Night Pain: Using a knee wedge after total knee replacement?

Posted by connie1559 @connie1559, Jan 30, 2019

I had a right TKR on 1/21. Even in the hospital I couldn’t sleep at night because of knee pain.

Multiple sources, including a hospital issued post TKR book and my discharge instructions, warn against putting a pillow under the knee.

Does anyone know if a knee wedge would fall into the category of a pillow? Has anyone used a wedge with good results? Has anyone had their doctor or physical therapist tell them to not use a knee wedge?

I will ask my joint care coordinator tomorrow, but as I have been awake for the last 2-1/2 hours, I’ve had plenty of time to think about possible solutions to night pain. BTW, I am taking Rx pain meds, but pain still wakes me up every night. A knee wedge sounds good to me right now.

Thank you for any input.

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@connie1559

I have had trouble sleeping since Day 1. I have a history of insomnia. For about the last 3 years I have been sleeping almost like a normal person. The surgery put a stop to that. Even the night after the surgery I was in too much pain to sleep.

I had my surgery done by a surgeon that came highly recommended. It was a wonderful hospital and the nursing staff couldn’t have been more kind, caring, efficient and attentive. I was walking 3 hours after my surgery, PT started the next morning, and was twice a day until I was discharged the morning of the 4th day. I have continued at home and will start formal PT on 2/11.

The first day after surgery, my pain was not well controlled. When my surgeon made rounds the second day I mentioned it. He made an adjustment and I had less pain. Of course some pain is to be expected.

At discharge, I was given a week’s supply of pain meds. They lasted through the 9th day, and I called for a refill.

I was shocked at the lecture I got from the doctor’s nurse about opioids and addiction. She said she would ask the doctor and call me back. She called on the 10th day to say he was authorizing a 5 day refill and that was the last refill.

I’m still having significant pain, especially at night. I’m also having a lot of thigh pain and swelling. Supposedly that is because of a tourniquet and is not uncommon. The thigh pain is worse than the knee pain, which is almost gone. Right or wrong, I have been trying to save some of the pain meds for PT. I have heard it can be quite painful.

I can remember prior hospitalizations and surgeries in the past 25 years. The theory about pain was “Pain never felt is pain never felt”. Not so these days. Now it feels more like “One opioid can cause addiction”. I think if I had better pain control at night I could sleep. I think lack of sleep has a cumulative negative effect on healing and progress. It’s a sign of the times.

I have heard good things about acupuncture. I think I may give that a try.

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I just had my TKR on 2/7 and can relate to the pain. I am still using the opiods with the support of my doctor. Frankly, without them, I would not be hitting my flexion and extension goals. I am using the pills to achieve those goals and to get through brutal PT. But it's my every intention to wean off of them as soon as reasonable. I am sorry you are getting such a hard time and lectures- not fair. The pills are made for precisely these reasons- TKR or THR- and we are not using them for abuse. I will say that insomnia is still a real problem for me 9 days out even with the pain meds. I wake myself up with an alarm all night to dose myself and not get behind in the pain. Please ask to speak to your doctor if the nurses are trying to shame you. Feel better soon!

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@amytro

I just had my TKR on 2/7 and can relate to the pain. I am still using the opiods with the support of my doctor. Frankly, without them, I would not be hitting my flexion and extension goals. I am using the pills to achieve those goals and to get through brutal PT. But it's my every intention to wean off of them as soon as reasonable. I am sorry you are getting such a hard time and lectures- not fair. The pills are made for precisely these reasons- TKR or THR- and we are not using them for abuse. I will say that insomnia is still a real problem for me 9 days out even with the pain meds. I wake myself up with an alarm all night to dose myself and not get behind in the pain. Please ask to speak to your doctor if the nurses are trying to shame you. Feel better soon!

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Thank you for your reply. Tomorrow I am 4 weeks post-op. I’m happy to report that I am doing very well. My flexion is at 113 after being stuck at 95 for about 5 days. Once I got past that it’s been easier to make progress each day. I’m using Ibuprofen and icing and elevating for pain control. Now that I’m off the Rx pain meds I have resumed talking Rx sleep meds. Most nights now sleeping isn’t a problem, but some nights I wake up with discomfort that keeps me awake for awhile.

I love walking with my new knee! After 14 years of progressive knee pain, I’m amazed at pain free walking. Overall, my TKR has been a good experience.

I hope you have great results with your new knee. Be well!

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@connie1559

Thank you for your reply. Tomorrow I am 4 weeks post-op. I’m happy to report that I am doing very well. My flexion is at 113 after being stuck at 95 for about 5 days. Once I got past that it’s been easier to make progress each day. I’m using Ibuprofen and icing and elevating for pain control. Now that I’m off the Rx pain meds I have resumed talking Rx sleep meds. Most nights now sleeping isn’t a problem, but some nights I wake up with discomfort that keeps me awake for awhile.

I love walking with my new knee! After 14 years of progressive knee pain, I’m amazed at pain free walking. Overall, my TKR has been a good experience.

I hope you have great results with your new knee. Be well!

