Vulvodynia pain: What has helped you?

Posted by healthybon @healthybon, Dec 3, 2023

does anyone have vulvodynia? I got it a few months ago and no one knows why. it's excruciating pain on the outside part of the vagina. I also have burning mouth syndrome. fibromyalgia and costochondritis. I am at the end of my rope from pain. my life has become small, and all I do is try to get out of pain 24/7. I can take tramadol, but am so afraid of addiction and dependence..
This is all very discouraging and I just can't handle it much longer.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

healthybon | @healthybon | Dec 11, 2023

In the meantime, I have made up my mind to take the tramadol, as living with this kind of pain 24/7 is hell.

susanfalcon52 | @susanfalcon52 | Dec 12, 2023

In reply to @leneandrade "Yes, you need to see a urogynecologist." + (show)

Agree about seeing a urogynecologist. That’s who diagnosed my pelvic floor disorder.

paisley52 | @paisley52 | Jun 19 10:41am

I need some info, I am going for pelvic floor therapy for vulvodynia. Has anyone been helped by this. I am currently on gabapentin and amitryptiline. This does help a little. I have a lot of burning.
Thanks

itskeithmydude | @itskeithmydude | Oct 24 2:30pm

Hello,My girlfriend is experiencing severe vulvodynia pain that we cannot figure out how to manage. She had ongoing yeast / BV infections for about 4 months, then some recurrent UTIs for 3, now we must be dealing with vulvodynia pain since she is negative for everything. Her pain is right around the outside of the vagina as well as on the labia minora. In total we are on month 8 of figuring this out I believe at this point. It will run up to being 9/10 pain. I worry for her mental health.She is currently trying gabapentin 300mg x 3 times a day but has not gotten to fully try that because she works so much.She has tried:Tylenol/Ibuprofen, Ketoralac orally and IV, Topical Vaginal diazepam, Amitryptiline orally, Amitryptiline/gabapentin/baclofen cream, Topical lidocaine, Ativan orally, Oxycodone, estrogen cream, and just stopped birth control about 10 days ago.The only thing that has succesfully brought her pain down from a 9/10 to a 3/10 was dilaudid IV 2 days ago. We are contemplating returning to the ER tonight because she is at work as a nurse and cannot keep going on like this.She has been attending pelvic floor therapy for months with no results either.At this point we need something for pain control. Her pain recently with the vulvodynia will run up to a 9/10 or 10/10 and stay there all day.

Colleen Young, Connect Director | @colleenyoung | Oct 24 3:18pm

In reply to @itskeithmydude "Hello,My girlfriend is experiencing severe vulvodynia pain that we cannot figure out how to manage. She..." + (show)

@itskeithmydude, I’m sorry to hear that your girlfriend is experiencing such pain and not finding a solution. I moved your question to this active discussion:
- Vulvodynia pain: What has helped you? https://connect.mayoclinic.org/discussion/vulvodynia-pain/

To you help you find solutions, see related discussions in Women’s Health https://connect.mayoclinic.org/search/discussions/

I also want to share this video in case it would be helpful.

- Vulvar Pain – Mayo Clinic Women’s Health Clinic