Watching a Meningioma Brain Tumor

I’m waiting to be scheduled for one to rule out ocular myesthenia Gravis since I have Grave’s eye disease. I’ve had it done before. It’s not terrible.

I have decided not to have the nerve study since needles would have to be placed in my legs feet and face. Also, from what I have learned, there is not much that can be done even if something is found, and like you there might not be a definitive answer.

There a new radiations with Protons+ They don't affect normal cells. they are more precise too. You should ask who can use them for you. Best wishes.

Wow, I thought maybe I was over worrying about my multiple tumors after two craniotomies, gamma knife and cyber knife, but have had swelling on my right cheekbone, pain, etc. and now find out the meningioma behind my right eye has started to grow , is invading my sinus and above cheekbone. Good Grief right. Has anyone had an experience with this. I was told it's too dangerous to operate so will need another round of radiation. This is definitely the never-ending story, and yet doctors act like having meningiomas are no big deal. peg

I had a nerve study for possible carpal tunnel. Ended up only being mild in my right hand and moderate in my left hand. So I am not going to have that surgery. My hands would “fall asleep” at night time. For me it comes and goes so it may just be the effects of arthritis. The doctor that did the nerve test said either you have it or you don’t. I am currently not having problems. I also have a left frontal convexity meningioma. I am on wait and watch. Just had 3rd MRI and waiting to see my neurosurgeon next week. I hope you can find some help and relief from your neuropathy.

I was told that I may also have polyneuropathy. The neurologist scheduled me for a nerve study the end of the month. They still don't think my symptoms are coming from my tumor, but I didn't have the tingling and numbness until after I started having scans for the meningioma.

Surgery is a way to go but you may have a slow growing tumor and if you symtems are slight you can live with it a long time. There is always risk in surgery. I had two tumors they effected my sight and I had a lot of headaches. balanace and sight. One was operatable the other is still there and is on my optic nerve. My headaches are less but my sight is a crap shoot. I had proton radiation and so far the optic tumor has not changed but you never know. The relief of having one out was nice but you are never sure what is going on with the tumor until they get in there. I didn't wait too long because my symtens were multiplying but every situation is different.

Hi, @deblee - wondering how your appointment went yesterday?

That is good. I am going to a neurologist tomorrow so will see what she has to say about my symptoms.

I have heard many different things about Keppra. I understand it is to prevent seizures. They can develop when the brain swells from surgery or from trauma because of the surgery. I hope I don’t have to go through it. I hope you start feeling better soon!