great deal of confidence in the ortho I am using. When I first went to see him, in the waiting room there were people from a number of other states there to see him. That scheduled surgery fizzled when I was on the table ready to be wheeled in to the OR, IV in arm and everything, due to a low platelet count, which was diagnosed at the time but turned out to be from my liver.
It is miserable to not be able to take many painkillers. I think, maybe, that some of the stronger ones are OK! Not sure about that but before transplant at various points I had both oxycodone and oxycontin, plus something else and I can’t remember the name. Oddly, they kept me awake all night, staring at the ceiling! I had these pharmaceuticals before and they did not bother so I assume my malfunctioning liver was the reason why. Even with the new liver though I cannot take ibuprofen or aspirin, except for one baby aspirin a day.

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@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Hi ….. yes, I “think” I could tell the weather with the first TKR but it’s hard to tell because it hurt anyhow. I live in the very western part of Virginia, right below the Blue Ridge Parkway. I don’t think they know what we’re going to get …. some say 8″ and some say 12″ …. with all their fancy equipment I guess it’s hard to know if the mountains will “protect” us or if it’ll come right over and make a huge “deposit” on Harrisonburg.
I’d LOVE to go to FL.
abby

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Hi, I,m introducing myself as virtuous69. Have read some of your posts and glad to have friends in common to talk to. Seems I have alot of what you folks have, such as Fibromyalgia, all the degenerated spinal issues along with arthritis. I can throw diabetes 11 into the box as well.

Not sure how to start a new discussion but have an issue:. Today is a beautiful mildly warm day in San Jose. But every Spring around March I get sick to my stomach and have body aches that don’t appear to be Fibro. I think it’s allergies– everything is in bloom. Anyone else have this seasonal problem? I always thought that pollen allergies were just sneezing and watery itchy eyes.Am I the only one who gets the tummy and body aches this time of year.? I never remember to start nasal spray in February.

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@colleenyoung

Welcome to Connect @cahnny. On the contrary, there is steady activity in the Chronic Pain group https://connect.mayoclinic.org/group/pain/ So glad that chose to post a message. We’d like to get to know a bit more about you. What brings you to Connect and in particular to the pain group?

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Wow, symptoms sound like mine. I take Clonazepam for sleep due to Fibro, but I get frequent side, upper abdomen and back spasms that are horrific. Am told the connective tissue between the ribs and chest wall pain is called costachrondroitis. It’s a real beaut!

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@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Both of you try marijuana thc 70%

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@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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I have keloid scaring and that makes joint replacement questionable. With my kind of scarring the scars build up in in big red lumpy , itchy areas. Does anyone here have that kind of scarring if so have you had a joint replacement?

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Hi-my journey with chronic pain began in a car accident almost 20 years ago that has had an ongoing impact in my life. I am athletic (I play tennis). I row. I workout regularly but have chronic neck and lower back issues as well as ankle issues. Because of the cost I am always looking for ways to manage my pain from the inside out…Without opiates and all the medications…I have the chiropractor thing down my exercises have help for sure but what else is there out there for Home therapy?

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@sharonmay7

Yes if anyone has ideas of how we can get the attention of higher ups… Please let us know !! Every time I here somethings about pain pills it is always negative. I bet there r more people helped then hurt! Sharonmay7

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Thx you to @sharonmay7. With spinal issues,arthritis and Fibromyalgia, I rely on Advil and Norco as needed for unrelenting
Pain as needed, and topical arthris creams with my Ortho and PC full support. I hope I am misunderstanding that opioids are trying to be banned. I do hear of stories of addiction and the huge use of oxycodone and oxy cotton. BTW, are these last two the same drug? I am approaching my pain with as much life corrective life style as I can.

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@growyourflow

Hi-my journey with chronic pain began in a car accident almost 20 years ago that has had an ongoing impact in my life. I am athletic (I play tennis). I row. I workout regularly but have chronic neck and lower back issues as well as ankle issues. Because of the cost I am always looking for ways to manage my pain from the inside out…Without opiates and all the medications…I have the chiropractor thing down my exercises have help for sure but what else is there out there for Home therapy?

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So glad to see someone else who wants to stay away from meds. I keep busy. Exercise thru pain. Not ready to give in yet. That day will come because scoliosis will only worsen. But for now I’ll live life the best I can!

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Hi I am a fairly new member. My name is Janie56. I have fibro and myo. Also osteoarthritis. Some days can be pretty bad with pain. I’ve been on pain meds for a few years. I don’t like being on them. I try very much not to take them unless I positively need them. I started doing self hypnosis. It relaxes the nerves and the muscles. It is safe for people to do. You may get different reactions while doing it, but it only lasts for a few minutes then it’s gone. (Shaking). Numbness. It has helped my pain. It has cut me way down on the amount of painkillers I have taken. If you can’t sleep. It will help you with that also. I’m not saying anyone should try it although I was told by a professional that it is safe for anyone to do. But it is another option to look into.

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Hi Janie56. I’m Gail, and i have been having constant pain for one year now. Some times worse than other times. I wanted to let you know that “self hypnosis” and “meditation” are basically the same processes. And, they can both help with pain. I have experienced both.

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@gailb Hi. Thank you for your reply. My pain moves. One day my legs are sore. The next could be my back. Went shopping, two stores was too much. Suffered for two days later. I also have two narrowings in both legs, Copd , stents in my heart, osteoarthritis and a tumor on my adrenal gland. Non cancerous. I’m 60 years old. Been on endocet, oxcodone and a pain cream called Lipoderm Diciofenac. Trying to reduce these meds or maybe get off them by trying other methods. Thought I would privately introduce myself to each person if I can. I am not sure if I did this properly. Thank you again Jane

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@janie56

@gailb Hi. Thank you for your reply. My pain moves. One day my legs are sore. The next could be my back. Went shopping, two stores was too much. Suffered for two days later. I also have two narrowings in both legs, Copd , stents in my heart, osteoarthritis and a tumor on my adrenal gland. Non cancerous. I’m 60 years old. Been on endocet, oxcodone and a pain cream called Lipoderm Diciofenac. Trying to reduce these meds or maybe get off them by trying other methods. Thought I would privately introduce myself to each person if I can. I am not sure if I did this properly. Thank you again Jane

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Thanks @janie56. You did fine.

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@virtuous69

Hi Janie, I’m newly registered. ✋My name is Dori and I just posted an introduction of myself.going by user name of victorious69. However my post insisted I use someone’s name to send my post and I was trying to locate a moderator as a recipient. Can you help?

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@virtuous69 Tagging Dori so she can see this response from you @JustinMcClanahan

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