Very high B12 +folate levels while vegetarian not taking supplements

Posted by EllAmster @ellamster, Sep 6, 2022

I have not been eating well for ages, a dietician told me I really needed to eat more proteins (among other things).
An internist years ago discovered i had low B12 levels and I had shots. But this is a long time ago.
A few years ago a GP ran tests > very high B12 levels. No need for shots.
And last week the new GP did the bloodwork: VERY high B12 levels and high folate levels.
I have been told that high B12 in the blood does in no way indicate that I don't have B12 deficiency. Instead it could be high but not be absorbed properly.

I don't eat meat.
I ate fish once this year and occasionally eat an egg say, once every two weeks.
I hardly drink dairy.
I don't take any supplements at all.

The GP asked which supplements I take. I don't take any supplements at all. He is stumped.
Does anyone recognise this? What could it be?
I too am so stumped.

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Could have you the MTHFR mutation. People who have that (like me) don’t absorb or process folate and B12 normally. There are a lot of doctors who don’t feel like MTHFR mutation is an issue, but it can cause a lot of health issues, including stroke, TIA, miscarriage, etc.

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@lisag03

Could have you the MTHFR mutation. People who have that (like me) don’t absorb or process folate and B12 normally. There are a lot of doctors who don’t feel like MTHFR mutation is an issue, but it can cause a lot of health issues, including stroke, TIA, miscarriage, etc.

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Do you have this too?
I have had a TIA and other health issues. After looking this up I think this might be what I have. The GP is completely stumped though. I will wait for his answer to see what can be done next.
If you have this; what have you done to remedy it? How are you doing, coping?

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I do have the MTHFR a mutation. I don’t get my B12 level tested that often but when I have, they are quite high. But I also take b12 shots weekly as I don’t absorb enough. I also take methyl folate daily to help. You may need to see a hematologist for diagnosis as many GP don’t know how to run the specific blood tests. I stumbled across this by accident after my sister has a TIA and they discovered she had it and recommended I get tested I have two copies of the mutation. I had multiple miscarriages and fertility issues prior to discovering this

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My B is very high, Hematologist doesn't think it's an issue? I was off supplements for 6mos with no change. I have a controllable liver mutation, ET.

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