Uterine Papillary Serous Carcinoma: What treatments did you have?

Posted by goldengirl2 @goldengirl2, Oct 25, 2018

Is there anyone out there who has gone through the treatments for this? I have had surgery , and chemo taxes/carboplatin. Radiation is suggested but no one seems to have any data to refer to as we are such a small group I’m guessing. Very nervous moving forward as to what to do.

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

Goldengirl2: Blood work is fine, if your CA125 and HE4,S are within normal range, but be alerted if either of these tests seem to increase in four consecutive tests, even if they are still within normal range. It may be a very early sign of recurrence. Even CT scans might not be beneficial at that early stage.

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Thank you, Polka Gal. I wish you and Golden Girl continuing excellent results on your check-ups. I have been thinking about you because I have become involved with an organization called SHARE in NY. They have been around a while offering support for breast and ovarian cancer survivors. This year they added uterine cancer survivors to their family. I am training to join their Helpline. They presented an excellent one-hour online program recently by Dr. Jennifer Mueller, gynecologic cancer surgeon at Memorial Sloan Kettering Cancer Center on the newest research for uterine cancer, including USPS. You can watch it here: https://www.sharecancersupport.org/new-treatment-options-for-uterine-cancer/ Wishing you all the best.

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@polkagal

@goldengirl Friend, thinking of you as I have another CT scan & 3-month check-up next week. I know we are on similar schedules, so praying for you and hoping you are well!

@embeth99 Thinking of you, too, Friend, and hoping all is well with you!

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Hello there ladies! you remembered, how kind. Mine is 2 weeks away and he’s only ever done blood work no CT scan since March 2019..hmm. No reason to believe all is not well so here’s to my almost last 3 month check up..After October I should be able to move to 6 month ones.. sending good vibes to you and nice to be roaming fee outside again :0

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@goldengirl Friend, thinking of you as I have another CT scan & 3-month check-up next week. I know we are on similar schedules, so praying for you and hoping you are well!

@embeth99 Thinking of you, too, Friend, and hoping all is well with you!

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@goldengirl2

And polkagal Ive been thinking of you as its time for our next check ups coming up I believe. Mine is March 20.

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@goldengirl2 you are so kind! 😊 Mine was mid-Feb & all is well! CA125 holding steady at 7 and everything else good. Feeling very blessed and grateful. Praying the same will be true for you on March 20, I will be thinking of you especially on that day. Sending hugs!

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@sofia74

No treatments yet. To see oncologist the 13.

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Sofia74, I had 10 weeks of chemo with carboplatin taxol and then 3 weekly brachytherapy treatments. I hope you have a plan in the works with your oncologist. My oncologist was so great. She worked the treatments around my youngest daughter’s wedding, which I will always be grateful about. Everyone in this thread is in my prayers.

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@sofia74

No treatments yet. To see oncologist the 13.

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It’s all a bit overwhelming but there is light at the end of it all! We are a great group on here to support you in any way we can.

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@polkagal

@sofia74 I have been thinking of you as well and hope you are ok!

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And polkagal Ive been thinking of you as its time for our next check ups coming up I believe. Mine is March 20.

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@sofia74

No treatments yet. To see oncologist the 13.

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@sofia74 I have been thinking of you as well and hope you are ok!

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@sofia74

No treatments yet. To see oncologist the 13.

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Hi @sofia74, just checking in. I hope your appointment with the oncologist went well. Did you get a treatment plan? What's next for you?

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