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@connie1559 congratulations on your progress with your knee. It’s great to hear other success stories. I was thinking just yesterday, as I was walking rather fast, how wonderful to be able to do that, pain free.
JK

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@cotonmama

Night pain after total knee replacement

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Hi, @cotonmama Welcome to Connect.
I think night pain after a TKR is fairly common. How long ago was your surgery? I have had two TKRs. The first was long before the opioid crisis and I was using one, I think oxycodone, just one at night for about three months. The second was in 2017 and by then, doctors were much more conscious of not prescribing these drugs for long so I was prescribed something for a much shorter amount of time and that surgeon had me splitting pills to cut down.
Many people find the NSAIDs like ibuprofen to give them the relief they need. I unfortunately cannot take them so had to rely on acetaminophen which helped a little but not as much as ibuprofen would have.

There are many discussions here on TKRs. The first link here is for one about feeling a “tight band feeling”. The second one is about a burning feeling. Do either of these fit your pain, or is your pain different in some way?
JK

https://connect.mayoclinic.org/discussion/has-anyone-had-a-tight-band-feeling-after-total-knee-replacement/?pg=8#comment-356570https://connect.mayoclinic.org/discussion/burning-after-total-knee-replacement/?pg=5#comment-344018
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Night pain after total knee replacement

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@cotonmama

Night pain after total knee replacement

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Hi @cotonmama, I add my welcome. You'll notice that I moved your message to this existing discussion about night pain and trouble sleeping after a TKR. Click VIEW & REPLY to see the entire discussion and read through past messages. I'm also interested in the same questions that @contentandwell asked "How long ago was your surgery? How would you describe your pain?"

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Neither the surgeon nor hospital personnel told me not to use a pillow under my knee post TKR surgery. My PT mentioned it, but I couldn't begin to sleep without it so basically ignored the advice. I use a small pillow in almost every sleep position and it helps a lot. I do have full extension and flexion at 120 degrees. I am 8 weeks post op today. Sleep has been difficult but getting better, although it is not a straight progression. The pain med situation is hard to understand. Take pain med before exercise or PT, OK to take at night, or so they say. But there were lectures about "weaning" and refills very limited. I discovered that Advil works just as well at this point. Tylenol was what the doctor recommended but it never seemed to do anything.

I feel I am progressing daily but I have to say that I thought at this point I would be farther along, i.e. no pain. The motions that are still difficult for me are:
1. going down stairs—non operative leg first, operative leg behind
2. kick backs with operative leg, trying to kick my foot to butt
3. lying flat with operative ankle on rolled towel, relaxing leg, holding for a minute or longer.

I do these several times a day, along with the other prescribed exercises. I also started keeping a sleep/pain journal.

Good luck everyone! I guess each person's recovery is individual.

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@connie1559 I also got the advice to not use a pillow under my knee when sleeping. However, I'm not sure about this advice - it's not as if I slept with my knee straight even without the pillow, as that was painful enough that I would move it to the side in my sleep and bend it slightly. Now, it is true that I am still working on straightening (at 2 deg for extension) at 5-6 weeks, and maybe others can sleep with their legs straight from the get-go. I could not.

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@jud

Neither the surgeon nor hospital personnel told me not to use a pillow under my knee post TKR surgery. My PT mentioned it, but I couldn't begin to sleep without it so basically ignored the advice. I use a small pillow in almost every sleep position and it helps a lot. I do have full extension and flexion at 120 degrees. I am 8 weeks post op today. Sleep has been difficult but getting better, although it is not a straight progression. The pain med situation is hard to understand. Take pain med before exercise or PT, OK to take at night, or so they say. But there were lectures about "weaning" and refills very limited. I discovered that Advil works just as well at this point. Tylenol was what the doctor recommended but it never seemed to do anything.

I feel I am progressing daily but I have to say that I thought at this point I would be farther along, i.e. no pain. The motions that are still difficult for me are:
1. going down stairs—non operative leg first, operative leg behind
2. kick backs with operative leg, trying to kick my foot to butt
3. lying flat with operative ankle on rolled towel, relaxing leg, holding for a minute or longer.

I do these several times a day, along with the other prescribed exercises. I also started keeping a sleep/pain journal.

Good luck everyone! I guess each person's recovery is individual.

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Hi @jud and welcome to Connect. It sounds as if despite the pain you are doing great. I always use a pillow between my legs when sleeping on my side, but have not had the need to when on my back -- I have had two TKRs.
The typical stair method is "down with the bad", so your operated leg should go first. In time you will be easily able to go down the stairs bilaterally. That just comes with time so try to not be concerned about it
Kickbacks are for me history. I will never be able to get my leg very far back and I don't think it's expected after a TKR. I can barely get it far back enough to grab a hold of my ankle, but it's perfectly functional.
I don't recall doing your #3.
You are smart to start a journal. I regret that is not something I did for any of my surgeries. I wish now that I had so I could look back accurately.
JK

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@contentandwell

Hi @jud and welcome to Connect. It sounds as if despite the pain you are doing great. I always use a pillow between my legs when sleeping on my side, but have not had the need to when on my back -- I have had two TKRs.
The typical stair method is "down with the bad", so your operated leg should go first. In time you will be easily able to go down the stairs bilaterally. That just comes with time so try to not be concerned about it
Kickbacks are for me history. I will never be able to get my leg very far back and I don't think it's expected after a TKR. I can barely get it far back enough to grab a hold of my ankle, but it's perfectly functional.
I don't recall doing your #3.
You are smart to start a journal. I regret that is not something I did for any of my surgeries. I wish now that I had so I could look back accurately.
JK

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Funny, just last night in the middle of the night it occurred to me that kickbacks aren't really a part of my everyday life and movement so why go through the pain of the exercise? I guess my theory was if an exercise is painful I should do it even more. So your advice on this is timely!

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