Very, very scared to have knee surgery and hip surgery

Posted by cindiwass @cindiwass, Jul 6, 2021

I am in constant pain, usually when I walk or stand, knee and hip. Of course, when I am on my recliner I'm not in much pain so I stay there a lot. I used to swim until about 5 years ago, but I notice the hip pain was even worse after I swam.
When I was much younger (I'm 77) I had a torn cartilage (basketball game where some kind soul [yes, sarcasm] pushed me down), and subsequently the cartilage was removed. That's what I remember the doctor told me. I was young (16) and healthy, I recovered quickly enough, but had swelling and trouble for years until finally it became unbearable. I would get cortisone shots lbut eventually stopped doing that. (They were painful anyway.) But about 5 years ago, pain extended to my right hip, excrutiating, more so than the knee. (Don't know why.) I've seen several doctors and they all tell me to get hip and knee replacement. I am scared. But the problem I'm having now is that the doctors (I've seen quite a few) all tell me that I need to have a replacement, that I have arthritis. One doctor got upset when I asked him for more detailed information. And I didn't know how to ask the surgeon for detailed info, like what would he do and could he please explain what the x-rays showed. (Also, why do I have pain?) But the pain really impedes me from living a normal life, that is, cleaning, organizing, straightening up, etc. I made an appointment with a surgeon near enough who has a reputation of being very kind and compassionate. So I hope he'll bear with my questions.

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@ddsack

Depending on the surgeon, I think some don't go into the detail they could because they are used to older patients that the doctors think can't or don't want to follow the medical technical terms. My brother-in-law is like this, he is a smart man, but when it comes to medicine he just wants it done and over and is not interested in the details. I, on the other hand, feel like I need to know everything involved, all your questions are very good! Any reputable doctor should be pleased to have a patient that tries to understand and be involved with their own care. My surgeon sometimes throws out terminology that I am not familiar with, so I try to repeat back to him what I think he said, and he can correct me if I misunderstood. Nothing sillier than nodding your head and pretending to understand when you need a better explanation.

As far as determining the size of the replacement part, my PT guy said he sometimes gets to sit in and watch some of the surgeries. He said they have a selection of sizes ready in the operating room. He said sometimes they even have joint sales reps attending with new and improved models that may be needed in difficult cases.

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hmmm, I'll add that to my list of questions about the availability of different parts in the surgery room.

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I got one report from the last orthopedic surgeon I saw. he has an excellent reputation around here, but (1) the office has a "new system" now and so couldn't retrieve my xray records from 3 years ago -- they said it would take a few weeks for them to get it from the company. She gave me the most recent report from the visit I had about 3 weeks ago. Included an analysis of the x-ray, which was interesting, and I will bring it to the next surgeon. But the interview I had with him was about my hip, not the knee, which was x-rayed like 3 years ago. The report said that I had a long visit with him. Astounding. It was not a long visit. Amazing. Maybe anything over 8 minutes is a long visit? However, another surgeon that I didn't like (also a good reputation) took a knee x-ray a few months ago and I intend to get that as well. Today I wore a capsaicin patch and I feel much better, still hurts but nothing like before, but I intend to see another doctor, hopefully we can 'talk.'

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By the way, would the next surgeon prefer to see the x-ray on the disc, or would he be ok with the written analysis of the x-ray?

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I was terrified when I was told I needed a reverse total shoulder replacement in 2019 after years of extreme pain and a failed shoulder surgery. I feel it failed in a large part to poor physical therapy. My military surgeon explained everything asked what questions we (husband and I) had then said he leave us to talk then came back to us. As an RN myself I knew if I wanted to have some kind of a life I needed to do it, but I was a wreck. He told me to find a physical therapy place I would like to go to and let him know. I started calling physical therapy places in area then went to visit them. I was very impressed by one I found essentially because I would have the same therapist for each visit. My surgeon said shoulder is most difficult to get through,
Knee replacement was second and hip was the easiest to recover from. So went thru surgery got the replacement it was difficult but between help from family, the surgeon and therapist I have a life again. It took me 1 yr and half to get there but it’s worth it. It takes a lifetime of commitment to exercise regimen. I go back to my therapist if I overdue shoulder and get dry needled which helps a lot. So 2 years post op visit to me surgeon I explained issues with knee, had completely torn meniscus years ago but had fallen causing issues so just had a knee replacement surgery 2 months ago with my same surgeon and therapist. Am not finished with therapy yet but I know with hard work I will get there. Great surgeon and therapist are so important as well as a commitment to exercise regimen for a lifetime. My surgeon for my knee used Rosa the robot to do my knee and I was able to watch a surgery using that robot on utube. Anywhere you get X-rays or mris you should be able to get copies of X-rays and radiology reports. Hospitals sometimes charge a small fee as they have in my experience put them on a computer disk. Good luck to you

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@cindiwass

By the way, would the next surgeon prefer to see the x-ray on the disc, or would he be ok with the written analysis of the x-ray?

