Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@robertrm

Hi, my name is Bob 58 yo and I live in Rancho Mirage, CA. I was in a skiing accident 16 years ago and did a lot of damage to my back. Have had 4 surgeries over this time with the last being a spinal fusion from T1 to pelvis. Have been on opiods and gabapentin for 2 years to help manage incredible relentless pain. Had to stop working in March 2014. My mental state is very poor. Very depressed. I keep telling myself that this is not going to kill me. Others are in as much pain but not going to make it. My spouse is awesome and supportive. But I feel hopeless often and a burden. Has anyone else been to this point?

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So true that others don’t understand.  They want you to suffer silently and think you can pray etc and it will go away.
Judy

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@janie56

My name is Janie. I have a number of problems health wise. I have osteoarthritis. Now the doctor figures I have myo facia syndrome and fibromyalgia . I also have three stents. Two in the heart one in the leg. Now I have four narrowings. Two in each leg. I do get very depressed as I am a very social person. But I have spent this last year in so much pain, I wasn’t able to go out very much. I am on oxycocet and a stronger med along with that. Nothing seems to work. I’ve had saline injections in my legs. Still no relief. I have started self hypnosis which seems to relax the muscles and nerves and gives some relief.

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Wow and I think I have it bad.  I fell last week and now have more back pain and shoulder pain.  I am going to ask my doctor for a whole body scan.  I want to know just what problems with my back and shoulders.  I have significant relief with my pain medications.  I take 100mgs of morphine twice a day and up to 60mg of oxycodon.  When sitting I have very little pain.  My husband has to help me dress because of my back and arms.  He is so good about it.  I’m blessed to have him.

Judy

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@judyringelestein

I look forward to many comments on general chronic pain. I Judy and have shoulder pain,knee pain, general all over pain. I am taking 200mg of morphine sulphate and up to 5 ovycodone 10 mg pills a day. It works very well for me. Keeping my fingers crossed.

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The doctors have given me no name for the knee pain but I believe it and the shoulder arthritis. I’ve had a cortisone shot in one shoulder that did nothing for me. I then went to another doctor who specializes in sport injuries. His shot worked wonderfully. I have an apt for the right arm I reinjured in a fall. That injury hurts mostly at night and is very bad. I’m trying to discover the position to have it in at night. I walk with a walker in the house (one upstairs and another downstairs) and have a walker at each of my children’s homes. I have to use a scooter for any out of the house errands or travel. Thank god I have one. I’ve use it in South America, Mexico, US, Alaska, Hawaii, Canada, on cruises, etc. A lot of my pain is just general all over pain.
Judy

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@jeriliz

Hi everyone,
My name is Jeri. I have a degenerative disc disease, spinal stenosis, and scoliosis. I had very unsuccessful shoulder surgery last year that left me in more pain than I had before. I also fell and broke my hip three years ago and have some residual pain from that. There’s more but not for now.

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Hello @jeriliz, thank you for sharing a bit about yourself with the other members of the chronic pain group. Here a few conversations I think you may want to check out as they have members who have discussed having degenerative disc disease:

– Harrington rod and low back pain, http://mayocl.in/2njBBFH
– Herniated disc pain, what helps? http://mayocl.in/2m4lRFF

In those discussions you will meet other members who also have degenerative disc disease.

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My husband is so good to help out to. I just get feeling so bad for him that he has to do things that I used to do. Every time I go to the doctor they find something else. Gets very depressing. So I try not to say to much so I don’t depress him. The doctors want me to move more but some days is so hard to get moving. I do push myself. I refuse to give in to this pile of medical problems. Have you tried acupuncture for your shoulder Judy? I hurt mine about five years ago. Couldn’t move it without spasms. I found that helped me very much.

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Judy I know that pain. You are afraid to move. I had that pretty bad for eight months. I never used so many pain creams. Lol. The drug store was happy, kept them in business lol. All joking aside, I hope you start feeling better soon. That pain is terrible. Hope the doctor can help you out.

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Hi Janie, I’m newly registered. ✋My name is Dori and I just posted an introduction of myself.going by user name of victorious69. However my post insisted I use someone’s name to send my post and I was trying to locate a moderator as a recipient. Can you help?

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@virtuous69

Hi Janie, I’m newly registered. ✋My name is Dori and I just posted an introduction of myself.going by user name of victorious69. However my post insisted I use someone’s name to send my post and I was trying to locate a moderator as a recipient. Can you help?

