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Vestibular migraine: What symptoms do you experience?
good day members,
Johns Hopkins diagnosed me with vestibular migraine a little over one year ago. Prior to that no one knew what I had and I saw ENTs, neurologists, and many other Dr.s. MRI of close to two years ago shows all is normal. However, despite a respite of feeling almost normal for three months while taking a new medication (Effexor extended release at 75mg.) all of my symptoms came back full force for what I call episodes, at least once a week, and lasting up to three 3 days in bed. My symptoms for the last two years have been: popping ears, nausea, vertigo at the beginning which seems to have gone away and been replaced by dizziness and light headedness, tingling all over head, severe headaches, weakness to almost numbness in my arms, and severe fatigue. I can feel like a pressure in my head at times. I have not lost cognitive functions: that only occurred when I took Topiamate. My internist wants me to see a specialist at the Mayo Clinic, but I wonder if anyone else has experienced what my Hopkins Dr. calls very atypical VM symptoms?
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Hi frobvt
I got the air plugs. My app tells me to wear them every day. I am taking an anti-depressant along with magnesium and B2 every night before bed. For the first time in my life, I am having trouble sleeping. Waking around 2 or 3am and not able to get back. I am exhausted at work. I am still very dizzy at night and sometimes for a couple hours during the day. I have to wonder if I will ever be the same again. Just putting one foot in front of the other and plugging along. How long have you had this and is there a promise of ever getting rid of it?
Hi cmg,
I'm glad that you're having some better days! No, exercise doesn't do that to me at all. Have you gotten the earplugs yet, are they helping? Also, are you paying attention to the barometric pressure readings? I have more trouble when the pressure goes really low, or else very high. I forgot what medications you're taking. Could they be affecting your blood pressure?
Hi frobvt
Just wondering... I have been doing better on the medication and supplements suggested. However, I can have 5 great days, then wake up completely dizzy with that floating experience. I have always exercised and now wondering if that could be a trigger. Do you experience that after exercise as well?
cmg
You're very welcome!
Thank you... I figured it out.
Cmg,
When you open the app, at the very top left hand corner, you will see where it says to set the threshold. Tap that, and there's like a little dial where you can select the reading.
You don't set them, I was talking about the WeatherX app, to 0.03.
That is the lowest setting which signals a change in the barometric pressure either rising, or falling. You can call the company directly, and they will help you out quite a bit too.
Hi cmg,
The app on the phone will be pretty active, with several alerts, as the barometric pressure changes a lot.
So sorry the regular ones aren't fitting properly! Hoping the size small will fit better!
I have not figured out how to set them. You mentioned that you keep them on a low setting. I don't see where I have that option.
frobvt
So...I got the ear plugs. The phone has been telling me to wear them every day now. I got a size regular but they keep popping out, so I am going to order another pair in size small. Will keep you posted. Thanks for all your help.