Watching a Meningioma Brain Tumor

Posted by robinem @robinem, Feb 8, 2018

I've just been diagnosed with a 2cm meningioma tumor on the right front of my head. I am 59 years old and the surgeon has told me I will need to "do something" with my tumor someday since I am younger. What is the benefit of waiting?

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Profile picture for cyndymc @cyndymc

The benefit of waiting is , I am told this may never grow, and brain surgery has many risks.

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I am on the watch and wait regimen also. Incidental discovery when they were ruling out tumors for tinnitus. No symptoms. It’s been a year and a half. Having my third MRI soon. No change from first to second. My meningioma is a left side convexity 3cm x 2cm x 1 1/2 cm. I saw a neurosurgeon recommended by my primary care physician. I went back to my PCP and asked if there was anyway I could get a Mayo consult. My hospital has an agreement with the Mayo Clinic so she was able to get me a free consult. She did all the leg work. Their interpretation was the same as my neurosurgeon. Since no symptoms and so far not growing wait and watch. I could have it removed because it is an easy removal spot but my PCP said it’s brain surgery so don’t do it if you don't have to. I’m 67 years old. There are new technology medical treatments being used and perfected every year. This is why waiting can be good if you aren’t having symptoms. I hope I won’t need surgery.

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Profile picture for Lisa Lucier, Moderator @lisalucier

@sarasally2 - since you used the term "housebound," it sounds like you'd prefer to be out and about some outside of your home. Do you have an appointment with any of your doctors coming up where you could ask directly about how you might manage some specific symptoms?

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because of the dizziness and vertigo I can't drive so am pretty much stuck inside. I have tests coming up in the next few weeks and see the surgeon but for a year I have tried PT, several meds, I don't do well taking meds so try to stay busy inside. They don't have much to offer.

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Profile picture for sarasally2 @sarasally2

I am on a wait and see program, been a year and am due for another MRI this month, I am in NC and go to Duke. My age and health issues are not helping. We shall see what happens but so far no one has addressed the symptoms. So I am house bound most of the time

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@sarasally2 - since you used the term "housebound," it sounds like you'd prefer to be out and about some outside of your home. Do you have an appointment with any of your doctors coming up where you could ask directly about how you might manage some specific symptoms?

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Profile picture for deblee @deblee

Are you having balance issues? I am in SC.

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No balance issues.

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Profile picture for cyndymc @cyndymc

The benefit of waiting is , I am told this may never grow, and brain surgery has many risks.

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I am on a wait and see program, been a year and am due for another MRI this month, I am in NC and go to Duke. My age and health issues are not helping. We shall see what happens but so far no one has addressed the symptoms. So I am house bound most of the time

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Profile picture for cyndymc @cyndymc

It sounds like you and I have close diagnosis, I am 62 looking forward to retirement in a few years. Do you live in AZ?

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Are you having balance issues? I am in SC.

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Profile picture for deblee @deblee

I am 71 and mine is not in an ideal place for surgery. but doctor said he would remove if needed. It also may have a lot to do with my age.

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It sounds like you and I have close diagnosis, I am 62 looking forward to retirement in a few years. Do you live in AZ?

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Profile picture for cyndymc @cyndymc

I agree, no surgery unless absolutely necessary, how old are you.

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I am 71 and mine is not in an ideal place for surgery. but doctor said he would remove if needed. It also may have a lot to do with my age.

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Profile picture for deblee @deblee

They are not sure but the NS sent me to an ENT who could also not find a cause, I have a full spine and another brain MRI on Friday, so we shall see if anything has changed and maybe will have an answer. I feel as you that if I can live with the symptoms right now, it would be better than the risks of surgery.

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I agree, no surgery unless absolutely necessary, how old are you.

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right prepontine cistern, I am told not a great place for surgery due to busy location, but is operative if needed.

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