Squamous Cell Vulvar Cancer: Who out there has this cancer?
Just diagnosed a week ago. Who is out there with this cancer? Looking for advise, tips and what to expect as I start my journey. TIA
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Yes I had SCC vulvar cancer I had 4 surgeries in 17 months they last said everything looks good after they sewed up my vulva closed and removed my clitoris and four days ago I developed SCC on my tongue base back of throat. I don't know what to do. Feel so defeated. 😭
I hope you are feeling better now...
First I had radiation and chemo altogether. I really can't remember how long. I do know that it did not kill the cancer. I haded aP.E.T. SCAN the Doctor say the scan look good. But I felt something the morning of my visit and ask my Doctor to lool at it..so back to biopsy again. The biopsy this time came back negative but that it would be come cancer if left alone. So back to the hospital and they remove the could be cancer and they send that off and it was definitely full-blown cancer.
So we went in remove my left Vulva and my Clitoris was removed too. Then I waited.. Everything went well in that part. I also had cancer in my Limp note On my left side of my groin the Radiation fried it so no cancer but I in up with..
More later..But so happy to be here with my Grandchildren!!
killed the cancer in the limp node
But it no longer works ( Please excuse my spelling) so my left has
Hi @debbiemcginnis, I'm glad that you were able to get a second opinion. May I ask what treatments you have had or are having? How are you doing?
Hi @ladee, you're right. Melanoma is often associated with sun exposure. But melanomas also can develop in areas of the body that have little or no exposure to the sun. In fact, even inside the body.
All the best with the biopsy. I hope you saw the reassuring post from @buffalogal too.
No need to be concerned about a Vulvar biopsy. I've had it done twice with minimal pain or problem. My lesion was first biopsied by my Gynecologic who put 2 stitches in then biopsied again by the cancer Doctor who closed the spot with silver nitrate. The second time was easiest with very little discomfort or problems afterward. I healed from both procedures within 5-7 days.
Please, get another medical opinion. I waiting to long to see one. But so gald I did see one. I am still going through my journey of having Vulvar cancer...
I recently was diagnosed with VAIN1 after abnormal pap. I have no cervix so diagnosis was very surprising. Then, when the internal biopsy was being completed the Gyno doctor said you have vulva lesions and would like your dermatologists (never would have thought derm doctor) to biopsy the lesions to check for melanoma. Just had Melanoma and Basil surgery on my back in Oct 2023. Had no idea you could get melanoma where no sunshine is involved. The biopsy on the external sounds very painful compared to internal. Jan 25th will have biopsy. Read can take two or three weeks to heal from biopsy. Does that sound right?
How are you doing?
I have melanoma vulvar cancer. Had first appt. at Mayo Dec.6th and they took out ulcerated tumor to biopsy and found that it was melanoma vulvar and had a radical vulvectomy seven days ago. They did a sentinel node biopsy, took out the lymph node and it was clear. I go back to Mayo tomorrow morning for my check up. Was hoping to get the drain out but it has to be below 20 cc a day for two days and I am still over 300 cc for one day! They said not to worry and it could stay in two to three weeks to get fluid out so there is less of a chance of lymphedema in my legs. Recovery should take four to six weeks and I will be monitored closely after that for a recurrence but so far, I have been extremely impressed with Mayo Clinic and am happy I am there!