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Kidney cancer patients: Let's connect and introduce yourself
I have stage 4 kidney cancer. Taking target and immunotherapy drugs. Would love to connect with anyone who is going through the same process or has kidney cancer!
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Tomorrow afternoon 12/19
Counting the days. Unless something changes I will have radical nephrectomy for RCC on January 12. I have been working out 4-5 days a week, but I have been an “exerciser” my entire adult life. If you are new to exercise than begin slowly. Do not overdo any exercise. I do not worry for myself. If something were to happen to me I will not even know. However, I worry constantly about my family and their future. Blessings.
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1 ReactionWelcome, @drmarci. I agree with @sav1 to stay hydrated and physically active as you prepare for treatment. You may also be interested in joining these related discussions about urothelial cancer:
- Urothelial adenocarcinoma
https://connect.mayoclinic.org/discussion/urothelial-adenocarcinoma/
- Diagnosed with High-Grade Urothelial Cell Carcinoma - ANYONE?
https://connect.mayoclinic.org/discussion/diagnosed-with-high-grade-urothelial-cell-carcinoma-anyone/
I'm sure you have loads of questions looping through your mind as you wait for your treatment planning appointment. I suggest keeping pen and paper (or phone) handy and jotting them down. Naturally, keep asking questions here. There are others here who have been in your shoes.
When will you find out about the treatment you'll be getting?
I was very scared to have my kidney removed. That was in Oct ‘22. I had no other health issues and was relatively fit 63 year old female. I was pretty much in bed the first week but pushed myself to get up and move about my house as much as I could. Mine also was done by robotics but still had. 5-6” incision to get kidney out!
After about 4 weeks, I was walking straight and doing a lot of routine tasks…I pray your surgery goes as well as mine did. Things do change so it’s best to take it a day at a time:)
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1 ReactionI have rcc kidney cancer and being operated on in March the operation is done with robotics and they said if kidney doesn’t start to bleed it’s one day in hospital and 6 weeks rest
Walking if you can and drink lots of water. I too have kidney cancer and they are doing a nephrectomy in March and that was the advice I was given best of luck with your treatment
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1 ReactionYour cancer team will take into consideration any existing conditions when suggesting treatment options. They should know about your having severe osteoporosis and some cancer treatments can effect bone health. This is true in hormone-related treatments that are commonly used for breast cancer and prostate cancer for example. I'm not sure if kidney cancer treatments effect bone health. It's a good question to ask.
I have just been diagnosed with Stage 4 urothelial cancer. I will find out the specifics next week but the plan is chemo/immunotherapy then radical nephrectomy. Is there anything I can do to prepare?
It has been about four months since your surgery, Paul 56, how are you doing? I am scheduled for surgery on January 12 for total kidney removal. Constantly worried about surgery and the post surgical recovery. I am working out everyday in hopes of an improved recovery. Thank you for your courage. Blessings.
I don't know if this is significant in cancer treatment, but I do have severe osteoporosis; also, severe shoulder pain and lack of movement from arthritis.