Uterine Papillary Serous Carcinoma: What treatments did you have?

Yes, welcome to our new ladies.. i am one year NED stage 3c upsc operated on a year ago may and chemo ending oct 31 2018. still have numerous odd aches twinges and fatigue hits me when i least expect it... i just rest

@goldengirl2 @bluemeade7 @bjkingape @slm101, will you join me in welcoming newcomers @embeth99 and @polkagal?
Beth and Polkagal, you stories of getting through treatment for stage 3A and 1A UPSC respectively and being NED (no evidence of disease) are inspiring. Treatment-related fatigue is a common long-term side effect of cancer. What tips do you have for others for accepting the fatigue when necessary and how to pace yourself to do the things that matter most to you?

March 20, 2017 began my active treatment for stage 3A, UPSC with a robotic complete hysterectomy. Same protocol as polkagal above, only I received 3 rounds of Brachytherapy following the completion of Carbo-Taxol chemo. I included supplements from an integrative medical doctor, most importantly Coriolus (15/day which I will continue until I am a 4-year cancer thriver), Reishi Gano (8x/day) and meditation. My neuropathy plateaued and then decreased to mild tingling with the supplements she recommended and I still take Seriphos to prevent any symptoms from recurring. I have never regained my original stamina and I am experimenting with different treatments for that. I have done week-long cleanses annually, the first to remove chemo toxins a few months following the end of my active treatment. I am interested in sharing with other members of this UPSC very special club how they are thriving following their active treatment. I don't have adequate words to express my gratitude to my surgeon, oncologist, radiation therapist and all members of their teams for everything they did during my active treatment. I send my loving support to those of you in the beginning of your journey to healing.

I was dx with Stage 1A UPSC June 2018. Had complete hysterectomy via DaVinci July 2018, 18 lymph nodes removed and all tested negative, pelvic washing had some cells present. My recovery went well, no major pain or complications to speak of, and 4 weeks later in Aug 2018 I had a port placed. The next day I had the first of 6 rounds of chemo, Carboplatin & Taxol administered every 3 weeks. In between my 1st and 2nd chemo infusions, I received 5 rounds of Brachytherapy and again, no major pain or complications. I also tolerated chemo well, was able to manage what little nausea I had, and did not have some of the more typical and expected side effects or reactions - no metal taste, no mouth sores or dryness, no constipation or diarrhea. I did lose my hair 2 weeks to the day after my 1st chemo infusion, and I did experience worsening fatigue with each chemo treatment. After my 3rd infusion, I began to experience neuropathy in my feet, consisting mainly of numbness. I returned to my job after my surgery recovery period had ended and was able to continue working throughout chemo treatments. All my treatments ended in Nov 2018 and I am now NED. I had excellent care and everyone from my gyn onc surgeon to my med onc to my rad onc to every nurse, receptionist....each of them was awesome! Now 8 months post treatment, I still do not have my original stamina back to 100% and am still dealing with the neuropathy, but my hair is back and slowly growing, and I feel very blessed and am very grateful. I am post-menopause and this journey began with one almost unnoticeable speck of blood, which led me to go to the dr. This "rare & agressive" cancer is terrifying! But I am proof you CAN get through it, and now I pray every day my NED continues. I am happy to share with and listen to anyone who needs it, as so many did for me.

What was your staging and what course of treatments have you had? I am so sorry that you have to go through this.

I am going to Mayo This Tuesday actually, for my 1st 3 month checkup. I was NED as of November but that was just after my last treatment. Welcome to our group.

Welcome to Connect, Stephanie @slm101. I'm confident that @bluemeade7 @goldengirl2 and @bjkingape will join me in welcoming you to Connect and share their experiences about uterine papillary serous carcinoma.

Stephanie, to inquire about Mayo's expertise in treating UPSC, you can contact them and inquire here: http://mayocl.in/1mtmR63
@bluemeade7 may have first-hand stories to share about Mayo.

Stephanie, WART stands for whole-abdominal radiotherapy. What treatments have you had? How are you doing?

Hi are you in remission with this?

What is WART?

I am in Philadelphia at Fox Chase and want to try Mayo for this. What is their success rate.