Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@parus

@jimhd Right there with you Jim. Overload strikes and I hide away for a while until I can slowly sort through the mountains of info/garbage. I hide away with my paint brushes…ah, sweet oblivion even if only for brief moments. I rely on my rice bags. A hot bath would be okay if I did not have to exit into the cold. Too much trouble to get in and out…I be a shower person. OMG this OGM gives TMI…tee-hee.

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@johnbishop That does look interesting. Teresa

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@ella2000

Hi, I am new. I am relatively new to my chronic pain. I mean I have had my back issues for years but to me that was just something that was here and there type of pain.
Almost two years ago I went into the ER in the worst pain I have ever experienced(yes, worse than child birth) . I had two kidney stones, my first, I also had two ovarian cysts and was diagnosised with anemia. I know it’s no where what others experience but since then I have constant pain. The pain is in my lower stomach but also can start under my ribs all the way down. It’s a constant pain but some days I can deal while some it feels as if I am repeatly being kicked or stabbed in my stomach. My anemia has had me worn down. I did try iron pills but caused a bleeding ulcer. I recieved two iron infusions. I just moved about four months ago and so the process is restarting again. But some days I am ok and can do ok. Other days just doing one daily chore wears me down and can’t do much.
I have chronic headaches 5/7 days. Sometimes the migraines come as well. I was also just recently diagnosised with hypothyroidism.
My back and hips are also an issue but I need to figure out more important things prior to dealing with that.
I just feel as if my whole body is fading away and not wanting to function. The difficult issue in all of this I do not know my health background, I am adopted. So this brings me to mayo and start my tests this coming week. I just hope to find out some answers.
Thanks for listening.

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Hello @ella2000 Ella, let me add my welcome to you. We are glad that you joined Mayo Connect. I am so sorry to hear of your multiple health problems – you are certainly dealing with a lot of chronic pain and other health issues.

I am glad that you are getting some testing at Mayo. They are good at putting a lot of puzzle pieces together and coming up with a way of helping people. We look forward to hearing from you again soon.

Teresa

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@parus

@jimhd Right there with you Jim. Overload strikes and I hide away for a while until I can slowly sort through the mountains of info/garbage. I hide away with my paint brushes…ah, sweet oblivion even if only for brief moments. I rely on my rice bags. A hot bath would be okay if I did not have to exit into the cold. Too much trouble to get in and out…I be a shower person. OMG this OGM gives TMI…tee-hee.

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@dear john i think that the one in the ceiling would be much, much more safer to be used in a bathroom. but still i thank you very much.

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@peach414144 I see myself fortunate to have a roof over my head and keeping my bills paid. Will keep my rice bag as a source of warmth. Certainly do not need another appliance running up the electric bill. Even a towel can be a luxury.

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Acupuncture will also decrease one’s finances.

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@ella2000

Hi, I am new. I am relatively new to my chronic pain. I mean I have had my back issues for years but to me that was just something that was here and there type of pain.
Almost two years ago I went into the ER in the worst pain I have ever experienced(yes, worse than child birth) . I had two kidney stones, my first, I also had two ovarian cysts and was diagnosised with anemia. I know it’s no where what others experience but since then I have constant pain. The pain is in my lower stomach but also can start under my ribs all the way down. It’s a constant pain but some days I can deal while some it feels as if I am repeatly being kicked or stabbed in my stomach. My anemia has had me worn down. I did try iron pills but caused a bleeding ulcer. I recieved two iron infusions. I just moved about four months ago and so the process is restarting again. But some days I am ok and can do ok. Other days just doing one daily chore wears me down and can’t do much.
I have chronic headaches 5/7 days. Sometimes the migraines come as well. I was also just recently diagnosised with hypothyroidism.
My back and hips are also an issue but I need to figure out more important things prior to dealing with that.
I just feel as if my whole body is fading away and not wanting to function. The difficult issue in all of this I do not know my health background, I am adopted. So this brings me to mayo and start my tests this coming week. I just hope to find out some answers.
Thanks for listening.

