Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@lorirenee1

@1prettymess I read all of your long post. I am crying. I thankyou for sharing such an honest, heartfelt post. I too, suffer with neuropathic pain. It is up and down, but is relentless. I cannot tell you how much your post touched my heart. I feel God awful for you. I do not know what pain patients do. I feel like there is really nothing very good. Some things, but not a lot. I just wanted to say thanks for sharing, and as one human to another, my heart goes out. Sometimes I wish my heart did not feel what it does. I can feel people suffering. Your post put me close to you. Thank you. Lori Renee

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Thank you Lori as I know you feel the pain that we all go through. You Are Not Alone, but the problem is is that the right people aren't listening and therefore we have to fend for ourselves. Don't listen to the all the doctors have to say because they're limited and they're worried about liability. We aren't and therefore we can do what the hell we want to to save our life and our emotions along with our pain. Love you and don't forget that. Don

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@rwinney

I second this…
@1prettymess ! ! !

No doubt you are a warrior, inspiration and full of perseverance. As a result, you may be your own worst enemy.

I fought quite hard before consenting to try partial disability. I was so concerned about letting my employer and employees down, my husband and children down, losing income/benefits, missing my customers, my routine…the only way of life I had ever known. I completely failed to realize that I was allowing myself to be let down by constant pain, confusion, anxiety. depression and fear.

Reality was that I wasn't performing up to par in any aspect of my life so, essentially I was letting others down. Unable to perform up to my potential as a worker, a wife, a mother and it frustrated the crap out of me. Now throw pain in the mix!

My plan was to figure out my health, fix it and live happily ever after. Didn't work out that way and me being the control freak I was thought I had all the answers. NOT.

Don't want to make this about me because it's about you and I truly hope you will cut yourself some slack. No-one in your position who is suffering in this way should have so much looming over them. Pain and not knowing what comes next is bad enough.

Keep reaching out for support and help. Its ok to do so and own the fact
that you need it and deserve it.

All my good wishes to a very strong woman. Keep the faith and if nothing more, we are hear to listen.

Rachel

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@rwinney

Rachel, I went through a similar process of figuring out that I was non functional and taking the step of retiring, and 10 years sooner than I thought. At 55, I was fortunate to get Medicare and SS disability. We would have had no income, otherwise. Even so, we're certainly not getting rich.

Jim

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@jimhd

@rwinney

Rachel, I went through a similar process of figuring out that I was non functional and taking the step of retiring, and 10 years sooner than I thought. At 55, I was fortunate to get Medicare and SS disability. We would have had no income, otherwise. Even so, we're certainly not getting rich.

Jim

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Here, here Jim. I can relate. Preparing for Medicare and choosing my supplemental insurance for the first of the year. New territory.
Rachel

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@rwinney

Here, here Jim. I can relate. Preparing for Medicare and choosing my supplemental insurance for the first of the year. New territory.
Rachel

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@rwinney

We found a good financial advisor who takes care of finding the best secondary. He's been a big help. Our secondary medical insurance is with IAC (Individual Assurance Corp.), and prescription is with Humana. I like the 90 day mail order pharmacy at Humana. Of course a couple of meds are controlled substances so they can't do more than 30 days on them. But they mail out prescriptions a week ahead of the refill date so we don't run out of anything.

Jim

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Going on 3rd year of Medicare with a Plan G supplement. Its around $100 a month and after an annual deductible of $149 it covers everything (that medicare covers). I never pay a cent over the initial deductible. EnvisionRX is my Part D – its around $15 a month. I think all Part D's are pretty much the same. If you know you are going to have a lot of medical you need either F or G, F covers everything but premium difference is much more than the $149 deductible with G. Of course premiums vary based on gender and the state you live in. Good luck.

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@moemoe

Aug2019. No physical therapy. There is a lot of push for a quality of life hip replacement, but given the penchant for infection, I'm reluctant

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@moemoe

I can understand your reluctance after your past experiences.

