Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Profile picture for guga @guga

@gingerw Thank you so much, I will continue on my search for a new PCP

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@guga Just as we were setting up to move to this new state/area, it became clear I was entering into yet another serious health issue. I actually reached out to someone here on Mayo Connect, whom I did not know, but did realize this person was "in the area" of my new residence. And was able to connect with a wonderful specialist, who also connected me to my other great specialist. This person gave me their opinion as to health options around [it's pretty much a medical desert here], which were confirmed by some other residents. I was fortunate to find a good FNP [family nurse practioner] as my primary care.
Ginger

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Profile picture for jmcamden9687 @jmcamden9687

Hi ,The pain Dr. would be doing stem cell injections. My husband needs a spinal decompression. He has a MRI scheduled , but can't do the surgery until spring 2020. He was hoping to get a little relief between now and then. He doesn't take any pills for pain only marijuana.

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@jmcamden9687, Good afternoon. I would like to welcome you to Connect also. I have a particular interest in the way folks examine and select options for medical cannabis to relieve pain. Would you feel comfortable responding with the products that your husband finds particularly effective? I will then add that information to my list of what might be beneficial for someone with similar symptoms. Thanks so much. I salute your efforts as a caregiver. It is best to have a "buddy" to help negotiate these aging issues. Take good care and be free of suffering. Chris

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Profile picture for lioness @lioness

@gingerw Ive found out yesterday that in Calif. Lyrica is a controlled substance so I cant get refills have to talk with my Dr. each time Its not a narc. or opiod what are they doing to us fibro people who need this med? All this is so discouraging for us who need pain meds. We aren't street druggies

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Here in New York, I need to present my drivers license as it is a controlled substance. Again, we go back to those who abuse dictate the rules for those who don't abuse. I'm just thankful to be one who does not abuse.

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Profile picture for lioness @lioness

@gingerw Ive found out yesterday that in Calif. Lyrica is a controlled substance so I cant get refills have to talk with my Dr. each time Its not a narc. or opiod what are they doing to us fibro people who need this med? All this is so discouraging for us who need pain meds. We aren't street druggies

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Hi, Lioness and all - I've been in Virginia and Delaware the last few years, Lyrica is a 'controlled substance' here too - gabapentin as well. As soon as we say the name of the medicine, pharmacists, nurses, and doctors treat us like we're criminals - they start interrogating us. It's scary -- what if we accidentally say something they think is suspicious? Do they withhold our medicine? Peggy

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scary for sure what next ?

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Profile picture for Ginger, Volunteer Mentor @gingerw

@guga So many stories we hear here from people who have been blocked from getting the pain management they truly deserve, shows me that the people who do "drug shop" have ruined for the rest of us. While I can certainly see the opioid crisis is in need of regulating, it is frustrating, isn't it? I hope that with your documentation of what has happened to you, with you, you will be able to get some relief and help. Shopping for a new PCP is always difficult, made more stressful by having an existing problem. Perhaps friends and acquaintances could give you a few names of doctors they are pleased with, to help in your search? You may have to extend your area of search, if you can ambulate.
Ginger

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The problem has been a increased with the opening of these pain clinics where you have to stand in line up to 2 hours or more get your medication or talk to somebody as well as urine tests. They treat us like criminals and we're there to get what we need as we don't get high. The second most things is that these pain doctors who all needs clinics throughout make anybody Distributing opioids. The way they make their money as they want to give you a jections which is the worst thing you can get done about knowing what it could cause.I have been just diagnosed with Arachoiditis a disease which can be caused buy needles and surgery. If you are going to other medical doctors to try and get your pain under control they want to get you out of there as they don't need you as a customer. It's just gone completely the other way in the way that dealing with her our pain medication. I am off opioids now and I'm following the special doctor's care and it's working exercise