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Hi Justin,
I am not a picky eater at all. I am staying downtown near mayo but I do not have a car so will be walking everywhere.
Thank you for your help

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@ella2000

Hi, I am new. I am relatively new to my chronic pain. I mean I have had my back issues for years but to me that was just something that was here and there type of pain.
Almost two years ago I went into the ER in the worst pain I have ever experienced(yes, worse than child birth) . I had two kidney stones, my first, I also had two ovarian cysts and was diagnosised with anemia. I know it’s no where what others experience but since then I have constant pain. The pain is in my lower stomach but also can start under my ribs all the way down. It’s a constant pain but some days I can deal while some it feels as if I am repeatly being kicked or stabbed in my stomach. My anemia has had me worn down. I did try iron pills but caused a bleeding ulcer. I recieved two iron infusions. I just moved about four months ago and so the process is restarting again. But some days I am ok and can do ok. Other days just doing one daily chore wears me down and can’t do much.
I have chronic headaches 5/7 days. Sometimes the migraines come as well. I was also just recently diagnosised with hypothyroidism.
My back and hips are also an issue but I need to figure out more important things prior to dealing with that.
I just feel as if my whole body is fading away and not wanting to function. The difficult issue in all of this I do not know my health background, I am adopted. So this brings me to mayo and start my tests this coming week. I just hope to find out some answers.
Thanks for listening.

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John,
Thank you so much for the reply. I am not driving there this time. So no car. But I will be staying downtown near everything. I will certainly try some of those suggestions.
Thank you!

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@ella2000

Hi, I am new. I am relatively new to my chronic pain. I mean I have had my back issues for years but to me that was just something that was here and there type of pain.
Almost two years ago I went into the ER in the worst pain I have ever experienced(yes, worse than child birth) . I had two kidney stones, my first, I also had two ovarian cysts and was diagnosised with anemia. I know it’s no where what others experience but since then I have constant pain. The pain is in my lower stomach but also can start under my ribs all the way down. It’s a constant pain but some days I can deal while some it feels as if I am repeatly being kicked or stabbed in my stomach. My anemia has had me worn down. I did try iron pills but caused a bleeding ulcer. I recieved two iron infusions. I just moved about four months ago and so the process is restarting again. But some days I am ok and can do ok. Other days just doing one daily chore wears me down and can’t do much.
I have chronic headaches 5/7 days. Sometimes the migraines come as well. I was also just recently diagnosised with hypothyroidism.
My back and hips are also an issue but I need to figure out more important things prior to dealing with that.
I just feel as if my whole body is fading away and not wanting to function. The difficult issue in all of this I do not know my health background, I am adopted. So this brings me to mayo and start my tests this coming week. I just hope to find out some answers.
Thanks for listening.

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Here are a couple of more right downtown within walking distance that have good food:

Chester’s Kitchen & Bar
http://chesterskb.com/locate

Pannekoeken Restuarant
https://www.pannekoeken-rochester.com/

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Hi I’m Ginny
I have had back for 5months since a car accident
that totaled my car.
I have been doing PT for 5 months and have had
2 epidural injections. None of which has helped
the pain in my right hip area .
I would like to hear of other therapies that might
help rid this pain.

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I am new to the group.My name is Pat. I have been taking morphine for about 10 years. It started after a severe fall which left me in chronic thoracic pain and a loss of 2″ in 1 year. I was crying in pain all the time. What made it worse is nothing showed up on x-ray or MRI. Frustrating when you know something is wrong and they can’t find it to attempt to fix it. After being on Percocet and needing more and more, the pain MD put me on long acting morphine plus quick acting morphine for breakthrough pain. I didn’t have pain before the fall. Now, about 15 years later I have had both knees replaced, both shoulders replaced and now have spondylolisthesis in L5S1 which is very painful. Right after a cortisone shot in my low back, I can walk for about 1-2 months, gradually it wears off and I prefer to lie in bed or be in a chair. Walking is near impossible until the next cortisone injections. I used to be on a lot of morphine but have decreased my dose to 15 mg 2x/day which still helps. What I want is to switch to CBD with a little THC. It’s been 8 months since I started using marijuana and I have yet to find that “sweet spot” you seem to talk about. I take 1/2 dropperful or .5 cc of CBD 2x/day. I also have a ittle edible THC. Perhaps I started the CBD dose a little high? I never did start off small and raise it until it was effective. How do you do that? Do you start with one drop for 2 weeks to see if there’s any effect then go to 2 drops etc. I found .5 cc is not that many drops. Perhaps 3? Getting off the morphine is my primary objective. Doing it with the help of CBD would be ideal. Thank you for accepting me into this group. Any advice is appreciated.

