Questions about sarcomatoid urothelial carcinoma

Posted by debbieanddale @debbieanddale, Jul 31 10:12pm

I don't know where to start. I want to help my friend Dale who recently got dx'd w this. I'm a critical care nurse. He knows basically nothing about his cancer. I've known him for 55 years. He is presently getting Keytruda w plans to have a Radical Cystectomy. I would imagine more chemo afterwards. He lives alone and I live in another state. I just saw the path report I've been begging for months to see. I am so scared and I don't scare easy. The less than 1% of people who have his type and what I saw about the aggressiveness and life expectancy my my heart fall. I am here for anything anyone has to offer. I dealt w my mom's rare sarcoma in a group and they saved my life. I'm hoping I can find someone to help me HELP HIM. He cannot understand any of this. I'm trying not to scare him. 😭

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debbieanddale | @debbieanddale | Aug 12 12:40am

I am so grateful for all your helpful advice. He has a phone but doesn't know how to take a screen shot (which is why he can't really navigate electronically). I will send him some things via Amazon that's a good idea, so is the Meals On Wheels. :)) Deb

jaxfl | @jaxfl | 19 hours ago

I keep losing weight whilst NED due to continuous side effects from nivo so I eat a lot of ice cream and fries. My Mayo nutritionist told me sugar is not an issue as the body naturally converts carbs to sugar anyway.