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You're right I was treated as a criminal and a drug abuser at a pain clinic at a mistake CVS made not of my own doing. there is basically not much of a relief for me unless I do that some type of pain medication the problem is who will prescribe it with clinics popping up for methadone everywhere it's easier to receive methadone than it is to receive a Tylenol with codeine or Tylenol with whatever and I tell you that I am in so much pain that I cry out every single day and have no relief. I refuse the injections after the last one that cause pain throughout my body so badly that I could not move for 3 days so the pain specialists the other one that they sent me two would not deal with me because I will not have another injection and refused so he refused to treat me so now what do I do now I'm looking for home remedies such as marijuana tea leaves and try to see if that will help the only thing it is illegal in the state of South Carolina even medical marijuana is illegal here they would rather you use CBD which is not regulated and no one knows what exactly is in it and as you see a lot of people are getting sick from it and dieing.

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Profile picture for guga @guga

You're right I was treated as a criminal and a drug abuser at a pain clinic at a mistake CVS made not of my own doing. there is basically not much of a relief for me unless I do that some type of pain medication the problem is who will prescribe it with clinics popping up for methadone everywhere it's easier to receive methadone than it is to receive a Tylenol with codeine or Tylenol with whatever and I tell you that I am in so much pain that I cry out every single day and have no relief. I refuse the injections after the last one that cause pain throughout my body so badly that I could not move for 3 days so the pain specialists the other one that they sent me two would not deal with me because I will not have another injection and refused so he refused to treat me so now what do I do now I'm looking for home remedies such as marijuana tea leaves and try to see if that will help the only thing it is illegal in the state of South Carolina even medical marijuana is illegal here they would rather you use CBD which is not regulated and no one knows what exactly is in it and as you see a lot of people are getting sick from it and dieing.

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I have even gotten cactus fruit and made juice as well as other home remedies to try to relieve some of the pain in my body swelling etc nothing is working so our use the emergency room as a step towards relief because it is the only place that I can go to that will service me as a patient in pain and they will only service this for 5 days and then after the 5 days I have a little bit of relief for maybe a day or so until all the medication wears off and I start all over again in tears from the pain right now I can't walk my left ankle is so swollen as well as my knee and the pain is going from my back down my back of my legs on my buttocks all the way down to the bottom I also have numbness on the right leg and I still have to work this way and just teeter from one leg to the other

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Profile picture for guga @guga

I have even gotten cactus fruit and made juice as well as other home remedies to try to relieve some of the pain in my body swelling etc nothing is working so our use the emergency room as a step towards relief because it is the only place that I can go to that will service me as a patient in pain and they will only service this for 5 days and then after the 5 days I have a little bit of relief for maybe a day or so until all the medication wears off and I start all over again in tears from the pain right now I can't walk my left ankle is so swollen as well as my knee and the pain is going from my back down my back of my legs on my buttocks all the way down to the bottom I also have numbness on the right leg and I still have to work this way and just teeter from one leg to the other

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I've had this pain maybe not as severe as you are now but it's somewhere for the middle of the back around the L2 on down and I finally found out what was causing my pain. Look up what I just told you about that condition AA we call it and go on this chat connection I look up that condition I told you about that I have and you might get a war inside maybe you have what we have. Unless you get an MRI with contrast on your pelvic you will never know but this condition is caused by injections and bad surgery or injury and doctors do not want to find it because they think they could be liable due to their procedures on you over the years. That's why this disease is so rare and no research and nobody wants to touch a bit or or talk about it. Male only wants to give me a stimulator which is not a good thing with this condition. I am off opioids I have gone to this doctor information who candles this disease and is really help me with the medication ideas as well as the vitamins and exercise that I'm doing. I'm off of ibuprofen no pain medication except when needed and every third day maybe. Sleeping all night without waking up every 2 hours which I've done for 2 years. I'm not saying you have it but go to that condition on this connection.
ARACHOIDITIS. This conditions is compared to being diagnosed with terminal cancer and I hate to be so dramatic, but it doesn't have to be that way and that's what I'm fighting for.

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