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Hello Janie. First, welcome to Connect. I am the moderator for the Chronic Pain group.

What sort of issue are you having? If you want to reach me privately, feel free to follow these instructions:

Here’s how to send private message:
1. Click the member’s @username.
2. Click the envelope icon in their profile.
3. Write a subject and your message.
4. Click Send Message.

I would love to help you resolve any issue you may be having.

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Hi Justin. I have posted and talked with one member. I’m thinking I did that wrong. I apologize as I’ve never belonged to a site like this before. Im lost. Maybe this site is to advanced for me. Im older and not to good at this. This seems complicated to me. I thought you go to chronic pain site. Hit it and start a conversation. Again. Sorry if I did it wrong.

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@virtuous69

Hi Janie, I’m newly registered. ✋My name is Dori and I just posted an introduction of myself.going by user name of victorious69. However my post insisted I use someone’s name to send my post and I was trying to locate a moderator as a recipient. Can you help?

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Hello Justin. New Member

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@jeriliz

Hi everyone,
My name is Jeri. I have a degenerative disc disease, spinal stenosis, and scoliosis. I had very unsuccessful shoulder surgery last year that left me in more pain than I had before. I also fell and broke my hip three years ago and have some residual pain from that. There’s more but not for now.

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Jeri, i can relate to your degenerative disc disease, spinal stenosis and scoliosis as I have all 3 myself. I just had outpatient spinal surgery and am still dealing with my L4 herniation which means my right lumbar region is in pain even with pain medication. I have the most pain at night which makes it hard to sleep. I will be waiting to hear more about your situation. I am 68 years old. Gail B

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@jeriliz

Hi everyone,
My name is Jeri. I have a degenerative disc disease, spinal stenosis, and scoliosis. I had very unsuccessful shoulder surgery last year that left me in more pain than I had before. I also fell and broke my hip three years ago and have some residual pain from that. There’s more but not for now.

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Thank you, Justin. I am not sure how to get to those discussions. I’m sorry. I am not technical at all. I depend a lot on my daughter. Any help is deeply appreciated.

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@timmckinney

Hi everybody. I’m Tim and I suffer from peripheral neuropathy. Hoping to reach out for as much advice as possible in pain management issues. Thanks for this forum.

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@timmckinney

Suffer is a good word to apply to peripheral neuropathy pain. My feet hurt all the time, with a baseline of 3. Walking very far moves it to 5 or 6. Then, when I sit down and recline, the pain goes to 8, with awful burning that would have me in tears if I were one to cry at all. I had to postpone getting a spinal cord stimulator implant until April because my wife is in New Hampshire, to be with our daughter, who’s having her first baby any day now. She won’t be back home until April 5. One more month to go, and no guarantee that it will help. I don’t know what I’ll do if it doesn’t work. I’ve taken about as much as I can. One good thing is that I finally got an appointment for next Monday with a therapist. I hope he’s a good one. I did find one I really like, but he’s an hour away. Obviously, the morphine sulfate contin, Cymbalta, Meloxicam, Clonazepam and Oxycodone aren’t doing the job. The local hospital and clinic have imposed a 100mg max for opiates, and I can’t go any higher than I am. I’m considering Marijuana, but if I do that, they will stop my opiates, even though it’s legal here in Oregon. Prayer does work, I know, but so far I’m still on the miracle waiting list.

Jim

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@janie56

Hi Justin. I have posted and talked with one member. I’m thinking I did that wrong. I apologize as I’ve never belonged to a site like this before. Im lost. Maybe this site is to advanced for me. Im older and not to good at this. This seems complicated to me. I thought you go to chronic pain site. Hit it and start a conversation. Again. Sorry if I did it wrong.

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@janie56

To get Justin’s attention, try entering his whole name, which is @JustinMcClanahan.

I’m 66, and understand how challenging it can be to navigate in online groups. Keep trying. You’ll get it.

Jim

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@janie56

Hi Justin. I have posted and talked with one member. I’m thinking I did that wrong. I apologize as I’ve never belonged to a site like this before. Im lost. Maybe this site is to advanced for me. Im older and not to good at this. This seems complicated to me. I thought you go to chronic pain site. Hit it and start a conversation. Again. Sorry if I did it wrong.

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Thank you so much Jim.

Liked by virtuous69

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