Mayo Clinic Connect
Is anyone currently walking without a hip joint?
I hope everything goes well for you and that you don’t have to have the help removed,
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Thank you so much
@jbro my first surgery was an emergency surgery done by a local doctor and not the specialist I had originally consulted with. The specialist and I were not planning any surgery because my bones weren't healing (radiation damaged) and felt any surgery was a high risk for infection. So we didn't discuss the options you mention. I already had an advanced infection at my first surgery.
Thank you for helping me understand how your circumstances are much different than those of us who never had an infection from radiation damage, but became infected after hip replacements. Your case was certainly more urgent and complicated. I am praying for your infection to disappear so that the day comes when antibiotics are no longer needed. I am also praying for your hip joint to become more stable so that your pain goes away and you can become more active. Thank you for helping and encouraging others like me in this forum, jbro
I have the same questions for you as what I just asked geek_girl:
1. Before your Girdlestone surgery, did the surgeon discuss as an option the purposeful separation of your femur and pelvic socket?
If yes, did the surgeon give pros and cons for each option?
2. Did your doctors ever say that infection was less likely, or easier to treat, with one of the two options above?
Thank you for your time, jbro
@jbro I didn't know I was going to end up with no hip until after surgery. They were cutting out a tumour that had invaded my pelvis and not enough bone was left for a hip replacement. I will get an adapted automatic car where the gas pedal is moved over to the left side of the break allowing me to drive with my left leg
Pesky, excuse me for breaking in on you conversation with jbro but I have a question. I also had my hip removed and part of my pelvis. I have a raised shoe and can drive with my right leg fine. Is there a reason you will have to use your left leg?
@cheryl99 I had 4 surgeries on my right hip in the past 6 months. July 2018 being the last one. I still can't walk and can only stand up for a few seconds. It feels like the pelvic and femur bones are grinding. The surgeon claims I should be able to walk with a walker. I lost about 3 inches in height. I kept getting infections which is why so many surgeries. I wish you lots of luck. God bless you and have a merry Christmas and safe happy new year… Mary
Liked by JK, Volunteer Mentor
I am so sorry you have gone through so much. I will keep you in my prayers. Hopefully you will be able to walk with a walker in time but most of all I pray you will be able to without pain. Merry Christmas to you also.
hip joint removed due to staf infection, MSSA, is it possible to walk with a walker
Welcome to Connect, @jcorrieri.
You may notice that I moved your message and combined it with this existing discussion on walking without a hip joint. I did this as I thought it would be beneficial for you to be introduced to other members who’ve shared their experiences.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.
Could you share a few more details, @jcorrieri ? When did you have the procedure?
@cheryl99 I was told I would probably need an adapted automatic as my right leg may not be strong enough to make an emergency stop. I haven't tried driving yet, but my right leg is getting stronger
My daughter was born without any hip sockets. After many doctors and exploratory surgery all I hear now is there is nothing to do for her. She is ten and she taught herself how to walk, run sit and even ride a bike (with training wheels). She suffers from a lot of pain and has very poor stability or coordination, but she is a miracle and I would love to hear from anyone like her. I would love to know if there is anyway to build her a socket or make her pain less if at all possible. Thanks for sharing and allowing me to share
Liked by JK, Volunteer Mentor, lioness
@cainadc Your daughter sounds like a very brave and tenacious young girl. I hope there is something out there that can help her.
Liked by lioness
Hello @cainadc and welcome to Mayo Connect!
How wonderful that you are seeking the best care for your daughter. She is remarkable to have made so much unexpected progress. You must be very proud of her!
Has she ever been to a Mayo facility for a consultation? I understand that Shriner's Hospital is also good at orthopedic problems with children.
I look forward to hearing from you again and getting updates from you about how she is doing and what you are learning about this. Will you post again?
Your daughter sounds like quite a girl. I am assuming that since she doesn’t hip sockets she may have one leg shorter than the other which will cause her not to stand straight. If that is the case I hope you have looked into a shoe lift for the shorter leg. Your orthopedic doctor should be able to refer you to someone who can measure and get the right lift she needs. This really helped with my back pain and ability to stand straight. But I agree with Teresa, you should see if you can go to a Mayo Clinic….I wouldn’t give up, technology is allowing for amazing things these days. Good luck.
@cheryl99 hi, it has been just over 4 months since my hip was removed. I am now recovering from 2 months of radiotherapy. I am walking with crutches and a walker and can get up and down stairs with a crutch and handrail. How long has it been since your hip removal? And what is your mobility like now? Also, what are your realistic long term goals? Sorry for the questions but I am struggling to find any information from people that are going through this as well. Best wishes for the future
Hi Jbro, it has been a while and I was just wondering how you were doing.
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