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Kelsey Mohring
@kelseydm

Posts: 299
Joined: Feb 24, 2015

Chronic Pain members - Welcome, please introduce yourself

Posted by @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

REPLY

@mdmo

Hi, I'm a female 60 years old. I've lived with chronic pain since I was 27 years old. I was working with disabled children at the time and I was performing a "safety hold" on a child so he wouldn't injure himself or the other children until we could get him to the area where he could vent his anger in a safe place. Anyway he thrusted so hard he caused my back to twist and I ended up with 3 discs herniated in my lumbar area. Since then I've had 4 spine surgeries, hardware, spinal cord stimulator and a implanted intrathecal morphine pain pump. I've had racz catheter procedures done to get the steroid medication through spinal scar tissue. Epidural steroid injections ( more than what is medically recommended) I've had Radiofrequency ablation procedures on my SI joints to burn the nerves, physical therapy, aqua therapy, so……I now have Arachnoditis due to the dura space being penetrated by needles requiring blood patches because my spinal fluid was leaking out.
In 2013 I was diagnosed at the hospital after having a Adrenal crisis. I was rushed to the ER and told after 2 tests that i had Addison's disease. Due to having all those epidural, trigger point, and other steroid injections my adrenal glands had stopped producing the hormones that are needed to live. Now I have to take daily steroids, Hydrocortisone 15 mg in divided doses each day. Also I have to take a medication to keep my fluids in balance. My blood pressure can bottom out if i dont take it and eat lots of salty things. Usually i just take salt tablets.
I have had pretty good results with the intrathecal morphine pain pump. But like everything else it stops working after a few years. I've had mine 5 years. I'm weaning down my dose by 15% weekly. At this rate I'll be off the pump in about 9 weeks not having to incur any withdrawal symptoms.
In the mean time they are giving me Tramadol 50 mg 3 times a day and Baclofen 10 mg 4 times a day for the terrible spasticity that I have each day.
My Faith and classical music is what makes each day bearable. So enough about me…… 🙂

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Jen what do you do about your bulging disc I,be Ben in pain all day did you find some relief from it?Linda

@ursweetpam

Hi, I'm Pam. I am 3 years 3 months past my failed Laminectomy/ microdiscectomy. I herniated my L5-S1 but was labeled as a pill seeker until my Dr decided she was sick of seeing me and sent me for the MRI. I suffered for so many years, barely able to get out of bed some days and I had a job that required heavy lifting. Anyway, while I was in surgery, the surgeon said he found I had many arachnoid scars and a large arachnoid cyst that needed drained and that the damage was dar qorse than showed up on the MRI. He said my bones were grey and brittle and that my nerve roots were smashed, glued together and frayed.
I have been suffering from horrible pain in my left leg, all the way to my toes from nerve damage and I have back pain still. I had a spinal cord stimulator put in October of 2015. That required another laminectomy to my thoratic spine and it didn't give me the relief I had been hoping for. Hoping i can chat with others who have been through similar situations as I have and maybe get some answers to some annoying and sometimes painful problems. Thanks.

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Thanks @nmo2016. I'll take all the prayers you can give. I try not to get discouraged especially when I know others are suffering much worse than I am. Some days are better than others. Keeping you in my prayers too.

@ursweetpam

Hi, I'm Pam. I am 3 years 3 months past my failed Laminectomy/ microdiscectomy. I herniated my L5-S1 but was labeled as a pill seeker until my Dr decided she was sick of seeing me and sent me for the MRI. I suffered for so many years, barely able to get out of bed some days and I had a job that required heavy lifting. Anyway, while I was in surgery, the surgeon said he found I had many arachnoid scars and a large arachnoid cyst that needed drained and that the damage was dar qorse than showed up on the MRI. He said my bones were grey and brittle and that my nerve roots were smashed, glued together and frayed.
I have been suffering from horrible pain in my left leg, all the way to my toes from nerve damage and I have back pain still. I had a spinal cord stimulator put in October of 2015. That required another laminectomy to my thoratic spine and it didn't give me the relief I had been hoping for. Hoping i can chat with others who have been through similar situations as I have and maybe get some answers to some annoying and sometimes painful problems. Thanks.

