I'm really glad for you both @foxden6 and @conroy . Nothing better than a happy ending!
As for my case, the infection in my hip was left to flourish for too long and it destroyed what is needed to support a new hip, so that's out for me. If I were to get a second opinion at the Mayo clinic, how do I do that?
Go to the Mayo Clinic website and "Request an appointment" or call the number to request an appointment. They will ask questions and tell you how to submit your medical records. If they can help you, they will make an appointment. We live in Michigan and most all of Bill's records were transferred electronically. It is worth a try. The worst Mayo can say is "no". We had already heard that and I am sure you have too.
I'm really glad for you both @foxden6 and @conroy . Nothing better than a happy ending!
As for my case, the infection in my hip was left to flourish for too long and it destroyed what is needed to support a new hip, so that's out for me. If I were to get a second opinion at the Mayo clinic, how do I do that?
I had an artificial hip for 12 years prior to my sepsis diagnosis which spread from my mouth to my hip. That is why the Girdlestone procedure was necessary I was told.
If you are confident that there is no other option, I would proceed with it. I've been told that MAYO has an excellent doctor who is an expert on Girdlestone. His name is Dr. Mark Morrey. I was operated on by Dr. Scot Brown at Jefferson Hospital in Philadelphia. Best of luck to you! I am just happy that I suvived Sepsis!!
Lori, One of the best Girdlestone experts in the country is supposedly at the Mayo Clinic. His name is Dr. Mark Morrey. So I am hoping that Janeen hooks up with him if she hasn't already. I was operated on at Jefferson Hospital in Philadelphia since I was virtually "on my last legs". I was misdiagnosed at my local hospital and due to the time lapse I was in a desperate situation. I had a great surgeon but no time to explore other options.
Janeen
My husband had a Girdlestone in September of 2022 in Lansing, MI. It was the 6th surgery on that hip in 6 months. He never was able to get the pain under control. In December of 2022 we made our first visit to the Mayo Clinic in Rochester. Our first visit the orthopedist said he would do nothing but moniter for one year after the Girdlestone. My husband did PT to try and keep that leg strong while he gradually was weaned off antibiotics in March of 2023 (He had been on antibiotics either IV or oral since Feb 2022. Finally in Sept 2023 he was told that if he could make it one year off antibiotics, a new hip could be possible (Lansing doctors said too risky to ever have a new hip). After much consideration of the risks, he had an antibiotic spacer placed in March 2024. The infectious disease doctor signed off at the 6-week post-surgery checkup. Yesterday he had the spacer removed and a permanent hip. Infectious disease doctor was consulted before surgery and his recommendation is 2 weeks of oral antibiotics for this surgery.
I know some can never come off the antibiotics. Bill has felt so much better. After one year of fighting two different types of infections, he is greatly improved. His ID dr in Lansing wanted him forever on antibiotics but after nearly two years off of them. The drs here in Rochester are confident that this surgery will be a success. Do not hesitate to get a second opinion. Sometimes your hometown doctor does not have all the answers.
Lori....that is wonderful news about your husband. I have been wondering how he was doing. Prayers that he continues to do well and can get back to his gardening and outside this summer!!! Keep in touch......Cindy
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I'm really glad for you both @foxden6 and @conroy . Nothing better than a happy ending!
As for my case, the infection in my hip was left to flourish for too long and it destroyed what is needed to support a new hip, so that's out for me. If I were to get a second opinion at the Mayo clinic, how do I do that?
Go to the Mayo Clinic website and "Request an appointment" or call the number to request an appointment. They will ask questions and tell you how to submit your medical records. If they can help you, they will make an appointment. We live in Michigan and most all of Bill's records were transferred electronically. It is worth a try. The worst Mayo can say is "no". We had already heard that and I am sure you have too.
Lori
I had an artificial hip for 12 years prior to my sepsis diagnosis which spread from my mouth to my hip. That is why the Girdlestone procedure was necessary I was told.
If you are confident that there is no other option, I would proceed with it. I've been told that MAYO has an excellent doctor who is an expert on Girdlestone. His name is Dr. Mark Morrey. I was operated on by Dr. Scot Brown at Jefferson Hospital in Philadelphia. Best of luck to you! I am just happy that I suvived Sepsis!!
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1 ReactionLori, One of the best Girdlestone experts in the country is supposedly at the Mayo Clinic. His name is Dr. Mark Morrey. So I am hoping that Janeen hooks up with him if she hasn't already. I was operated on at Jefferson Hospital in Philadelphia since I was virtually "on my last legs". I was misdiagnosed at my local hospital and due to the time lapse I was in a desperate situation. I had a great surgeon but no time to explore other options.
Lori....that is wonderful news about your husband. I have been wondering how he was doing. Prayers that he continues to do well and can get back to his gardening and outside this summer!!! Keep in touch......Cindy