Abdomen involuntarily squeezed tightly

Posted by sophie6709 @sophie6709, Dec 3, 2022

My upper abdomen is involuntarily squeezed tightly and my lower abdomen is severely bloated. Dealing with bloating is hard but still bearable. I can't deal with the involuntarily squeezed upper abdomen--it's really hard to take a full breath--can see the contracted muscle in the picture. I feel like my upper abdomen and chest are pulled in by unknown force. Does anyone know what doctor to see? I have been seeing GI, but I can't get much help.

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I have not been tested for sibo.
Have you gotten abt relief?

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Profile picture for mbusch12 @mbusch12

@skim3737
I had this and thought it was from histel hernia surgery. However, it turned out to be SIBO. Very uncomfortable!!

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@mbusch12
It's absolutely awful. I've been living with it for 12 years and because of a previous small bowel resection surgery and loads of adhesions I cannot be cured of it. I hope you were able to get successful treatment!

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I’ve been living with this for about two years. The pressure when I sit or lay down is unbearable.
I actually take a Xanax at night so I can fall asleep.
I’ve only had an appendectomy when I was 13.
I’m so uncomfortable when sitting, I stand at the counter to read a book.
It’s horrible.

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Profile picture for mbusch12 @mbusch12

@skim3737
I had this and thought it was from histel hernia surgery. However, it turned out to be SIBO. Very uncomfortable!!

Jump to this post

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Profile picture for skim3737 @skim3737

@mbusch12
It's absolutely awful. I've been living with it for 12 years and because of a previous small bowel resection surgery and loads of adhesions I cannot be cured of it. I hope you were able to get successful treatment!

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@skim3737 I was on treatment a year ago for SIBO. I retested and it was negative. However it has returned. The antibiotics this time made me very sick. Now I’m just trying to manage it with low fod map and florastor. I feel stuck again.

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Profile picture for mbusch12 @mbusch12

@skim3737 I was on treatment a year ago for SIBO. I retested and it was negative. However it has returned. The antibiotics this time made me very sick. Now I’m just trying to manage it with low fod map and florastor. I feel stuck again.

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@mbusch12
It's so hard to eradicate for good. Have you tried herbal antimicrobials yet?

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Profile picture for smac1216 @smac1216

For the past two years I am not comfortable when sitting or lying down.
Fell like I’m being squeezed from inside .
Have had numerous tests, however, no one has been able to find out what is wrong.
I walk 3 miles a day, golf and play pickle ball.
Hate nighttime when I have to sit.
Never is any better whether I eat or not eat.
Drink or not drink. It is always the same.

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@smac1216
Have you been tested for MALS Median Arcuate Ligament Syndrome? It's where your diaphragm comes down over your celiac artery and compresses the artery making it narrow. The blood flow to your stomach and other organs then becomes less and creates pain. The pain feels like it's squeezing the abdomen.
There are several GI conditions that can mimic the pain for MALS, so all GI issues need to be ruled out.
The tests used to diagnose MALS, are a Mesenteric Doppler Ultrasound, CTA Angiogram with and without Contrast, and a Celiac Plexus Block. There are specific protocols needed to do these tests, so it's imperative to find a good interventional radiologist who is experienced in MALS.
After confirming results, it's then important to find a very experienced
MALS Vascular Surgeon who knows how to do the surgeries. Do your research. There are many other compressions that can cause this pain along with having MALS. Sometimes, Other causes of compressions can be repeated compressing of the celiac artery and c stents m au need to ge placed or the nerves in the abdomen maybe compressing the arteries from the outside and need to be removed.
The MALS Foundation Facebook page is a great resource page with a list of doctors who patients have recommended, along with information explaining MALS.
Years ago, there was very little availability about MALS even though it's been know about since 1963. It's a rare condition so most GIs and PCP think you can't have it. It seems more and more people have it though.
Other Facebook pages that are a great resource and support are MALS PALS, MALS Awareness, Median Arcuate Ligament Syndrome and many others.
There aren't many doctors even aware of what MALS is. Be careful and don't let doctors gaslight you because of their ignorance of it being so rare.
If you are diagnosed, it can be a tough road for surgery and recovery.
I hope this helps. Stay Positive and keep advocating for yourself.

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Thank you so very much for your information.
Have a scheduled visit with my doctor, next month.
Will suggest I get testing.

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Profile picture for mbusch12 @mbusch12

@skim3737 I was on treatment a year ago for SIBO. I retested and it was negative. However it has returned. The antibiotics this time made me very sick. Now I’m just trying to manage it with low fod map and florastor. I feel stuck again.

Jump to this post

@mbusch12 I had SIBO. It can be caused by taking antibiotics because antibiotics kill the bad and the good bacteria. (I was put on antibiotics at times due to having Mytrial Valve Prolapse which is in the heart and the concern is when having dental work it can cause bacteria to enter the heart. ) My functional medicine doctor put me on a prebiotic for a while and then I was switched to a probiotic - both to build back the good bacteria our guts need. It was explained to me that our upper digestive system has certain bacteria and the lower digestive system has a certain bacteria. Both are important for digestion. That worked for me plus omitting some foods for awhile that are difficult to digest.

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Thanks for your advice. Going to request testing for sibo

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