VEXAS Syndrome; how often are men over 50 misdiagnosed?

VEXAS is a newly discovered (December, 2020) Auto-inflammatory disease affecting hundreds of thousands of men over 50, and most of them don't know it. There are two great sources of information online: The VEXAS Support Group on Facebook (this is a private group, so visit and apply to join) is a forum for VEXAS afflicted, their families and friends, and the medical community, and The VEXAS Foundation (vexas.org). Both are excellent sources of information for Research, treatment options, and ongoing studies.
At the end of 2019 I began to display round skin lesions, which my dermatologist at the time diagnosed as Hives. I was suspect, but went along for a time. After several months I visited another dermatologist, who took a much more involved approached, including biopsies, and determined that I had Lupus and Sweets Syndrome and began appropriate treatment. After months of treatment not working, and more symptoms displaying, she sent me to the Univ. of Miami Research facility. Fortunately her referral connected me with the first person who actually had some familiarity with VEXAS, and she recommended a genetic test ($100), which confirmed the diagnosis. Within months I was on medication that addressed 80% of the symptoms I'd been suffering from for over 2 years at that point. My life started to become my own.
I am writing this because very few within the medical community are even aware of this new disease, and the NIH estimates that there are hundreds of thousands of men over 50 with this disease who don't know it!
Please spread the word and visit these two sites.
Blessings!