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jeannen
@jeannen

Posts: 8
Joined: Feb 13, 2016

Vestibular disorder

Posted by @jeannen, May 31, 2016

I have severe dizziness when moving my head and or body upon standing. This causes my balance to be off. I don’t know what’s causing this but have inner ear problems as well. Is there anyone who has a cure for this? I have done therapy and the epley method.

REPLY

@jeannen There are several discussions about chronic dizziness that you may be interested in reading:
https://connect.mayoclinic.org/discussion/chronic-subjective-dizziness-csd/
https://connect.mayoclinic.org/discussion/constant-dizzinessimbalance/

In these discussions @mgvarela @claudia11 talk about vestibular neuritis. @callalily74 also recently wrote about balance issues and falling a lot.

Jeannen, have you been given a diagnosis of vestibular neuritis?

I have had constant dizziness since March 2011. I have gone to every doctor you can imagine and also have had numerous tests. Have not yet gotten a definite diagnosis. Needless to say it has thrown a huge monkey wrench into my life.

Welcome back to Connect @claudia11. How disheartening to hear that you have yet to get a diagnosis. How do you manage the dizziness?

@colleenyoung

@jeannen There are several discussions about chronic dizziness that you may be interested in reading:
https://connect.mayoclinic.org/discussion/chronic-subjective-dizziness-csd/
https://connect.mayoclinic.org/discussion/constant-dizzinessimbalance/

In these discussions @mgvarela @claudia11 talk about vestibular neuritis. @callalily74 also recently wrote about balance issues and falling a lot.

Jeannen, have you been given a diagnosis of vestibular neuritis?

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My diagnosis was Benign Paroximinal vestibular disorder one year ago. I went to therapy for 7 weeks with them doing the epley maneuver and one other maneuver where they put a mask on you which contains a camera. My eyes had to be open when they lay you back so they could see the movement of my eyes on a TV screen.. I also took Meclizine 12 mgs. It seemed to help for a while but never really went away. After each session they wanted me to sleep in a recliner at a 90 dg. angle. I haven’t seen a doctor yet and don’t know who to go to. I am 81 and was very active.

Liked by nessiewolfe

The EPLEY maneouver works well.. It must be done morning and night, or more
often if needed… Just remember to breathe when doing it and relax as much
as possible..If you do the EPLEY faithfully for 5 days straight, you should
have results. But, don’t stop abruptly,, keep doing this maneouver daily
for a couple of months or until you feel you have dealt adequately with the
Vertigo.(dizziness). However, if it persists, a medical specialist should
be sought to test for other causes. good luck, the EPLEY worked for me.

Hi,

It sounds like something I faced several years ago, Orthostatic
Hypotension. Have your doctor or yourself take your blood pressure while
sitting down. Attach the cuff next, to your leg and stand up and take the
blood pressure. The doctor told me that since I had a 20 point dviation
between both; I had Orthostatic Hypotension. What it means “is that from a
sitting position to other as noted, your circulation is slower in reaching
the brain.” The reason being that your red blood cells carry Oxygen and
when it is slow you often feel it through your brain senses by things like
dizzyness or unsteadyness–until it stabilizes in your system.

Kay

Hi, I have the same and just got over my bought with it. I had a Doc .
show me a simple way to get the crystals in your inner ear to float back up
to the top of your Filia. You sit on the edge of your bed with legs up
facing your pillows. With your legs bent and your eyes open you lay back
fast, and when your back is on the bed hang your head over edge of bed and
stay there for 30 sec. You need to do this 3 or 4 times a day until
symptoms are gone. It can take up to a week more or less. If you are
afraid of falling off edge of bed put some pillows on floor or a chair to
hold on to. Don’t hit your head!!! I hope this helps you with your
vertigo, Missie​ Oh, you also need to switch around and do the other
side 😉

