Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

I have a pinched nerve at c1 and C2, which was caused by a whiplash in an automobile accident. Have been on pain meds prescribed by a pain management doc. Was told an operation could cause a paralyzed spine!

@pedaboo

I just joined the pain group. I have a herniated disc and the pain is severe in my right leg. I’ve been in PT for 4 months. I was almost pain free after the 3rd month. Then it came back with a painful vengeance. Lidocaine prescribed pad helps me slee but daytime pain is intense. No help yet from acupuncture. Would chiropractor help? Suggestion? 89 years old

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Thank you. I’ll look into it

Hi, I am christineK and I have fibromyalgia, scoliosis, deteriorated disk and arthritics (back and fingers). Looking for others who deal with pain on a constant basis. So glad I found this site. First diagnosed with FMS 24 years ago.

Liked by pat3316

@christinek

Hi, I am christineK and I have fibromyalgia, scoliosis, deteriorated disk and arthritics (back and fingers). Looking for others who deal with pain on a constant basis. So glad I found this site. First diagnosed with FMS 24 years ago.

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@christinek Well, if you want to talk about your aches and pains, this is the place. Welcome. It’s nice to have a connection with people who understand, and when they ask how you’re doing, it’s ok to say something beside “fine”. It’s also a great place to learn, and to see that you’re not alone.

Jim

Liked by christinek

@christinek

Hi, I am christineK and I have fibromyalgia, scoliosis, deteriorated disk and arthritics (back and fingers). Looking for others who deal with pain on a constant basis. So glad I found this site. First diagnosed with FMS 24 years ago.

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Hello @christinek, I would like to add my welcome to @jimhd‘s.

You mentioned a few medical conditions that have conversations happening elsewhere on Connect. You can check them out here:

– Fibromyalgia pain, http://mayocl.in/2hgUGcv
– Searching for Adults living with scoliosis, thoracic stenosis, http://mayocl.in/2jA1y63 (brief but could use your input)

@christinek, would you mind explaining FMS is? In my own search I could only find functional movement systems, but that is a screening tool used by medical providers. I look forward to seeing your posts in other discussions christinek.

Liked by christinek

I’m Renee and have suffered from chronic depression for about 30 years and fibromyalgia for about 10 years along with sleep problems. I’ve heard of the Fisher-Wallace stimulator and am looking for some real life reports about it.

@reneejdcc

I’m Renee and have suffered from chronic depression for about 30 years and fibromyalgia for about 10 years along with sleep problems. I’ve heard of the Fisher-Wallace stimulator and am looking for some real life reports about it.

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Hello @reneejdcc, welcome to Connect and the Chronic Pain group. Thank you for sharing a bit about yourself to the other members of the group. Here are a few discussions you may want to check out to help you get started on Connect:

– Fibromyalgia pain, http://mayocl.in/2hgUGcv
– Depression, http://mayocl.in/2med70Q
– Been treated for major depressive disorder most of my life, http://mayocl.in/2jTNxQI

Renee, I hope these conversations help get you started on Connect and I look forward to reading more about you in your future posts. Do not hesitate to ask me any questions.

@christinek

Hi, I am christineK and I have fibromyalgia, scoliosis, deteriorated disk and arthritics (back and fingers). Looking for others who deal with pain on a constant basis. So glad I found this site. First diagnosed with FMS 24 years ago.

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That is great to hear! I tried another site and it was very depressing reading others posts.

I am Charlton Williams and I have RSD in my body. It is in phase 2 where I find myself in roaming chronic pain all over my body. The pain stays at a level at which I have been able to withstand from minute to minute. I live right now and the pain level is at 6-7 most of my life. The main pain is stabbing and constant throbbing when my foot is in the vertical position. I have many pains but I never know what is going to happen every day. I am in constant pain.
I have a doctor that tells me to control the pain with my mind. I told him to let me clamp an alligator around his foot and leg with hot teeth. He does not understand. I am relegated to the fact that I am dying from RSD. Thanks and I look forward to your comments and research. HELP!!!!!!