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My name is Dilson B. Oliveira. I live in northern California. I am writing here in hope to find help for my beloved wife who is suffering with chronic mid-back pain that, we believe, radiates to her stomach. She’s not been able to eat since May 2017. Such symptoms started right after a car accident we were involved in on 05/13/2017. A driver hit the rear of our car on a freeway. He was at least at 75 miles/hour.
She’s been hungry since the accident and can’t eat due to inflammation to the esophagus and severe reflux. A biopsy was completed during the endoscopy. The result showed inflammation to the esophagus. She’s been to 3 E.Rs. She did several exams: X-Rays, CAT Scan, MRI. All came out normal. The doctors we visited could not find any possible reason for her symptoms. I guess they are too busy with endoscopies, colonoscopies, etc. to be able to do a thorough research. Sorry for showing our frustration.
My wife describes her symptom as like a nail fastened to her mid-back that radiates to her stomach. It’s like the nail that penetrated her mid-back and stomach. We googled and found the following abstract released by “US National Library of Medicine National Institutes of Health”: Esophageal dysfunction in cervical spinal cord injury: a potentially important mechanism of aspiration.
“Format: Abstract
J Trauma. 2005 Oct; 59(4):905-11.
Esophageal dysfunction in cervical spinal cord injury: a potentially important mechanism of aspiration.
Neville AL1, Crookes P, Velmahos GC, Vlahos A, Theodorou D, Lucas CE.
Author information
Abstract
BACKGROUND:
Respiratory complications are a major cause of morbidity and mortality in patients with cervical spinal cord injury (CSCI). We hypothesized that patients with CSCI had esophageal dysfunction, predisposing them to aspiration. The purpose of this study was to characterize esophageal function in these patients.
METHODS:
CSCI and similarly injured control (spinal cord injury below T1) subjects were prospectively enrolled from two trauma centers. All underwent esophageal manometry to measure lower (LES) and upper esophageal sphincter (UES) pressures. A subset of patients had detailed manometry and 24-hour pH studies performed to evaluate dynamic esophageal function.
RESULTS:
Eighteen CSCI and five control subjects were enrolled. The groups were similar with regards to age, sex, injury mechanism, Injury Severity Score, and hospital stay. Resting LES and UES pressures were similar in CSCI and control patients and did not differ from established norms. Five CSCI and two control patients underwent detailed manometric assessment. Defective UES relaxation was observed in all CSCI patients but not controls. CSCI patients had increased UES relaxation pressures (18.4 +/- 5.3 versus 3.9 +/- 0.7 mm Hg; p = 0.01) and UES bolus pressures (23.8 +/- 2.2 versus 10.2 +/- 6.9 mm Hg; p = 0.006) compared with controls. Esophageal body and LES function were normal. Two of five CSCI patients had abnormal 24-hour pH studies.
CONCLUSION:
Patients with CSCI demonstrate significantly disturbed dynamic function of the pharynx and UES while resting parameters remain normal. Because adequate UES relaxation is critical to the clearance of secretions and coordination of swallowing, this is an important potential mechanism of aspiration in patients with CSCI.
PMID: 16374280
[Indexed for MEDLINE]”

The last gastro doctor we shared this information said: This is just an abstract! To this date we don’t know what he meant with his comment. I translate it as “I am too busy with endoscopies and colonoscopies.”
Anyway, if any of you know someone who’s going or went through the same symptoms and doctors who know how to treat it, please share your valuable information.
Best New Year to you all!
Dilson