@missie

Hi, I have the same and just got over my bought with it. I had a Doc .
show me a simple way to get the crystals in your inner ear to float back up
to the top of your Filia. You sit on the edge of your bed with legs up
facing your pillows. With your legs bent and your eyes open you lay back
fast, and when your back is on the bed hang your head over edge of bed and
stay there for 30 sec. You need to do this 3 or 4 times a day until
symptoms are gone. It can take up to a week more or less. If you are
afraid of falling off edge of bed put some pillows on floor or a chair to
hold on to. Don’t hit your head!!! I hope this helps you with your
vertigo, Missie​ Oh, you also need to switch around and do the other
side 😉

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It seems like I haven’t been quite able to fully explain what happens when I fall or swerve into a wall, doorway, etc. I NEVER, EVER FEEL DIZZY! No dizzy spells or other feelings. Just tipping over and swerving.
I appreciate all your advice, but I’d like to know if anyone has this same condition. Thanks so much.

@missie

Hi, I have the same and just got over my bought with it. I had a Doc .
show me a simple way to get the crystals in your inner ear to float back up
to the top of your Filia. You sit on the edge of your bed with legs up
facing your pillows. With your legs bent and your eyes open you lay back
fast, and when your back is on the bed hang your head over edge of bed and
stay there for 30 sec. You need to do this 3 or 4 times a day until
symptoms are gone. It can take up to a week more or less. If you are
afraid of falling off edge of bed put some pillows on floor or a chair to
hold on to. Don’t hit your head!!! I hope this helps you with your
vertigo, Missie​ Oh, you also need to switch around and do the other
side 😉

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I’ve had vertigo for no reason,, like poop happens,, and the EPLEY maneover diagram plus INSTRUCTIONS can be found on the web or your doctor can print you a copy (if you don’t have a printer at home)… yes, the head has to be tilted so the crown is on the bed, and a firm pillow is put on the lower shoulder blades.. do this twice daily, or more if necessary… it does move the crystals and u will get relief… always, always,, report to your health professisonal any other serious illnesses that you can’t deal with at home…. good luk

@missie

Hi, I have the same and just got over my bought with it. I had a Doc .
show me a simple way to get the crystals in your inner ear to float back up
to the top of your Filia. You sit on the edge of your bed with legs up
facing your pillows. With your legs bent and your eyes open you lay back
fast, and when your back is on the bed hang your head over edge of bed and
stay there for 30 sec. You need to do this 3 or 4 times a day until
symptoms are gone. It can take up to a week more or less. If you are
afraid of falling off edge of bed put some pillows on floor or a chair to
hold on to. Don’t hit your head!!! I hope this helps you with your
vertigo, Missie​ Oh, you also need to switch around and do the other
side 😉

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I thought I had vertigo…. My ENT told me it was my crystals and sent me to a PT. after testing with “Real Goggles”, they suggested I have an MRI… Abnormal place on the right side of my brain… Neurologist…brain surgery…. TAKE THIS CONDITION SERIOUSLY. IT WAS NOT VERTIGO OR MY CRYSTALS…….

I have to get up very slowly and keep my head straight when I get up. I also take Meclizine for the nausea. I have also worn a neck brace when I’m moving around and doing my work. The computer screen also gives me problems if I tip my head so the neck brace helps keep it in the right position. Have you been examined for a pinched nerve in your neck?

@jeannen

I have to get up very slowly and keep my head straight when I get up. I also take Meclizine for the nausea. I have also worn a neck brace when I’m moving around and doing my work. The computer screen also gives me problems if I tip my head so the neck brace helps keep it in the right position. Have you been examined for a pinched nerve in your neck?

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I too, thought I had a pinched nerve I did get the ‘shot’. I was beyond that. I had the surgery and it was the best decision ever!!! So very thankful for ” modern surgery “. My Dr. Went in my neck– c1-7.

@jeannen

I have to get up very slowly and keep my head straight when I get up. I also take Meclizine for the nausea. I have also worn a neck brace when I’m moving around and doing my work. The computer screen also gives me problems if I tip my head so the neck brace helps keep it in the right position. Have you been examined for a pinched nerve in your neck?

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The pinched nerve was ruled out following a CT/MRI. I had severe spinal stenosis and my C spine was a disaster. Post surgery, I have felt great!!.

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