I urge you to seek a second opinion. Have you sought a second opinion from a multi-disciplinary health care facility like a university medical center or a Mayo Clinic?

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@jimhd

@rwinney

We found a good financial advisor who takes care of finding the best secondary. He's been a big help. Our secondary medical insurance is with IAC (Individual Assurance Corp.), and prescription is with Humana. I like the 90 day mail order pharmacy at Humana. Of course a couple of meds are controlled substances so they can't do more than 30 days on them. But they mail out prescriptions a week ahead of the refill date so we don't run out of anything.

Jim

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Thanks Jim. Any and all info helps!
Rachel

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@feckert52

Going on 3rd year of Medicare with a Plan G supplement. Its around $100 a month and after an annual deductible of $149 it covers everything (that medicare covers). I never pay a cent over the initial deductible. EnvisionRX is my Part D – its around $15 a month. I think all Part D's are pretty much the same. If you know you are going to have a lot of medical you need either F or G, F covers everything but premium difference is much more than the $149 deductible with G. Of course premiums vary based on gender and the state you live in. Good luck.

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Thank you for this information, it definitely is something a lot of us need to hear in order to help us select a better quality of life

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@feckert52

Going on 3rd year of Medicare with a Plan G supplement. Its around $100 a month and after an annual deductible of $149 it covers everything (that medicare covers). I never pay a cent over the initial deductible. EnvisionRX is my Part D – its around $15 a month. I think all Part D's are pretty much the same. If you know you are going to have a lot of medical you need either F or G, F covers everything but premium difference is much more than the $149 deductible with G. Of course premiums vary based on gender and the state you live in. Good luck.

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Thank you very much for the information. My biggest concern, given my diagnoses and what that may bring for the future, is the ability to go out of network for Doctors. Also, coverage for my more expensive meds that have not been covered traditionally like Lyrica CR, Cambia and Emgality.

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If your concern is network, get a Medicare Supplement, NOT an Advantage Plan. For Advantage, the feds give your Medicare premium to a private company like United Healthcare, and it operates like an HMO with a network and a huge interest in keeping the cost of your care below the "capitated" amount they are paid by CMS.
As far as the prescription costs, when you are looking at a Part D provider, check their formulary to see if it is covered and what your costs will be. Its a bizarre system, you can't count on a steady monthly cost because you go through different phases. You might pay a $250 copay in January because it includes your deductible and $50 in February then suddenly in June it goes back up and then goes way down again in Sept depending on what phase you are in and your overall (not individual drug) out of pocket costs are. Honestly, I haven't cracked that nut, and I use GoodRX for my pain meds because they arbitrarily cut them on me earlier in the year.

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PS – if you have a supplement, you can go to any doctor that accepts Medicare. That was my point on supplement vs. advantage. Advantage includes other stuff like dental, vision, drug, and Silver Sneakers (yeah, we will use that) but you are limited to their network.

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@feckert52

If your concern is network, get a Medicare Supplement, NOT an Advantage Plan. For Advantage, the feds give your Medicare premium to a private company like United Healthcare, and it operates like an HMO with a network and a huge interest in keeping the cost of your care below the "capitated" amount they are paid by CMS.
As far as the prescription costs, when you are looking at a Part D provider, check their formulary to see if it is covered and what your costs will be. Its a bizarre system, you can't count on a steady monthly cost because you go through different phases. You might pay a $250 copay in January because it includes your deductible and $50 in February then suddenly in June it goes back up and then goes way down again in Sept depending on what phase you are in and your overall (not individual drug) out of pocket costs are. Honestly, I haven't cracked that nut, and I use GoodRX for my pain meds because they arbitrarily cut them on me earlier in the year.

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Hmm…that is bizarre. I'm not crazy about fluctuating monthly costs. I will continue on with my research. Thank you for the advice. Very helpful.
Rachel

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