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@dilsono

My name is Dilson B. Oliveira. I live in northern California. I am writing here in hope to find help for my beloved wife who is suffering with chronic mid-back pain that, we believe, radiates to her stomach. She’s not been able to eat since May 2017. Such symptoms started right after a car accident we were involved in on 05/13/2017. A driver hit the rear of our car on a freeway. He was at least at 75 miles/hour.
She’s been hungry since the accident and can’t eat due to inflammation to the esophagus and severe reflux. A biopsy was completed during the endoscopy. The result showed inflammation to the esophagus. She’s been to 3 E.Rs. She did several exams: X-Rays, CAT Scan, MRI. All came out normal. The doctors we visited could not find any possible reason for her symptoms. I guess they are too busy with endoscopies, colonoscopies, etc. to be able to do a thorough research. Sorry for showing our frustration.
My wife describes her symptom as like a nail fastened to her mid-back that radiates to her stomach. It’s like the nail that penetrated her mid-back and stomach. We googled and found the following abstract released by “US National Library of Medicine National Institutes of Health”: Esophageal dysfunction in cervical spinal cord injury: a potentially important mechanism of aspiration.
“Format: Abstract
J Trauma. 2005 Oct; 59(4):905-11.
Esophageal dysfunction in cervical spinal cord injury: a potentially important mechanism of aspiration.
Neville AL1, Crookes P, Velmahos GC, Vlahos A, Theodorou D, Lucas CE.
Author information
Abstract
BACKGROUND:
Respiratory complications are a major cause of morbidity and mortality in patients with cervical spinal cord injury (CSCI). We hypothesized that patients with CSCI had esophageal dysfunction, predisposing them to aspiration. The purpose of this study was to characterize esophageal function in these patients.
METHODS:
CSCI and similarly injured control (spinal cord injury below T1) subjects were prospectively enrolled from two trauma centers. All underwent esophageal manometry to measure lower (LES) and upper esophageal sphincter (UES) pressures. A subset of patients had detailed manometry and 24-hour pH studies performed to evaluate dynamic esophageal function.
RESULTS:
Eighteen CSCI and five control subjects were enrolled. The groups were similar with regards to age, sex, injury mechanism, Injury Severity Score, and hospital stay. Resting LES and UES pressures were similar in CSCI and control patients and did not differ from established norms. Five CSCI and two control patients underwent detailed manometric assessment. Defective UES relaxation was observed in all CSCI patients but not controls. CSCI patients had increased UES relaxation pressures (18.4 +/- 5.3 versus 3.9 +/- 0.7 mm Hg; p = 0.01) and UES bolus pressures (23.8 +/- 2.2 versus 10.2 +/- 6.9 mm Hg; p = 0.006) compared with controls. Esophageal body and LES function were normal. Two of five CSCI patients had abnormal 24-hour pH studies.
CONCLUSION:
Patients with CSCI demonstrate significantly disturbed dynamic function of the pharynx and UES while resting parameters remain normal. Because adequate UES relaxation is critical to the clearance of secretions and coordination of swallowing, this is an important potential mechanism of aspiration in patients with CSCI.
PMID: 16374280
[Indexed for MEDLINE]”

The last gastro doctor we shared this information said: This is just an abstract! To this date we don’t know what he meant with his comment. I translate it as “I am too busy with endoscopies and colonoscopies.”
Anyway, if any of you know someone who’s going or went through the same symptoms and doctors who know how to treat it, please share your valuable information.
Best New Year to you all!
Dilson

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@dilsono, “Just an abstract” is the abrupt dismissal of an antiprofessional professional who can’t be bothered with research reports no matter what. Have you searched for still another doctor — this one capable (intellectually and emotionally) of looking beyond your wife’s digestive tract and into the interaction between GI functions and your nervous system?