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The surgeon will want to see the actual image, but don't be surprised if he/she wants to take their own current films.
Most want to be sure they are looking at exact/current condition before making recommendations.
Sue

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@dmk

I was terrified when I was told I needed a reverse total shoulder replacement in 2019 after years of extreme pain and a failed shoulder surgery. I feel it failed in a large part to poor physical therapy. My military surgeon explained everything asked what questions we (husband and I) had then said he leave us to talk then came back to us. As an RN myself I knew if I wanted to have some kind of a life I needed to do it, but I was a wreck. He told me to find a physical therapy place I would like to go to and let him know. I started calling physical therapy places in area then went to visit them. I was very impressed by one I found essentially because I would have the same therapist for each visit. My surgeon said shoulder is most difficult to get through,
Knee replacement was second and hip was the easiest to recover from. So went thru surgery got the replacement it was difficult but between help from family, the surgeon and therapist I have a life again. It took me 1 yr and half to get there but it’s worth it. It takes a lifetime of commitment to exercise regimen. I go back to my therapist if I overdue shoulder and get dry needled which helps a lot. So 2 years post op visit to me surgeon I explained issues with knee, had completely torn meniscus years ago but had fallen causing issues so just had a knee replacement surgery 2 months ago with my same surgeon and therapist. Am not finished with therapy yet but I know with hard work I will get there. Great surgeon and therapist are so important as well as a commitment to exercise regimen for a lifetime. My surgeon for my knee used Rosa the robot to do my knee and I was able to watch a surgery using that robot on utube. Anywhere you get X-rays or mris you should be able to get copies of X-rays and radiology reports. Hospitals sometimes charge a small fee as they have in my experience put them on a computer disk. Good luck to you

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Thank you for your detailed and positive report. You are showing us how to be our own best advocate when it comes to medical care. After all, who cares more about the results than the patient? And a good ortho/PT team is priceless in getting the best care.

Also, thanks for reminding us that even months/years later, sometimes we need a "tune up" to keep running our best.
Sue

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@cindiwass

Another good question, because it's my right hip and my right knee that gives me trouble, a lot of trouble. (Pain.) So I need to ask (thanks again) which should be done first, and then again -- the question is -- why.

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I had same situation. Once hip or knee is injured your gait becomes altered. I didn't even realize I was limping until family and friends pointed it out. I really wanted to do my knee first but dr wanted to do my hip. Physical therapy is the MOST IMPORTANT thing you can do for recovery. You have to stay with it as hard as it may seem on some days, to make full recovery. It is worth it!

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@sueinmn

Are you still using the magic treatment - ice? After my ACL/MCL replacements, I iced for nearly 6 months - even once a day at work. The other helps for swelling are "legs up the wall" lie on your back with your legs resting on a wall (moves fluid up to the abdomen where body can get rid of it.) And lymphatic massage using a "stripping motion" toward your heart (if someone can do it for you while your legs are up it is especially good.)

Your determination to recover are an inspiration. Thanks for sharing your journey.
Sue

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See, really? Makes sense. I never thought of legs up the wall so it goes to the abdomen. Great tip, thanks for sharing.

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@lk3xs

I had same situation. Once hip or knee is injured your gait becomes altered. I didn't even realize I was limping until family and friends pointed it out. I really wanted to do my knee first but dr wanted to do my hip. Physical therapy is the MOST IMPORTANT thing you can do for recovery. You have to stay with it as hard as it may seem on some days, to make full recovery. It is worth it!

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Ok. I can't figure why my hip started bothering me so much after all these years. It was my right knee that had surgery, removed cartelage (?) so many years ago. In fact, I was able to use my right knee more than my left knee stepping up curbs, etc. But suddenly about 3 years ago my right hip muscles(?), nerves (?) began aching aching badly. And now I really cannot walk well. At all. Which leaves open the question, what is hurting by the hip? And which should be done first, the hip or the knee? And as far as rehab goes, which is better to do first? Yes, I see doctor in a couple of days and will ask. If I don't get answers that satisfy me I'm going somewhere else for the surgery even if he's the greatest surgeon around here. I think.

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@cindiwass

Ok. I can't figure why my hip started bothering me so much after all these years. It was my right knee that had surgery, removed cartelage (?) so many years ago. In fact, I was able to use my right knee more than my left knee stepping up curbs, etc. But suddenly about 3 years ago my right hip muscles(?), nerves (?) began aching aching badly. And now I really cannot walk well. At all. Which leaves open the question, what is hurting by the hip? And which should be done first, the hip or the knee? And as far as rehab goes, which is better to do first? Yes, I see doctor in a couple of days and will ask. If I don't get answers that satisfy me I'm going somewhere else for the surgery even if he's the greatest surgeon around here. I think.

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I am not a doctor but I believe it is easier to rehab after hip replacement than knee. And if it has more pain than the knee will you be able to do knee rehab before the hip is fixed?

Also when my bad hip implant was replaced with a new one ten years ago,, the knee actually hurt worse than the hip. After surgery when I was able to walk normally the knee felt better. But this year the arthritis there is yelling louder each week so pretty soon I might be replacing yet another worn out joint.

Keep asking questions. The more you learn the better your outcome will be.

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