Vestibular disorder

Posted by jeannen @jeannen, May 31, 2016

I have severe dizziness when moving my head and or body upon standing. This causes my balance to be off. I don't know what's causing this but have inner ear problems as well. Is there anyone who has a cure for this? I have done therapy and the epley method.

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@jeannen There are several discussions about chronic dizziness that you may be interested in reading:
https://connect.mayoclinic.org/discussion/chronic-subjective-dizziness-csd/
https://connect.mayoclinic.org/discussion/constant-dizzinessimbalance/

In these discussions @mgvarela @claudia11 talk about vestibular neuritis. @callalily74 also recently wrote about balance issues and falling a lot.

Jeannen, have you been given a diagnosis of vestibular neuritis?

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I have had constant dizziness since March 2011. I have gone to every doctor you can imagine and also have had numerous tests. Have not yet gotten a definite diagnosis. Needless to say it has thrown a huge monkey wrench into my life.

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Welcome back to Connect @claudia11. How disheartening to hear that you have yet to get a diagnosis. How do you manage the dizziness?

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@colleenyoung

@jeannen There are several discussions about chronic dizziness that you may be interested in reading:
https://connect.mayoclinic.org/discussion/chronic-subjective-dizziness-csd/
https://connect.mayoclinic.org/discussion/constant-dizzinessimbalance/

In these discussions @mgvarela @claudia11 talk about vestibular neuritis. @callalily74 also recently wrote about balance issues and falling a lot.

Jeannen, have you been given a diagnosis of vestibular neuritis?

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My diagnosis was Benign Paroximinal vestibular disorder one year ago. I went to therapy for 7 weeks with them doing the epley maneuver and one other maneuver where they put a mask on you which contains a camera. My eyes had to be open when they lay you back so they could see the movement of my eyes on a TV screen.. I also took Meclizine 12 mgs. It seemed to help for a while but never really went away. After each session they wanted me to sleep in a recliner at a 90 dg. angle. I haven't seen a doctor yet and don't know who to go to. I am 81 and was very active.

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The EPLEY maneouver works well.. It must be done morning and night, or more<br>often if needed... Just remember to breathe when doing it and relax as much<br>as possible..If you do the EPLEY faithfully for 5 days straight, you should<br>have results. But, don't stop abruptly,, keep doing this maneouver daily<br>for a couple of months or until you feel you have dealt adequately with the<br>Vertigo.(dizziness). However, if it persists, a medical specialist should<br>be sought to test for other causes. good luck, the EPLEY worked for me.<br>

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Hi,<br><br>It sounds like something I faced several years ago, Orthostatic<br>Hypotension. Have your doctor or yourself take your blood pressure while<br>sitting down. Attach the cuff next, to your leg and stand up and take the<br>blood pressure. The doctor told me that since I had a 20 point dviation<br>between both; I had Orthostatic Hypotension. What it means "is that from a<br>sitting position to other as noted, your circulation is slower in reaching<br>the brain." The reason being that your red blood cells carry Oxygen and<br>when it is slow you often feel it through your brain senses by things like<br>dizzyness or unsteadyness--until it stabilizes in your system.<br><br>Kay<br>

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Hi, I have the same and just got over my bought with it. I had a Doc .<br>show me a simple way to get the crystals in your inner ear to float back up<br>to the top of your Filia. You sit on the edge of your bed with legs up<br>facing your pillows. With your legs bent and your eyes open you lay back<br>fast, and when your back is on the bed hang your head over edge of bed and<br>stay there for 30 sec. You need to do this 3 or 4 times a day until<br>symptoms are gone. It can take up to a week more or less. If you are<br>afraid of falling off edge of bed put some pillows on floor or a chair to<br>hold on to. Don't hit your head!!! I hope this helps you with your<br>vertigo, Missie​ Oh, you also need to switch around and do the other<br>side ;)<br>

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@missie

Hi, I have the same and just got over my bought with it. I had a Doc .<br>show me a simple way to get the crystals in your inner ear to float back up<br>to the top of your Filia. You sit on the edge of your bed with legs up<br>facing your pillows. With your legs bent and your eyes open you lay back<br>fast, and when your back is on the bed hang your head over edge of bed and<br>stay there for 30 sec. You need to do this 3 or 4 times a day until<br>symptoms are gone. It can take up to a week more or less. If you are<br>afraid of falling off edge of bed put some pillows on floor or a chair to<br>hold on to. Don't hit your head!!! I hope this helps you with your<br>vertigo, Missie​ Oh, you also need to switch around and do the other<br>side ;)<br>

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It seems like I haven't been quite able to fully explain what happens when I fall or swerve into a wall, doorway, etc. I NEVER, EVER FEEL DIZZY! No dizzy spells or other feelings. Just tipping over and swerving.
I appreciate all your advice, but I'd like to know if anyone has this same condition. Thanks so much.

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@missie

Hi, I have the same and just got over my bought with it. I had a Doc .<br>show me a simple way to get the crystals in your inner ear to float back up<br>to the top of your Filia. You sit on the edge of your bed with legs up<br>facing your pillows. With your legs bent and your eyes open you lay back<br>fast, and when your back is on the bed hang your head over edge of bed and<br>stay there for 30 sec. You need to do this 3 or 4 times a day until<br>symptoms are gone. It can take up to a week more or less. If you are<br>afraid of falling off edge of bed put some pillows on floor or a chair to<br>hold on to. Don't hit your head!!! I hope this helps you with your<br>vertigo, Missie​ Oh, you also need to switch around and do the other<br>side ;)<br>

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I've had vertigo for no reason,, like poop happens,, and the EPLEY maneover diagram plus INSTRUCTIONS can be found on the web or your doctor can print you a copy (if you don't have a printer at home)... yes, the head has to be tilted so the crown is on the bed, and a firm pillow is put on the lower shoulder blades.. do this twice daily, or more if necessary... it does move the crystals and u will get relief... always, always,, report to your health professisonal any other serious illnesses that you can't deal with at home.... good luk

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@missie

Hi, I have the same and just got over my bought with it. I had a Doc .<br>show me a simple way to get the crystals in your inner ear to float back up<br>to the top of your Filia. You sit on the edge of your bed with legs up<br>facing your pillows. With your legs bent and your eyes open you lay back<br>fast, and when your back is on the bed hang your head over edge of bed and<br>stay there for 30 sec. You need to do this 3 or 4 times a day until<br>symptoms are gone. It can take up to a week more or less. If you are<br>afraid of falling off edge of bed put some pillows on floor or a chair to<br>hold on to. Don't hit your head!!! I hope this helps you with your<br>vertigo, Missie​ Oh, you also need to switch around and do the other<br>side ;)<br>

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I thought I had vertigo.... My ENT told me it was my crystals and sent me to a PT. after testing with "Real Goggles", they suggested I have an MRI... Abnormal place on the right side of my brain... Neurologist...brain surgery.... TAKE THIS CONDITION SERIOUSLY. IT WAS NOT VERTIGO OR MY CRYSTALS.......<br><br>

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