Acoustic Neuroma: Auditory symptoms are overwhelming

I was diagnosed in May with AN. Repeat MRI oct and has grown but still small so on wait and watch. I been experiencing a lot more tinnitus and balance/dizziness in the last month. I feel like at times it is harder to walk. Like I am drunk or something! My hearing is still pretty good. My neurosurgeon said symptoms are totally unrelated to size of tumor you have. Could have a large AN with no symptoms or a small one with a lot of symptoms. When time comes, I will have surgery. I was informed that if you have radiation and surgery down the road is needed that it will be harder to do.
Good luck!

1999 had a very large AN removed that was pressing on my brain stem.

Just listened to a podcast about the options, etc. Very informative.
AcousticNeuroma Association through Mayo Clinic.

I was diagnosed with a 1.5 centimeter vestibular tumor and was wondering what is the best treatment. Radiation or surgery. Meet with oncologist March 3rd

Thank you. I have a constant ringing/humming that became really noticeable this past February. I also have hearing loss on the left side. I did get new hearing aids which help with the loss, not the tinnitus (not yet). Recommended to wait and monitor at this point.

Hi @bobbimck, I'm bringing fellow members like @kimneiman @karenmet @mohanak @cynaburst @alexie1942 @saucy into this discussion as they have experience with auditory symptoms related to an acoustic neuroma.

Bobbi, what auditory symptoms are you experiencing? Hearing loss, tinnitus, fullness? Has treatment been recommended?

Thank you!

Hi there. I initially thought I had an AN but it turned out to be a meningioma. The Acoustic Neuroma Association has an active forum on their website where you may find a bigger response. Really kind and informed people. Best of luck.