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@lioness my mom used to use that on my brothers for growing pains! I remember her rubbing their legs when they played to hard and had leg pains at night. Mine isn't restless leg although I used to get that all the time. I had a b-12 deficiency and once started taking it that stopped. I can literally see my muscles jumping in my leg and if I move the wrong way, I get a weird kind of cramp from my thigh to my foot. Sometimes if I push really hard behind my knee, I can make it stop along with the stinging in my foot but it's only temporary and I can't sleep that way. My pain Dr had a cream compounded and shipped to me that helps some. I put it everywhere and then wait 10 minutes and follow with lidocaine cream. I'm not sure what exactly is in the first cream but I do know it has Gabapentin and some sort of muscle relaxer that is absorbed through the skin but they said it has something for pain in it as well. I may have to look up Arnica cream though.

@lioness

@jjwest this sounds similar to a tens unit but the wires are inserted ,do you wear on the outside a power box or something like this

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@lioness it sort of is like a tens but no one else can feel it if they touch you and it doesn't really feel the same. The wires (paddles in my case) are implanted between the spine and the vertebrate and the wires are funneled under the skin to a battery under the skin either in the butt, back or like mine, the belly. Its sort of like what they use for people who have pacemakers. Similar battery
You use a hand held device to adjust the amount of buzz, intensity and to switch between programs. I have to charge mine every 3 or 4 days but some come with a non rechargeable battery.

Liked by lioness

@ursweetpam

Hi, I'm Pam. I am 3 years 3 months past my failed Laminectomy/ microdiscectomy. I herniated my L5-S1 but was labeled as a pill seeker until my Dr decided she was sick of seeing me and sent me for the MRI. I suffered for so many years, barely able to get out of bed some days and I had a job that required heavy lifting. Anyway, while I was in surgery, the surgeon said he found I had many arachnoid scars and a large arachnoid cyst that needed drained and that the damage was dar qorse than showed up on the MRI. He said my bones were grey and brittle and that my nerve roots were smashed, glued together and frayed.
I have been suffering from horrible pain in my left leg, all the way to my toes from nerve damage and I have back pain still. I had a spinal cord stimulator put in October of 2015. That required another laminectomy to my thoratic spine and it didn't give me the relief I had been hoping for. Hoping i can chat with others who have been through similar situations as I have and maybe get some answers to some annoying and sometimes painful problems. Thanks.

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Thank you so much and I just got finished telling my mother about people hurt much more than I do.

@hosta

Hosta here, Has anyone tried the Drug Delivery Therapy? I went to a seminar on this type of pain management! I want to look into this. Input would be appreciated.

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@mdmo thanks for the info about the pain pump. My pain Dr keeps pushing me to have one but I've been dragging my feet with it mostly because I didn't want another surgery. I have a neighbor who has one and he likes his but he never goes anywhere. Most of my family live a great many miles from me, one daughter lives in Germany. I usually spend a month at a time there. Knowing that I may have trouble getting my medication helps me to decide.

Liked by mdmo

Hi Everyone just started a discussion about bulging discs in my neck at C3 and C4, L5 and bursitis in my hips. Also suffer from coccydynia which I've had since 2001; inflammation of the coccyx. All of this has impacted my life and I'm now very anxious and depressed. Don't sleep well either. Can anyone give me some advice as to how to live a "normal" life when I don't feel normal.

Nice to meet you @ psearby17! It might be a good idea to mention how you've been feeling to your family dr or pain Dr, if you have one. It's common for someone to develop depression and anxiety when they are is constant pain. There thing your Dr can do to help with the. I have major depression, all my life. It did get worse after my failed back surgery and my Dr needed to increase my dose.
Do you have grown children or parents that you enjoy visiting with? Even something like that or a phone call to a friend is just enough to distract you from the pain. It's about all I can do these day since walking is so difficult. I know about the inflamed coccyx. I broke mine during a forcep delivery of my oldest child. I still have to sit on a hard chair with a leg under my butt to take the pressire off. My mom's was so bad it poked through the bottom of spine and thru the skin! Have you tried strategically placing pillows in a way that takes the pressure off that part of your spine? Have you tried a tens? There are good ones on Amazon if you're interseted. Have you spoke with a surgeon or pain management yet? You need to sleep or it's just going to make things worse. Keeping you in my prayers {{hugz}}

