Squamous Cell Vulvar Cancer: Who out there has this cancer?

Could you give a little more details about the Pet MRI? Neither of us have heard of this. Wondering if this is an acceptable way to track improvement after Aldara treatment.
Thanks!

A biopsy will determine pathologically what you have (cancerous, pre cancerous, etc),
A Pet MRI is used to see where cancer is or if it had metastasized anywhere. Do you live in the USA? Even though my Pet MRI came back good I still
Experience things I never felt before cancer. Is that normal?

@andwho When I was at Mayo Clinic getting radiation therapy I attended an education session at the Mayo Clinic Cancer Education Center. I learned that once you've been diagnosed with cancer and treated and even when there is no evidence of disease it is normal to have these little twinges that you might conclude - oh, is that cancer? We were shown a film at the Cancer Education Center that was an interview with cancer survivors. One of the cancer survivors said even when he feels a little pain in his toe his mind leaps to - "is this cancer? Is there cancer of the toe?" The information I learned has really stuck with me. The education session helped me to understand that my worries, when they come up, are normal. I don't dwell on the worry. I am able to let it go. My anxiety does ramp up before a cancer surveillance appointment and I've learned that this is normal too.

Is this what you mean about experiencing things you never felt before cancer?

Yes! That is exactly what I mean. So glad you shared this. This is the new “normal “ for me. You live in fear of every twinge you feel. Right now I am having a dull ache either in my hip or sciatic not sure where!
But my pet mri showed nothing. But my mind wanders! Not a healthy way to live! Thank you for sharing & I am thankful to be able to share my feelings on this site🙏

@andwho Oh, good. I'm happy I responded with what I learned and it was helpful for you. I figured out the following for myself. If the thoughts pop up once in a while and stay mostly in the back of mind then that's good. When the thought is front and center and I can barely concentrate on anything else then that's when those thoughts affect my quality of life and in living each day as it comes. I learned that prior to a cancer surveillance appointment it's OK if my anxiety ramps up particularly if I'm going to have scan. That's normal. Once I find out that nothing is there - no evidence of disease - can I breathe a sigh of relief? Yes.

As my mind wanders to the worst possibility I gently escort it back to the present moment. If I have to do this over and over again then so be it. I keep doing it. This is what I do just before those cancer surveillance appointments.

Your words are so encouraging!! Thank you, I will keep your advise close to heart! Hope all is well with you & stay strong 🙏

What treatment will you be receiving?

I am a vulvar cancer survivor for 1 year but always in fear. My question is does anyone suffer with late pelvic side effects? I was fine until I recently developed an external hemorrhoid or protitis. Had anyone else experienced this?
Thanks

I meant “proctitis”!!!!!!!

I possibly developed - hemorrhoids or polyps after completing vulvar cancer radiation 1 year later after radiation. Does anyone else have the same issue?
Multiple late side affects!
Please share your experiences!