Visualizing and manifestation

@ssoma151 Welcome to our group. I see that .i,e many of us, your diagnosis did not come for a long time. Are you seeing a pulmonologist now? Have they suggested the practice of daily airway clearance to you? It would fit well with your visualization practice, and help remove the mucus in your lungs that harbors bacteria.
Have you had another sputum culture yet to see if the infection is abating?

Yes, I am seeing a doctor. We haven’t done a second sputum test yet, but I have one coming up next month as well as a CAT scan to see if anything has gotten better. I have started using a nebulizer as well as going to a dry sauna every day and that seems to help. It seems to be a day by day event for me some days. It seems like it’s getting better some days. It seems like it’s getting worse, but I can look at things like I love the garden last year trying to plant my potatoes I couldn’t do it this year. I got all my potatoes planted and I’ve been able to work in the garden a lot more than I did last year. I also can go upstairs walk around the store and I even walk to the end of the block a few weeks ago, but I’m still very tired every day and fatigue is all the time being sick as exhausting and to overcome that I’ve started meditating and visualizing myself being well. I think we have a lot of power in our mind to cure ourselves because our bodies are supposed to be healthy, but I’ve did things on my side that I needed to do. I stopped eating fast food. I stopped eating sugar. I started eating better and I started being more positive and thankful for things that I do have in life that seems to have helped more than anything.

When I get sick, I often need to go back to the practice I had when I had MAC and was on antibiotics. Twenty minutes activity, 20 minutes rest. Then repeat. Sometimes it took all day just to do 2 loads of laundry, but it got better. I still need to let my body guide me, but I can do a lot more. I have hired out the heavier work in my garden and am simplifying as much as possible. Potatoes will go in a week from now. Still too early in MN for a lot of thecother veggies.

Hi, Sue,

You were just my second mentor story to pull up and I was excited, tho not happy, about our same challenges. BE, psuedomonis and MAC.

The reason I would like a mentor is because my far away sister in DE also has it, later found after me, so we are our sole supports. However, she has alot on her plate with taking care of an invalid 90 year old husband who is not fond of me nor I am of him. I would like another supportive place to hear other's research and info of people's personal challenges.

I have depression and assumed my fatigue and sleeping alot was my problem. Now I hear the word fatigue used alot and from my sister.

Since a contentious divorce 20 years to present, my children, now in 40s favor their beer drinking abusive father as if they had to take sides. Now I have 4 grandchildren who are far away tho I still get daily pictures and videos, even tho my daughter is taking a break from me. My son, far away doesn't talk much, but I see him once a year and sometimes do facetime and he calls me twice a year, an improvement.

I guess to sum up, I have all these health challenges with no family and I've chosen to let friends drop out, and use to be the social organizer with many friends. This disease I realize and heard from you can cause fatigue. I'm really grateful to have an answer to my years of fatigue.

I live in CT in a lovely condo, but with stairs. Because of my sedentary life at 77, I've gained too much weight. I've been granted at home occupational therapy for strength building and soon some specifically for lower back issues, arthritis and weak.

I feel good, tho, because I'm progressing with exercises and less depressed and lonely. But this medical site for BE and infections has really help so much already hearing other's experiences and I love learning new things.

Reading these stories I don't feel all alone. And I'm finding other groups to join for weight loss and chronic diseases. I had faith that more would open up for me but my depression said differently.

What helps me most is my faith and sister and I sending 5 gratitudes a day to each other.

I just miss having a family, tho glad to be divorced. Everyone suffers and I know how blessed I am with great doctors and now this site.

As you can see, I write alot, probably because I only have my sister to connect with. I really connected with your story, which helped me accept my fatigue and sleeping so much. If you had some time, energy and desire to write back, that would be nice and helpful. I try to support my sister but I dont want to be this sick sister to her and my two close friends. Do you have a mentor? I have a great therapist, pt gal and great pulmonoligist. Do you have an infectious disease docs?
Have you had BE and infections for long? Do you know how you got it?

Weekends are tough when friends aren't available, but I enjoy my own company, just not all week long. 😊

It sounds like you have a nice family system, which is unusual to hear, and that gives me hope.

Thanks for listening and thanks for your story.😇

Feel free to converse with all the members here - many have stories similar to yours.
Are you on antibiotic therapy and doing airway clearance? You might want to chat with @blm1007blm1007 about her journey.

Hello Tevadog-
I really think what you and your sister are doing "sending 5 gratitude(s) a day to each other" is a great idea.
Another good thing is what @ssoma151 has mentioned and suggested above. I have done that somewhat when doing my simple exercise but hope to incorporate more of it while doing one of my postural drainage exercises. As we know mediation is always suggested to help during stress or difficult times. This health issue pushes us into things we may never have incorporated into our lives before, or at least not on a consistent basis. One thing I found myself saying a few years back, that I had not heard others saying " Human nature is stronger than self discipline." So as I said, we find ourselves needing to break certain habits while developing and practicing greater and stronger self discipline...and that is not an easy thing to do if one has had any easy life, as I, with no chronic health problem until now.
My diagnosis finally came after approximately three years (age 79) of my first experiencing of what I now know was the beginning of my lungs inability to work normally in clearing the mucus out naturally from my lungs.
For me it is nearly a constant need to clear what is in my throat all day long. I do some simple exercises before doing my air lung therapy to clear the mucus out twice a day and then deep breathing with the 4/7/8 count before doing huff coughing several times a day, especially after eating due to the feeling of mucus needing to be cleared out.
I am single myself and truly understand all you have gone through to be saying what you have said above about where you find yourself in life now after having lived through all you did until now. Life happens, people are who they are and we are who we are....it all plays a part in the big picture. Having been involved with several immediate family members with their own chronic health problems before their passing now allows me to be able to fully concentrate on my own health and allows me the time to do all that I need to do for myself. I have very much had to talk to myself and have come to accept my life as it is now with it's limitations due to the BE and what it causes for me, HOWEVER, there are times I need to talk to myself and give myself a talking to. So far the pep talks have helped keep me going especially with my trading one favorite activity (time wise) for another. More time cooking vs. time gardening in the landscape beds, which I do not do anymore. I have help with the landscape and flower beds, so far, the beauty of it all brings me joy. I do have an inground swimming pool that I just recently said to myself about it: "its like having a kid that never grew up and learned how to take care of themselves." The pool however is shared a few times in the summer with a few of my neighbors to enjoy and allows us to visit with each other. That's a good thing and one of the changes I have made to help me find my way to making the changes I needed to make..... to enjoy life as it is now.
Glad you have your sister to help with the support you need and then in reverse that which you are able to give to her. It will be interesting for you both to hear and share what your doctors have said and discussed with you both. I have a "baby sister" (Age 69) in New Jersey and I am in Oklahoma City. It is just she and I . We have lost all other immediate family members. I have suggested she be tested due to all I know about her. So far I'm not sure she feels it is necessary.
Hope you are having a good day.
Barbara

Thanks for all your positive comments.

We have a condo pool. Are there any recommendations for BE conditions?

Is it an interior pool (within a building structure) or outdoor pool? That makes a big difference in terms of possible bacteria within an enclosed, interior building pool environment.

Outdoor.