@mdmo

Hi, I'm a female 60 years old. I've lived with chronic pain since I was 27 years old. I was working with disabled children at the time and I was performing a "safety hold" on a child so he wouldn't injure himself or the other children until we could get him to the area where he could vent his anger in a safe place. Anyway he thrusted so hard he caused my back to twist and I ended up with 3 discs herniated in my lumbar area. Since then I've had 4 spine surgeries, hardware, spinal cord stimulator and a implanted intrathecal morphine pain pump. I've had racz catheter procedures done to get the steroid medication through spinal scar tissue. Epidural steroid injections ( more than what is medically recommended) I've had Radiofrequency ablation procedures on my SI joints to burn the nerves, physical therapy, aqua therapy, so……I now have Arachnoditis due to the dura space being penetrated by needles requiring blood patches because my spinal fluid was leaking out.
In 2013 I was diagnosed at the hospital after having a Adrenal crisis. I was rushed to the ER and told after 2 tests that i had Addison's disease. Due to having all those epidural, trigger point, and other steroid injections my adrenal glands had stopped producing the hormones that are needed to live. Now I have to take daily steroids, Hydrocortisone 15 mg in divided doses each day. Also I have to take a medication to keep my fluids in balance. My blood pressure can bottom out if i dont take it and eat lots of salty things. Usually i just take salt tablets.
I have had pretty good results with the intrathecal morphine pain pump. But like everything else it stops working after a few years. I've had mine 5 years. I'm weaning down my dose by 15% weekly. At this rate I'll be off the pump in about 9 weeks not having to incur any withdrawal symptoms.
In the mean time they are giving me Tramadol 50 mg 3 times a day and Baclofen 10 mg 4 times a day for the terrible spasticity that I have each day.
My Faith and classical music is what makes each day bearable. So enough about me…… 🙂

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@lioness At this point, it's just another pain to deal with, you know what I mean? I use heat and ice. I swear that the weather can make it worse just like arthritis.What are you doing for relief? Jen

**edited to add I've done epidural injections for the bulging disk. That gave the most and longest relief.

@psearby17

Hi Everyone just started a discussion about bulging discs in my neck at C3 and C4, L5 and bursitis in my hips. Also suffer from coccydynia which I've had since 2001; inflammation of the coccyx. All of this has impacted my life and I'm now very anxious and depressed. Don't sleep well either. Can anyone give me some advice as to how to live a "normal" life when I don't feel normal.

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Psearny17 I have bursitis in one of my hips and the way I keep the pain away is lay on ice pls and go to Utube and search for exercises for bursitis, there 3 little exercises you can do. I do them every day , it definitely works . If you can’t get on the floor to do them do them on your bed , ice packs every day intuit starts getting better hope that helps , Judy

@psearby17

Hi Everyone just started a discussion about bulging discs in my neck at C3 and C4, L5 and bursitis in my hips. Also suffer from coccydynia which I've had since 2001; inflammation of the coccyx. All of this has impacted my life and I'm now very anxious and depressed. Don't sleep well either. Can anyone give me some advice as to how to live a "normal" life when I don't feel normal.

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I also have chronic back problems and ice and wet heating pad helps with that plus tramadol gabapentin muscle relaxer stretching by pulling my legs up to my chest

@wsh66

Are you talking about an implanted pump to deliver pain meds? If so, it's the cat's meow and your daddies fine tooth comb. Get one, I did.

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Ihave a pump and I only have to have it filled every 3 to 4 months. No problem traveling. No perscription to get in advance. The pump will set you free!

@hosta

Hosta here, Has anyone tried the Drug Delivery Therapy? I went to a seminar on this type of pain management! I want to look into this. Input would be appreciated.

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Try Dilaudid in your pump, it is much stronger than morphine, less side effects.

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@virginialouise4

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Hi @virginialouise4 – To cancel the notifications from this discussion all you have to do when you receive the notification for this post is go to the bottom of the email you received and click the link to Unsubscribe.

John

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