Squamous Cell Vulvar Cancer: Who out there has this cancer?

Thank you for sharing.
Did you have any irritation and if so what did you use to help?

I had vulvar cancer and lots of radiation. I had bowel prolapse and bladder incontience. I found a brilliant surgeon. She did a temporary illeostomy and then reversed it. Also had a urogyn tighten the ligaments to the bladder (during the same surgery). It all worked! Im not wearing Depends anymore!

I'm tagging a few other members who also had radiation and chemo for vulvar cancer like @bobette1 @scm @sillywabbit @annie7837 @westnp1 @misstrouble @cjp930 @stolisnc30 @4chickens @mezzojo so that they see your question about tips for dealing with continued irritation in the vulvar area and possible creams that might help.

@andwho, you also mention bladder and bowel incontinence. What steps have been suggested to help with bladder and bowel control?

Looking for some advice.
I was diagnosed with vulvar cancer 2 yrs ago. 32 rounds of radiation (no surgery) 3 rounds of chemo. As of now no sign of cancer. Still dealing with irritation in that area that comes & first. Any cream suggestions? Also suffering with loss of bladder & bowel control.
Otherwise glad to be alive!
Any feedback would help!

No. It does not bang like an MRI! I have now had four at Mayo in Rochester! You stay in your clothes and you can have whatever type of music playing for you. You are in and out of a tube for about twenty minutes. The only bad part is that they will put you in a dark room for an hour before and infuse you with the radiation dye that will go through your system and identify any cancer. It is the latest and greatest at identifying any cancer anywhere in the body.

Is it with X-rays? Or sound like an MRI?

I wish you all the luck in the world, my grandmother had squamous cell in her ears neck and throat and that was devastating to watch, do you know what stage you're in yet? I pray that you have a good oncologist. Stay positive and strong willed miracles happen every day

The pet scan will show if you have cancer anywhere. It is easy! Do not worry! Best way to find any cancer!

I was diagnosed with vulvar melanoma and had a radical vulvectomy in January of this year. I go back to Mayo every 90 days to have a pet scan and physical exam. The surgeon believes that she got it all since she got clear margins and no lymph nodes had been impacted. Every day is a blessing! If it returns, I will have a combo immunotherapy. I had Dr. Bakkum in Rochester and she has been great throughout this journey. I did get Mersa from the drains and went back to Rochester for five days. I would be happy to answer any questions as this is a rare and frightening cancer.

Thank you for responding.
One thing for sure is the skin on the vulvar has never been the same. It is very sensitive & delicate. I just think I have to accept the changes in my body. Please share anything. Thanks for listening.