Very new to PMR

Posted by jenimom @jenimom, Nov 25, 2023

I am weaning down and am currently in 15 mg prednisone, down from 40. Was doing good but 2 days ago started feeling aweful. I get up at 4:30 so I can get to work by 8:00. The pain is not really tolerable until mid afternoon. Does anyone take their prednisone at night? I am a nurse and I need to work

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

I was just diagnosed with pmr but I've had ra for 4 + years. Still trying to figure out things.

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I was diagnosed with PMR then also developed Giant cell Arteritis (both temples). I was on 60 mg to start.
After about 6 months I gradually tapered down.
My rheumatologist has now has me on 5 mg prednisone at 6 pm. When I was on higher dose he split it between am and 6 pm. Higher dose a 6. I also take Spironolactone am and 6 pm. (For water retention and other side effects of prednisone. ).
Also on Tizaidine ( 1 tab one hour before bed) along with gabapentin at bedtime.
It all seems to work well for me. I actually get about 7 hrs of sleep about 5 days a week.
Hope this helps.

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carlotta | @carlotta | 1 second ago
I was diagnosed with PMR then also developed Giant cell Arteritis (both temples). I was on 60 mg to start.
After about 6 months I gradually tapered down.
My rheumatologist has now has me on 5 mg prednisone at 6 pm. When I was on higher dose he split it between am and 6 pm. Higher dose a 6. I also take Spironolactone am and 6 pm. (For water retention and other side effects of prednisone. ).
Also on Tizaidine ( 1 tab one hour before bed) along with gabapentin at bedtime.
It all seems to work well for me. I actually get about 7 hrs of sleep about 5 days a week.

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@tjmjsjwj

I've had PMR since May. CRP of 140 down to 8. Pain almost gone. Pred dose from 60 to 7.5, currently. I've studied the disease religously for 6 months. I have been to several top autoimmune clinics and currently have an autoimmune specialist and am part of a global program geared towards healing the gut biome and healing the stomach wall lining. I'm happy to share my thoughts and experiences if you are interested.

Jump to this post

Id love to hear about your healing journey as it relates to gut biome.

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