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Weakness with PN?
I've learned so much from all of you on this forum and am looking to learn some more. I have progressing (very slow) numbness in my toes and bottom of my feet, which I have gotten used to. It just feels like my socks are all bunched up in there. The intense "feet on fire" is under control with R-ALA. But the word that struck me today, and which I have been ignoring, is "weakness."
This may seem like a silly question, but what exactly do people mean when they use this word to describe their PN? Do they fall a lot? Have trouble standing? Can't ever trust their legs? Or is it just a 'feeling,' like you just don't feel well? Does it come and go? Does this weakness come with all types of PN, large fiber and small fiber? Are there other symptoms that accompany it in the moment?
Thank you all again for your help.
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@trishdub
For me, my main issues with weakness are falling, inability to stand a long time and balance, although my balance may be more from seizure meds or maybe a combination of both.
My primary doctor feels I may have a neuromuscular disease which should be determined at Stanford in October. I disagree. I believe my issues are primarily neuropathy related. However , 60 years of seizures and their meds may well be contributing.
Take care,
Jake
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3 Reactions@jakedduck1
Thank you, Jake. I have had PN for years and years, not knowing what it was until about 2 years ago. It began in one toe; now it is in all toes, the balls of my feet, and now I'm beginning to feel it in my ankles (tingling). The reason I wrote in is that I have been trying for months and months to improve my balance and, while some days are better than others, I just can't balance. My ankles shake like crazy. I even go to the gym and have strong thighs and core (certainly stronger than they've ever been; I'm turning 69 soon). I wondered if the PN might be the reason or at least a contributing factor. And right now, the thought of going down stairs into my basement and then coming back up is not a happy thought. I am otherwise healthy, at least as far as recent blood work indicates.
I pray that you don't have a neuromuscular disease.
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3 ReactionsI was diagnosed with PN, and I now see peripheral neuropathy pain doctor. I am now on the buprenorphine pain patch 10 mg. Yes, my legs have gotten considerably weaker in the past year. I now have a physical therapist coming to my home to give me physical therapy for the weakness in my legs and my leg balance is off. I also have what I describe as "bee stings" in my lower foot area that comes and goes very unexpectedly. Because of my leg weakness, I now have to use a walker to get around in the house and a cane for when I go grocery shopping or doctor appointments. This disease is absolutely the most painful situation that I have ever been in. Most people don't understand what I'm talking about when I try to explain PN to them. If only there was a cure for this but as far as I know and have read up on PN there is no cure.... just pain help for me and others.
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