Very aggressive DLBCL Lymphoma in 85 year old
Hello from Sydney Australia I need to connect with the best thought leaders doctors in the USA. Ann had stage 4 and was close to dying She had 3 rounds of R mini chop first round without docyrubicin After 3 rounds her PET indicated a remarkable result a complete metabolic response. There were delays in getting allied health services to oscillate her getting up snd going Under a senior physio she is presently used a low walker 300 to 400 metres a day plus 50 stand ups by herself She is cognitively great Due to the tumour load she had tumor lysis syndrome in first cycle and milder delirium for about 5 days - awake at night thirst repeats some words This was very very aggressive and we are scared it will come back Traditional. B symptoms were not there Just a cough and flu We want to tap into the best minds as to a way forward and don’t want it to be Rutiximab only cycles.The challenge is managing treatment Internationally known haematologists are intrigued by her case I want to connect with the right people in the USA Ann has done allot of the global health care community She has instrumentally helped pro bono hundreds of thousands of Australians with eye disease I’m asking for a global community of the greatest minds I can supply videos and ask her treating team to present her case
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Hi @zcurran. Welcome to Mayo Connect. Members in our community are not medical professionals so we can’t diagnosis conditions or offer treatments. But if you’d like to contact Mayo Clinic to possibly get a video consultation with someone who can help Ann, here is a link to International Referrals to get you started:
https://www.mayoclinic.org/international/appointment-process
Ann sounds like a very special woman. I hope you are able to find a specialist who can help her long term. Why are you reticent for her to have the Rituximab treatments if these were successful in the past?
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