An abstract, of course, is the main clue that scholars and caring practitioners use to track down detailed research reports; this abstract can lead you to the original. And if the series of reports on this research cannot be accessed, as sometimes is the case, a licensed physician has essentially automatic access to anything on file in the National Library of Medicine of the National Institutes of Health.

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@ella2000

Hi, I am new. I am relatively new to my chronic pain. I mean I have had my back issues for years but to me that was just something that was here and there type of pain.
Almost two years ago I went into the ER in the worst pain I have ever experienced(yes, worse than child birth) . I had two kidney stones, my first, I also had two ovarian cysts and was diagnosised with anemia. I know it’s no where what others experience but since then I have constant pain. The pain is in my lower stomach but also can start under my ribs all the way down. It’s a constant pain but some days I can deal while some it feels as if I am repeatly being kicked or stabbed in my stomach. My anemia has had me worn down. I did try iron pills but caused a bleeding ulcer. I recieved two iron infusions. I just moved about four months ago and so the process is restarting again. But some days I am ok and can do ok. Other days just doing one daily chore wears me down and can’t do much.
I have chronic headaches 5/7 days. Sometimes the migraines come as well. I was also just recently diagnosised with hypothyroidism.
My back and hips are also an issue but I need to figure out more important things prior to dealing with that.
I just feel as if my whole body is fading away and not wanting to function. The difficult issue in all of this I do not know my health background, I am adopted. So this brings me to mayo and start my tests this coming week. I just hope to find out some answers.
Thanks for listening.

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@ella2000,

I second John’s recommendation of Chester’s Kitchen (if you are a prime rib fan, it is fantastic).

I would also add Salad Brothers for lunch. Their Chicken Wild Rice soup is the best I’ve ever had, but all of their soups are A+.

https://www.downtownrochestermn.com/go/salad-brothers-cafe-and-deli

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@johnbishop, @gailb, @hopeful33250, et al, I don’t know how helpful these two articles from the latest issue of “The Scientist” might become, but they feel like a collection of clues to some important improvements in understanding and treating certain prevalent forms of chronic and persistent pain.

The first article provides some basic insights on how pain pathways divide within the body: https://www.the-scientist.com/?articles.view/articleNo/51198/title/Infographic–Two-Pain-Paths-Diverge-in-the-Body

The second provides a long article detailing new insights on Glia cells as forms of immune cells operating in the nerves and the brain: https://www.the-scientist.com/?articles.view/articleNo/51172/title/Glial-Ties-to-Persistent-Pain.

I’ll be interested in learning whether our chronic pain members find hope in these perspectives.

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@ella2000

Hi, I am new. I am relatively new to my chronic pain. I mean I have had my back issues for years but to me that was just something that was here and there type of pain.
Almost two years ago I went into the ER in the worst pain I have ever experienced(yes, worse than child birth) . I had two kidney stones, my first, I also had two ovarian cysts and was diagnosised with anemia. I know it’s no where what others experience but since then I have constant pain. The pain is in my lower stomach but also can start under my ribs all the way down. It’s a constant pain but some days I can deal while some it feels as if I am repeatly being kicked or stabbed in my stomach. My anemia has had me worn down. I did try iron pills but caused a bleeding ulcer. I recieved two iron infusions. I just moved about four months ago and so the process is restarting again. But some days I am ok and can do ok. Other days just doing one daily chore wears me down and can’t do much.
I have chronic headaches 5/7 days. Sometimes the migraines come as well. I was also just recently diagnosised with hypothyroidism.
My back and hips are also an issue but I need to figure out more important things prior to dealing with that.
I just feel as if my whole body is fading away and not wanting to function. The difficult issue in all of this I do not know my health background, I am adopted. So this brings me to mayo and start my tests this coming week. I just hope to find out some answers.
Thanks for listening.

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Thank you. I will probably go to chesters tomorrow. I had more than a 12 hour trip to get here yesterday. I so exhausted. So I may order from the pizza place you both recommended tonight. I stopped off at a breakfast place this morning which was really good.
Almost done with day 1. One more appointment to go to today then can finally rest.
Thanks for the great hints.

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