@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Sharon,
(I think posted about the headaches/nerve/ablation/burning) I haven’t officially introduced myself until now, but I’m Jen. I’m very interested in learning about the nerve ablation/burning and what it’s official name is. I’ve been in bed for 4-5days now because of a headache/neck/back pain. I get horrible daily headaches/migraines, I have fibromyalgia pain, I also broke my left humerus and had 5 repair surgeries getting it together again that still cause pain. As a result I’m in constant pain. I’m very interested in what type of Dr deals with the nerve procedure, what it’s called, and how it worked for your headaches. Between pushing drugs that cause me bad side effects, then taking away the meds that do work because of laws, and living in constant pain, I’m very glad this site exists and there is somewhere to talk and learn. Thank you, Jen

@christinek

Hi, I am christineK and I have fibromyalgia, scoliosis, deteriorated disk and arthritics (back and fingers). Looking for others who deal with pain on a constant basis. So glad I found this site. First diagnosed with FMS 24 years ago.

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@JustinMcClanahan I have had the medical community document Fibromyalgia as FMS, Fibromyalgia Syndrome. I’d like to hear from @christinek to see if she is referring to this acronym.

Charlton,I too have RSD/CRPS starting in my right foot from an ankle injury and surgery. It also has spread to other parts of my body including internal systems. In fact, I visit my GI doctor tomorrow and though she has heard of CRPS, she has never heard of it affecting the body’s sphincters so she probably won’t be able to treat this very well. The orthopedic surgeon who messed up at the front of this told me that “pain is perception” while the plate he inserted was slicing my peroneal tendons. Try to find a pain doctor with experience of RSD/CRPS. Mine is very supportive. It is scary, but somehow it is necessary to lift up oneself and look for the good things that do exist though it can be extremely difficult to see through the pain and uncertainty. In terms of research, you have probably found that this is an area where much needs to be done and it feels like nothing is happening. I am in the process of participating in a longitudinal study of folks with RSD/CRPS. I have found that this site helps because those who are on it don’t need any explanations and truly get it. Be strong.

@charwill234

I am Charlton Williams and I have RSD in my body. It is in phase 2 where I find myself in roaming chronic pain all over my body. The pain stays at a level at which I have been able to withstand from minute to minute. I live right now and the pain level is at 6-7 most of my life. The main pain is stabbing and constant throbbing when my foot is in the vertical position. I have many pains but I never know what is going to happen every day. I am in constant pain.
I have a doctor that tells me to control the pain with my mind. I told him to let me clamp an alligator around his foot and leg with hot teeth. He does not understand. I am relegated to the fact that I am dying from RSD. Thanks and I look forward to your comments and research. HELP!!!!!!

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Hello @charwill234, welcome to Connect. I am sorry to hear your desperation that you are feeling with pain in regards to your Chronic Pain. You have come to the right place to meet other members who have experienced things quite similar to yourself. Sometimes just Connecting with others can help. You will find many of the members on this site have advocated strongly with remaining strong and active to seek out medical professionals who will address your concerns.

Charlton, here is a conversation you may want to check out: After knee replacement I developed severe RSD, http://mayocl.in/2cX10nN

You will find other members in an active discussion regarding their RSD/CRPS diagnosis, symptoms, and treatments.

I have trouble with dysphagia, and wonder if there’s a discussion group going where I can learn more than the little the doctor has told me.

@jimhd

I have trouble with dysphagia, and wonder if there’s a discussion group going where I can learn more than the little the doctor has told me.

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@jimhd, my search for other members didn’t turn up any recent conversations on dysphagia, but I’ll keep digging. In the meantime, I reccomend starting a new discussion in the Digestive Health group here, http://mayocl.in/292wLFY.

By creating a new discussion in the Digestive Health group, we may be able to create a new central location for members to share his or her dysphagia experiences.

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